Kaylee Bays
Region: US
Sunday 10 October 2021 01:42:15 GMT
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Flor🖤 :
ive never felt so seen in my life. im crying. i literally cant walk or digest food and im having nerological problems and people are telling me to
2022-04-15 05:56:09
301
Rooba :
Bro I never realised it was EDS, they just called it hypermobility. Now my easy bruising and bad eyesight make sense 😳
2021-10-18 10:22:12
234
Kirby :
Where did you get those rings?
2024-12-02 08:17:56
0
Chandra :
So if I’m waking and I feel my knee cap slide could that be EDS?
2023-03-01 02:00:05
85
A hybrid clown named Trippy🤡 :
"No one sees how much pain we are in everyday." Exactly that. I don't have EDS, but I do have a herniated nerve in my shoulder. Constant pain, every-
2022-07-26 07:10:09
83
Red :
where did you get those rings??? I have hypermobile joints, and I end up wearing thumb splits but they are so obnoxious!
2022-07-27 08:45:52
101
Jaimi Butler :
Very few people in my life understand the pain I deal with on a daily basis. It’s even hard to explain it myself sometimes. Thank you for making this.
2022-02-10 17:45:03
59
Carmen Goodwin :
Another zebra here…thank you for explaining it, so often people just get a funny vacant look on their face when I say I have hEDS. Love your vibe!
2022-07-26 07:29:23
29
Brandie Lynn :
I have eds and pots they look at me and say “oh you just keep going its not that bad” like ok you know right): the pain is horrible
2022-07-26 08:21:45
1
Jessa :
Thank you for informing people about EDS! It’s so hard to explain to people how severe it is
2021-10-10 13:35:01
652
Tyboy9900 :
This is video is very well done! It’s straight to the point, provides real examples for the symptoms, and it’s humorous. What more do you need?
2021-10-10 15:55:15
204
Melissa Wyzard :
my best friend had type 4 EDS 🥺 we lost her June 2021 after she went into full cardiac arrest
2022-03-13 05:45:21
202
dawnmarie :
Wish more people understood my body changes constantly. I can need crutches in morning but not afternoon
2022-01-09 05:25:55
152
Nobody111 :
I got diagnosed with EDS and POTS today 🥺
2022-02-09 22:16:23
123
tiff tiff :
This video makes me so scared for my 8-year old 🥲 her knees are buckling & she’s falling. See ortho tomorrow 😭I don’t know what to expect
2022-02-16 05:04:14
65
ArmoredCyberself :
Are you able to get corneal cross linking surgery? I have Keratoconus and it has stopped my cornea thinning.
2022-02-18 18:22:41
64
Alaina Swann :
I have a lot of those symptoms 😳 my contacts are a little more than -5 in both eyes & I have an astigmatism in my left eye. I also have scoliosis.
2021-10-11 00:36:13
51
Carlie Chatfield :
Type 3 out here!! 🦓
2021-10-11 01:31:26
36
Heather Booysen :
You’re an inspiration! Thank you for sharing your story 🥰
2022-02-13 15:18:29
33
kimmie✨ :
I was diagnosed with hyper mobility and have a lot of the symptoms but am scared I won’t be believed if I go to a doctor
2021-10-10 18:30:15
32
Samantha Leigh Weaver :
I’m so glad that you were so informative! Having EDS is hard and you don’t realize how many others know what you go through! Im so glad that I saw 1/2
2022-01-27 12:34:50
32
Jassie J :
why is no one doing research?! stuff like this wants me to keep studying stem
2022-03-02 21:08:06
31
joyfulcreations.md :
Gotta love the fun stuff that comes with it. I shut a door yesterday & my elbow said nope! Just anther day 🦓 wish we had more chair dance teachers💜
2022-07-29 04:19:36
28
Felicia Mason :
-10.5 and getting worse by the year! 😂
2022-04-06 04:17:57
28
Allyson Wade :
I have gastropareisis and it’s the worst. Early satiety, or eat and then feel miserable lying on your left side
2022-03-07 07:19:52
21
Share :
Have my own mini herd 🦓🦓🦓 thanks for being such a great advocate!
2022-08-02 04:44:57
10
Laura Vieau :
me and my older two have hyperbmobility of joints and I bruise easily. they have never known why. could this be a cause?? my daughter is really in a
2021-10-11 00:30:31
10
Brittany love :
Thanks for this! They believe my baby has this- I might have it too mildy but I got dx with lupus 😳 trying to learn about EDS now for my babe!
2022-05-14 14:27:37
8
BellabooLove107 💕 :
Is there any medication for EDS?
2022-02-19 12:53:55
8
Jmilam86 :
Well said 🥰 honoring our body you are absolutely right! It’s been hard! I have been trying to figure out ways to workout without causing flare ups!
2022-02-15 22:57:14
6
just_._duckie :
Both my hubs and son have Eds and I love that you are spreading awareness and living your best life! 💕
2021-10-10 02:23:44
5
jd613a :
Do those rings keep a “hitchhikers thumb” from staying tilted backwards? HT was only the first hint of EDS for me :(
2022-08-01 01:42:40
4
Kduzz89 :
Was just diagnosed with this, this spring. The fact that no one caught it, and I’m 50. 🥺 Had knee and shoulder surgeries, not knowing. Hugs!
2022-07-26 13:43:16
3
Taryn :
Thank you for this! I have this as well everyday!!! I have EDS, POTS and other stuff!!
2022-02-22 02:04:58
3
Meagan🦓ADK_Zebra_Designs🦓 :
thank you for explaining all of this so well... I'm using this video to explain to others🥰
2022-04-24 19:24:42
3
Scarlett's Wife💕🤭 :
this made me cry for some reason bc of how true this is and no one understands us zebras and its so difficult
2022-09-08 14:41:28
2
💙🎀Spoiled Wifey🎀💙 :
wow ur awesome!!!🥰🥰🥰 @laci_3721 @dawn3721 @thedestinyxoxo
2022-06-07 19:26:52
2
KFraz :
I thought ‘zebras’ was due to difficulty of diagnosing—symptoms could be many things, and when drs hear hoofbeats, they think horses not zebras.
2023-03-04 19:08:54
2
cheynanigans :
My daughter has Stickler Syndrome which is also a connective tissue disorder severely lacking in research, thank you for being so open and educating💚
2022-07-26 19:34:20
2
ZebraMama :
I am so glad i have found the Zebras on here. it has helped my daughter know shes not alone!
2022-07-30 02:27:02
2
Katie 🖤 :
I’m shook. Knee surgery on both knees because of the dislocations, horrible vision, scoliosis, bruise easily. I need to see a doctor.
2023-02-21 17:38:18
2
Rileydube :
I was just diagnosed. I’ve been told by drs my whole life nothing is wrong with me come to find out the popping I experience daily is actually disloca
2022-07-27 16:10:32
2
eve :3 :
it sucks that no one puts research into eds especially hyper mobility. people don’t understand how severe it is
2021-10-24 01:54:18
2
Shannelle DeWitt :
So I got diagnosed with joint hyper mobility syndrome. Could I have EDS an not know it? Because my joints are always hurting. I also have others
2022-07-27 17:05:13
2
DREDIE | Recording Artist :
Thanks for sharing. My grandma had this🙏🏾🙏🏾🙏🏾 rip nana.
2022-07-22 03:23:10
2
𓋼𓍊Kҽʅʂҽყ𖤓Aɳɠҽʅιɳα𓍊𓋼 :
So grateful to have found a Zebra like me! 🥰🦓💜
2022-07-26 04:55:17
2
Anna🦩 :
♥️
2022-07-26 03:44:27
2
Alyssa :
I’ve got issues with my tissues too. I was diagnosed with Hypermobility Joint Syndrome.
2022-08-02 13:17:21
1
Ariane Lavallée :
I have hEDS and school was the hardest for me couldn’t finish high school with all the barriers they put up because they couldn’t understand EDS
2022-07-31 23:23:09
1
ThatBritishMo :
Thank you for posting this. My wife has battled with EDS her whole life and has the same problems where don't see it and don't understand it. 🥺
2022-07-31 23:18:12
1
Sar-ra-ha :
I feel like loving this video is wrong 😕 but I loved it for your strength and positive attitude... You are beautiful inside and out!
2022-07-31 04:23:55
1
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