Matt | CIRS | Chronic Illness
Region: US
Tuesday 17 August 2021 14:38:15 GMT
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June :
“Have you tried yoga??” [stares in Ehlers Danlos] 😐
2021-08-19 03:21:57
182
user2982008353910 :
“You’re too young to be in that much pain”
2021-08-18 12:28:29
172
Eclectic Lauren :
And when you’ve internalized it and avoid seeking further diagnosis becuase no one thinks it’s thaaaaat bad 🥲
2021-08-18 13:08:58
95
Dandelion :
“It’s made up like that fibromyalgia thing right? They can’t test for it.” Yes they can and no, it’s not fake. I suffer, a life of exhaustion.
2021-08-18 12:06:30
73
taylorbarrett769 :
I say these things to myself about my PTSD. :(
2021-08-18 12:55:16
29
Rulesofprey :
Yes! I’ve had people tell me I must not be that sick if I can go to work but they don’t realize I take 9 different meds so I can work, pain meds help
2021-08-18 11:02:52
16
🦇❤️🖤A❤️🖤🦇 :
Yep! I have Rheumatoid Arthritis. I felt this in my soul
2021-08-19 01:41:25
13
Kimothy :
I always say “so if I had cancer you would take this more seriously? Is my pain not valid enough for you?”
2021-08-20 18:33:12
10
🌸🐙Jade🐙🌸 :
I have lupus and RA and I am so tired of hearing this, especially from doctors, the people that are supposed to help
2021-08-19 03:15:08
10
chris.tea13 :
I love when people say “at least it isn’t cancer” to me because I had cancer, and it’s how I found out I had autoimmune diseases as well 😅
2021-08-20 09:57:41
9
Jane Dough 🍪 Cookie Kitchen :
ok the last 2 my mom says ALL the TIME and it rubs me the wrong way. i know she means well but it somehow makes me feel worse
2021-08-19 01:02:01
9
ain't easy bein cheezy :
Please don't get me started😒 Healthiest looking person in the room but is quietly suffering while everyone else bitches about things they CAN control
2021-08-18 12:23:32
4
VulcanJustice :
I loathed when ppl would say “it could be worse.” Dying from Cystic Fibrosis and waiting on a bilateral lung transplant isn’t bad. Glad I got it but
2021-08-19 00:49:06
4
Kirsty :
Oof. Huge yep on all fronts. Plus the public reaction to covid (here anyways, anti maskers) - ableism 😔
2021-08-18 15:50:14
4
Jo :
You’re too young to have x or use x is a daily conversation and I’m at the point I want to print up a info sheet and wordless hand it to them
2021-08-19 22:51:08
4
Cheyanna Jones :
"It's never lupus" 🙄 honestly fuck the writers behind House
2021-08-18 15:09:51
4
Wesley :
Tell my 4 hour a month infusions I’m not :(
2021-08-19 03:27:10
4
Jade Berry :
The cancer comment always confuses me, like what am I supposed to say back to that 😳😅
2021-08-20 16:08:40
4
jeniiiqu :
Saved for my Instagram haha
2021-08-17 21:51:28
4
Dani 🖤 :
My son was 6 days old and had open heart surgery, and his pacemaker put in. Some lady to me: at least it’s not cancer
2021-08-18 23:03:19
3
Chonic Pain Is not a crime⚡️ :
yes!
2021-08-17 23:23:59
3
KK :
Me with 4 mental health diagnoses 🙃
2021-08-19 02:22:58
3
Tranarchosyndaclist :
when I was much younger I wished I had cancer bc ppl said this to me & I was confused why my disease didn't matter to them 😅
2021-08-19 21:43:11
3
Halo Toons :
Saved and posting where certain family members will see it. Thank you.💖👏
2021-08-18 12:20:26
3
~☆~Dawn~☆~ :
I saw you do this last week, why not this week. pfft
2021-08-18 12:04:49
3
wanderlust🌕🌌🌻 :
Cancer, a lot of times, is curable. Chronic illness isn't, hence the chronic bit. Why don't people understand that?😫
2021-08-19 04:39:03
2
Scotty :
I haven't seen it in other specific communities, but in the service dog community we tend to have disability Olympics. which obviously stems from
2021-08-18 15:30:18
2
Steph & Bam :
Yeah…. The severe form of my illness, which is what I have, is considered worse than many cancers….
2021-08-20 21:28:19
2
A Woman :
I have stopped saying those things because I’ve learned people don’t like it. The intention was good but that’s not enough. Now I stay silent.
2021-08-18 13:35:00
2
💛 construere 💛 :
#healthcareforall So on point 😳 #JoinUs #Oct15 #takethedayoff #youdeserveit #foressentialworkers #fortheplanet LaborMovementX.org
2021-08-18 12:42:40
2
Crafty :
Oh and don't forget oh your to young for that 😡🤬
2021-08-18 11:53:01
2
❤️🔥🐼ChaoticRedPanda🐼❤️🔥 :
omfg this. so much this.
2021-08-18 16:48:51
2
The_Audhd_Nomad :
Arthritis, fibromyalgia, hormones being tested but I’m just too lazy and if I just lost some weight. Had these problems when I was skinny btw 1
2021-08-20 05:01:24
2
angiewith12eees :
Me too, friend, sorry
2021-08-18 23:59:25
2
leftylizzy :
I've been told by my family that my nerve/bladder condition isn't a big deal because it's not directly killing me. 😏
2021-08-18 23:05:28
2
Saturn 🪐 :
“It’s just anxiety” Yes, because I’ve been having a constant anxiety attack for 4 years
2021-08-27 14:12:58
1
WhispersWhimsy :
“you’re Not made of sugar “ 🙄
2021-08-18 22:33:35
1
Shara J - creative :
Even when it is cancer, you get similar comments
2021-08-28 13:38:16
1
Aurora Borealis :
I just say "I'm sorry. that sucks 👎" because I have disabilities and I don't know what I'd even want to hear lol
2021-08-27 22:55:54
1
StarShip :
Me: Pulls out insulin pump to prove I’m “sick”
2021-08-27 21:51:55
1
Sky is Blue :
"Ah, you have an easy lupus, you'll be fine, just take 10k UI vitamin D daily...that should do it thanks...😏
2021-08-27 18:23:27
1
Just Lynn :
I often have to stop myself from being like, I wish it was cancer. Most forms of cancer have viable, tested, science based treatment plans. I keep
2021-08-27 18:16:21
1
InuAiNeko :
For real 😒
2021-08-18 22:08:36
1
🖤🤍Sara🤍🖤 :
So true! 🥰
2021-08-19 00:05:04
1
Amber :
“You have disability accommodations, you’re so lucky” 😒
2021-08-28 15:59:36
1
Vapid Doll :
I literally lose muscle function and have to have body checks to make sure I didn't injure myself. I don't want to hear anyone say any of these things
2021-08-27 13:53:40
1
Trashy Sugar Travels :
I see no lie
2021-08-19 00:46:59
1
Diamond :
All of these!!
2021-08-18 16:37:50
1
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