@jjaaaccceeeyyy: Reply to @rehabvictim #DisneyPlusVoices im bad at explaining things lol sorry #boostofhope #fyp #pah #foryou

jaaaccceeeyyy
jaaaccceeeyyy
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Region: US
Friday 07 January 2022 14:05:45 GMT
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wieldingmjolnir
Swood :
i pray in Jesus's name you can get the transplant and live a long life full of years! i cant even imagine.
2022-01-08 07:08:00
11
itsquabreezyyy
quadoraaaa :
you're strong you're doing a good job continue to take care of yourself and you will be just fine having ph is serious we just have to take it one day at a time
2024-09-29 04:40:35
0
picklebitch0
Daddydaycare😏😏 :
I can’t do it on my stomach it hurts to bad
2024-09-25 03:23:18
0
jjaaaccceeeyyy
jaaaccceeeyyy :
I’ll tell you guys a funny but sad thing about it 😅 I was named after my aunt who died of the same disease. My mom said she cursed me 🤣
2022-01-07 17:20:04
1820
notathicctoothpicc
Eve :
“It still didnt want to stick” 👹 caught me off guard
2022-01-08 04:07:07
1651
carswelldoesmovies
William :
life isn't fair sometimes
2022-01-07 17:39:00
1275
amber.sexton27
Amber :
I am 23 years old and had a heart transplant 5 years ago…if you ever wanna chat I am here for you. you are so strong and so brave. ill be praying for
2022-01-07 19:05:45
794
brokefromchildsupport
broke from child support :
I hope you get better
2022-01-07 14:51:02
472
loio___
LoIo___ :
Do you mind talking abt how you got diagnosed/what were the signs? Really hope you're able to get a transplant <3
2022-01-07 15:13:19
346
__katedaigle
Kate :
This breaks my heart
2022-01-09 00:02:31
241
ben.shapiro.sings.wap
Sophie🤩 :
Pulmonary hypertension runs in my family. They found a gene that many of my relatives have that cause it. I had to get tested and luckily I don’t have
2022-01-07 20:21:45
183
user2qpxrtjcl2
stephen :
you just woke up my entire house and almost gave me cardiac arrest I had my volume on max when the tts came in lol
2022-01-08 23:04:12
178
nyr0k
Koryn <3 :
you got this <3 my thoughts are with you
2022-01-07 19:40:34
128
claraelizabeth10
Clara :
You got this! My grandma has PH and she is doing very well. All suitations are different but i hope this gives you some hope
2022-01-13 06:51:48
80
pistachioadmirer
kat :
my mom had PH. praying for you.
2022-01-07 18:07:12
66
heroicgucci
Heroic Gucci :
how are you going have that sound when its soo quiet
2022-01-08 00:49:14
47
carmenbhilling
carmen 🎀 :
i’m so sorry girl ☹️my dad has pulmonary hypertension, it’s such a cruel disease.
2022-01-08 23:49:28
47
jackie0121
Jackie :
Do you ever get frustrated when you tell people you’re terminal and they talk about you getting better?
2022-01-09 02:40:11
35
samuel71x
samuelx :
the fact youre terminal and you’re waking up thinking you look bad when you look gorgeous upsets me , sending you my love though <3
2022-01-12 21:37:43
25
inq61350
inq613 :
you're voice is so soothing and you genuinely sound like a kind perservering person. I wish you the best and I'm proud of you for pushing so far 🥰
2022-01-08 06:41:54
22
nickmitchell38
polarbear38 :
Will it still be terminal if you get a lung transplant? That sounds super scary, you're incredibly brave!
2022-01-07 18:10:48
18
annnna_75
annnnnna :
life IS unfair.I hope you feel better soon and that it'll get easier for you in the long run. youre so strong going through this at such a young age!
2022-01-08 22:57:52
14
glambyflo
Florence :
I wanna hug u
2022-01-08 13:53:21
11
zoemoriah23
zoemoriah23 :
i’m sorry if this comes off the wrong way, but with the transplant with that make you non terminal? or increase life expectancy?
2022-01-07 21:30:23
8
sturgesssss
Zali :
I have ph as well. I’m from Australia and was diagnosed just over 2 years ago I have never met anyone young with this illness if you ever want to chat
2022-01-08 02:57:02
7
annalizwalker
Anna Walker :
I’ve taken care of many patients that have had pulmonary hypertension and received heart and lung transplants for, I hope this for you ❤️
2022-01-13 07:59:21
7
bmcnics
Brendan :
How old were you when you were diagnosed?
2022-01-08 01:29:34
6
willyseee
William :
What insulin pump you got?
2022-01-08 07:36:22
5
mr_oooeh_gooey
Brandon Caster :
You seem so sweet. I hope life treats you well in the future
2022-01-12 07:54:01
3
alphpha
Caden :
I’m sorry dude :( it sounds like you just need to increase the size of your arteries/veins which is possible. After I took testosterone propionate 1/2
2022-01-12 01:59:52
3
katie__rosee_
Katie :
Did they catch this from an EKG/echocardiogram/CT? I have the same symptoms, but my CT, echocardiogram and EKG have all been clear 😳
2022-01-15 15:00:44
2
sockswsandals00
socks :
otherwise it won't stic-IT STILL DIDN'T WANT TO STICK
2022-01-08 23:49:51
2
wetshoesmcgee
Salem :
What does the port do
2022-01-08 05:10:12
2
reganhoward43
Reganhoward3 :
Wait so do you have type 1 diabetes aswell?? I just recognize all of this material as I have T1D
2022-01-08 04:05:29
2
j_cohenn
jacey :
side note, you are the first person i’ve seen that has my same name WITH the same spelling. jacey gang rise up😮‍💨
2022-01-15 14:35:53
2
user1201511559
Q :
That’s horrible I can’t imagine going through that as someone who seems close to my age. All the best to you 🙏🏼
2022-01-09 04:37:03
2
birdsflyfried
zoll 🤓 :
Write a book yo
2022-01-10 01:18:35
2
tarakchyan
ani :) :
i’m so sorry life isn’t fair, I hope your condition gets better :)
2022-01-09 05:29:01
2
itsjc1529
Jc :
I don’t have questions just saying hello friend
2022-01-14 13:23:14
2
its_kandace
KJ :
Have you made a bucket list? Can you start crossing some things off? Can any of us on here help you with that?!
2022-01-15 01:26:17
1
paaaisen
Paisen :
if you have a lung trasplant, will you live?
2022-01-09 08:41:54
1
marim0o0o.o
eeee :
hope u find peace
2022-01-14 20:32:46
1
richardwebbersplug
☽ :
i’m rooting for you baby💜
2022-01-09 09:29:02
1
xsoon921
R :
You deserve the universe, im so so sorry
2022-01-09 12:24:52
1
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