It was wild when it started. I was trying to explain the “numbness” and so many doctors told my mother i was faking it until i couldnt find my breaks
2024-01-18 04:24:16
7
Graftongorl :
My dad has just being diagnosed with something similar I think. He stopped being able to walk properly and the spinal tap helped diagnose him…
2021-07-05 13:55:13
2
rinaralley :
I have cidp ... my symptoms were the same xx
2021-08-02 21:59:36
3
Mirthe :
Not me having severe walking issues for 10yrs and doctors never take me seriously. Now they find out I have autoimmune antibodies. They’ll send me to a new neurologist bc ‘maybe it’s real afterall’
2024-04-02 08:44:48
1
..𝓢𝓽𝓪𝓬𝓮𝔂 𝓶𝓪𝔂 🩷 :
did it show on an MRI scan? like in your brain?.
2021-08-01 09:33:05
0
moyra1922 :
Yes exactly for me
2022-09-01 11:47:32
2
Christopher Allen Sr :
Got back surgery and turned out to be cipd. Went from walking and no walking in a month but symptoms a few years back
2023-01-08 01:47:29
2
crickey86 :
What was your protein levels with your spinal tap?
2025-12-18 03:24:08
1
HypoGal Health Life Tips Hacks :
Thank you for sharing your journey. I also have CIPD. My first sign is I had trouble lifting my left foot.
2022-08-16 04:29:05
1
jfgthemule :
i notice my first symptoms in 2014..sharp electrical tingles down my legs..i fell several times..diagnosef in 2021..iv immunoglobin did nothing..waiti
2023-08-08 17:03:51
1
Kimberly Rodrigu3530 :
I am getting tested for MS can this cause lesions on the brain
2024-05-07 18:20:15
0
Hatch and Cloak :
What markers in the CSF would show this?
2026-05-12 04:36:18
0
Katie Walton :
did you have a nerve conduction test? if so did that reveal anything? wishing you all the best!! 💪
2021-07-05 10:38:27
1
Laaa :
I just got diagnosed with cidp my symptoms started was numbness in my feet weakness my hip arms etc
2022-06-02 04:04:16
1
Christopher Allen Sr :
But im told their is no test for cipd, just process of eliminating?
2023-01-08 01:49:08
0
Thomas Mcpherson :
I have cidp and it has crippled my hands and legs and I take infusions every week and it has stopped it from getting worse
2023-01-26 01:42:30
0
Sonow ima catlady :
Was weird as hell! The spinal was not that bad right? I was like hell yea.
2023-01-30 02:11:06
0
LaDawn Simpson :
tingling left hand and foot, blood pressure from extream high to low, memory loss, nerve conductivity test showed a diffrence in left and right
2023-12-27 21:25:29
0
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