@love_logan07: Reply to @porsche.lynn #sanfilipposyndrome #curesanfilippo #themoreyouknow

Logan and Fam 💜
Logan and Fam 💜
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Region: US
Saturday 20 February 2021 13:41:30 GMT
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talkingqueen37
TalkingQueen37 :
How is it different from INAD?
2021-02-23 03:31:15
51
jenlovesmusic
Jenlovesmusic :
I have a friend whose beautiful daughter has Sanfilippo Syndrome. She just celebrated 20 beautiful years 🥰 and that sweet girl is the best judge of
2021-02-20 16:02:57
2902
shama.shaikh786
👑Shona💋❤️‍🔥 :
mama I have twins with Sanfilippo syndrome im from Canada
2021-02-20 20:04:05
554
user993903595550
Tania Auger658 :
So sad 😢😢😢❤️
2025-02-10 05:37:17
21
hamster_ratclub
child💀✋ :
how old is he?
2021-03-18 16:53:08
139
theellisisland17
TheEllisIsland17 :
So, is this similar to INAD? Thank you for educating us!
2021-02-21 04:05:29
3
reneeporter09
Renee Porter :
He was given the right mom..You are a beautiful soul..
2021-02-23 04:04:54
1606
clearlycaitlin
ClearlyCaitlin :
God bless you and your son. 🥺🙏
2021-02-20 15:20:49
11
gingersnapmk
Freckles :
Thank you for sharing your story
2021-03-21 03:51:07
1
nikatictok
nikaj :
Hi. how old is Logan? He is a beautiful boy.
2021-03-06 18:27:40
3
marthawilson915
Martha Wilson :
I love that you are bringing awareness to this! I have never heard of it!
2021-02-20 18:51:49
4
mishykiz78
Michelle :
Thank for the awareness. God bless you & your beautiful son❤️
2021-02-20 15:10:00
14
greenl1981
JG :
I have never heard of this. Thank you for spreading awareness and your positivity is incredible! 🥰
2021-02-22 03:32:19
27
ahchelina
Ashley P. :
If both of you are carriers is there any reason why his twin wouldn’t have gotten it as well?
2021-02-20 13:48:53
241
lyssy3206
Lyss :
Thank you for sharing and bringing awareness to Sanfilippo! I am a special education teacher & we have a student with Sanfilippo. She’s my light 💕
2021-02-20 21:09:00
31
lailajessica1994
Lailajessica1994 🏳️‍🌈 :
I've never heard of this disease but if you want to spread awareness have you thought about reaching out to the YouTube chanel sbsk?
2021-03-08 00:19:10
4
sana4.0sb
Sana :
Im so sorry i hope they find a cure soon for this syndrome ❤️❤️
2021-03-06 22:26:36
2
st0rm.ie
storm :
I saw in an article that someone with sanfilippo lived to 50 years old! Do you think this is a possibility for Logan?
2021-03-09 05:55:08
267
noseyroseymom
Noseyroseymom :
Thank you for sharing I have never heard of this before ❤️
2021-02-20 14:15:16
20
kristannaw
Kristanna :
Is this like inad?
2021-02-22 13:03:54
1
blendedasadozen
Misti Banks :
What’s different than INAD
2021-04-22 05:06:45
1
mrsthiessen
mrsthiessen :
I think my older cousin must have had this. It sounds so similar to how I remember him but I guess I’ve never known the actual condition.
2021-03-04 18:08:11
1
rita44641
💕Rita💕 :
Im so so sorry I feel awful for your family I have a chronically ill mother so I know how hard it is, I also was wondering how old is Logan and what difference does the blood transplant make?
2024-06-29 19:54:10
1
loriishii
Lori Ishii :
You have a beautiful smile and such kind eyes.
2021-02-21 03:09:30
7
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