@villainari_art: Living with hyperpots #hyperpots #hyperadrenergicpots #pots #dysautonomia #foryoupage #fyp #raredisease #professionalpatient #foryou

Ranoosh_Z :

Literally checked my bp sitting 120/80 after standing jumped to 145/103 pulse was 100 sitting standing was 140. Never got a actual diagnoses but I am definitely going in.

Emma :

This is my baseline but when i did my tilt table test it was 186/100

Eric B :

Omg. Please help me I don’t know what to do. I’m terrified. Blood pressure was 150/110 today. I was really scared.

jessicamae1688 :

My son’s was 150/130 today at the Neurologist’s office. The whole screen turned red on their machine. We knew it wasn’t good.

ChasityAnne :

Hyperpots for me too! My bp can be 160/100 and even higher. I hate it.

Nicole :

My son has pots and his was 185/125

VillainAri_Art :

I am on meds. It is a an older heart med. I still get weird pressure though. I had a stroke before I was put on meds. Mine is called methyldopa.

Cearra :

What are we doing this? I’m sitting here crying because the doctors released me from the hospital saying my BP of 170/100 and high HR and tremors were anxiety.

Samantha 🗑️ :

I have the high blood pressure type pots too.! Xx

Anna May 🍁🇨🇦 :

I also have hyperPOTS. it's he**. my dr doesn't know much about it so I'm pretty much winging it myself.

✷ Silas 🇺🇾🇮🇹 :

I have hyperPOTS and my bloooe pressure goes to 128/64 and my heart goes to 140-180

Sheena :

My doctor tries to say it’s all in my head and anxiety the other day my blood pressure was 154/101 and my pulse was 163. This is the first time I puls

🌻 Charity Rose 🌻 :

Mines doing this with all pota symptoms and they won't listen.

randomx2_3 :

I have high blood pressure and heart rate bc when resting it’s between 85-100 but when standing it’s 115+ so could I have pots? Bc I have other symptoms too

bighugefatsmellyfart :

My blood pressure gets really high with this

Orb Whisperer :

hugs just got diagnosed

tiffany_marie :

Mine was 156/102 bpm was 121 🥺😮‍💨

SocialFrameDodo :

Mine when am lay down is 80-47,when am up is 130-57 ,and heart rates when i lay down for example are 80 when am up is 120 and up

Roaminscotland :

My resting BP yesterday was 120/86 , resting heart rate 112… immediately jumped to 128 upon standing then fuctuated between 128- 149 at its highest while standing… abd still my GP said oh we will do more bloods. Over almost a year iv been repeating going and they don’t care, this will be the 4th bloods in a few months with all being normal.. my symptoms have gotten so much worse over the last few months and I have mountains of photos, videos, BP and HR listings. 😭

Kayla :

Jamie :

Those are similar to my numbers. Normal ish systolic but high diastolic with high Hr. Did you find any med that works?

katxlilo :

I’m not sure what’s going on.. I have a resting bp of 120/90 and get dizzy during exertion or even walking. I also get blood pooling. It’s been going on for 2.5 years and the doctors can’t figure it out. My heart rhythm is normal and I have no deficiencies or a weird thyroid. Have any of yall had these symptoms?? I haven’t been tested for POTs but I have a suspicion that might be what it is…

VillainAri_Art :

@candicejanehunter does your med help to lower your BP?

christie.andrew170 :

😁😁😁

Candice Jane Hunter :

Sheesh I feel your pain. 160/100 BP and hr 150 for me. Are you on meds? Bisoprolol has helped me loads.