since many people don't know, can you explain the difference between polycythemia vera and secondary polycythemia?
2021-09-29 05:14:11
30
🫦💜💜Johnnie Rochelle💜💜🫦 :
I have been diagnosed with polycythemia Vera and it’s very scary. I had to go today and get blood drained and it wasn’t comfortable at all.
2024-02-01 01:46:37
17
Mandy :
I'm in the process of getting a diagnosis of this
2026-01-31 16:45:57
3
Rachel :
I have just found out I have this too. It’s a blood cancer
2021-09-21 16:13:01
8
Erin Elizabeth :
my 17 year old daughter was just diagnosed. isnt that a bit young?
2022-12-01 02:45:58
5
7OsBaby80sKid90sTeen :
I was diagnosed last year, I currently take an aspirin daily. I’m 48, it’s scares me everytime I think about it 🥺
2024-01-20 06:05:24
14
Diane M :
How do u control the itching?
2022-12-09 15:27:15
14
Get glowing.org :
I’ve been reading that gabapentin- which my mom has been in for two years and has polyvera been reading there’s links to gabapentin causing blood issu
2023-06-01 21:52:26
9
Megan J :
My H&H was high. Hct 50.6 Hgb 17. Dr said I was dehydrated. I wasn’t. I itch after hot showers. Should I get more testing?
2021-08-10 21:09:16
10
uninhibitedx :
JAK2 negative - still have high hgb and hct rbc and RDW. All other tests negative and within limits. So confused!
2021-06-20 23:33:53
5
sweetielyn😘💕❤️ :
doctor im polycythemia Vera positive jak2....
2021-10-09 01:10:00
12
Bigmommymel :
ET here with Jak2+. My hematologist keeps saying I don't need a bone marrow biopsy anyone have info on this?
2022-02-28 00:20:15
3
user2032370357235 :
Positive for Mthfr and Jak2. Doctors brush it off when I tell them. Lots of health issues. What tests can I ask for to diagnose?
2022-06-17 07:47:20
6
Natalie Greenberg :
Really great explanation, as I am someone who has this 🤍
2022-01-09 01:23:34
9
Texan Lady 54 :
Just found out I have it
2021-07-19 21:57:10
9
🌻 Amanda 🌻 :
I’d love to see someone discuss familial PCV.
2021-11-14 05:08:55
8
beverlydachel :
why do my ears ring and I feel dizzy
2023-11-27 00:39:49
7
Dallas Vazquez :
I have so many symptoms but my red cells are considered WNL. Only high platelets.
2023-05-18 21:18:47
3
ash_phd :
That’s a lotta big words. Biology is whack. 😳
2021-04-12 03:55:35
5
Her :
My son was diagnosed with just polycythemia the day after he was born.. do infants have a chance to overcome this?
2022-07-23 21:55:51
4
lakelife1106 :
I’m waiting on my jak2 results. My hemoglobin is slightly elevated. Result of my labs look great. 3/7 I see hematology dr to see to get evaluated.
2023-01-27 20:30:49
3
Tina Holowell-Yancey :
I have it, 
2021-04-12 01:59:22
4
LadyAJ77 :
Yup and it SUCKS.
2021-05-08 11:02:03
2
machris2716 :
doc drew i was diagnosed last april with essential thrombocythemia but my jak2 came back negative. i am under hydroxyurea and aspirin since then
2023-11-13 12:30:26
2
Yvonne Tap :
My 14 year old son has s trombocyte value of 1735 and vwf is low and he has also a carl 1 mutation(vaf7%). Is it sure that he has a MPN disease or can it be also a less serious disease?Yvonne
2024-11-24 01:13:54
1
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