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@archthot: Reply to @hollow.boness #adpkd #pkd #chronicallyill #sciencetok
Steph the Archaeologist 🇦🇺
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Region: GB
Tuesday 04 January 2022 13:07:20 GMT
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Comments
sol :
ohh i see! thank you so much for explaining :3
2022-01-04 18:23:48
6
Coyote 🪶 :
I have Alpha One Antitypsin Deficiency. It’s genetic and I’m considered a carrier as are my three siblings. It’s scary as hell
2022-01-05 03:22:50
4
Chellie 🇿🇦🎢 :
I have IGA Nephropathy, also a kidney disease, I was asymptomatic until 15, then it flopped and now I'm on dialysis
2022-01-04 13:24:38
3
Lux :
my dad has an illness that Norma hits in the 20s... he had no symptoms until his 50s
2022-01-04 13:59:46
1
Pablo.eth :
I have too. Do you have keto diet?
2022-03-03 17:23:18
1
Sarah P 🌴 :
I have the same diagnosis! Its so frustrating.
2022-01-11 01:44:29
0
Anastacia :
I have the same diagnosis, I was diagnosed at 4 years old. I only started having issues at around 19/20 with hypertension related to adpkd
2022-01-29 00:41:55
0
kristin_smbc :
I had cysts found on my kidneys too but haven't done the genetic testing yet. 😔
2022-02-08 12:58:16
0
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