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@savingsadierae: There will be a cure but we just hope it’s in time for Sadie #sanfilippo #sanfilipposyndrome #clinicaltrial #raredisease
Sadie & Fam
Open In TikTok:
Region: US
Friday 22 April 2022 23:10:32 GMT
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Comments
Jeff Gordon :
I just wish someone like Elon Musk or Jeff Bezos would see this and fund it. Not because of any return on investment. But, because it helps people.
2022-04-23 16:30:25
49
Diane☺️✅ :
I’m sorry! Why is it profit over saving lives? Prayers for Sadie
2022-04-23 00:28:32
18
Theresa :
when you say new leadership, are you talking about pharma or the hospital?
2022-04-22 23:58:48
15
BigMamaB73the OG🐿️ :
I’m so sorry decisions were made because of numbers, not the people the program was helping. 💜
2022-04-25 19:06:02
5
Kristie Ponder :
I hate that peoples lives depend on what makes $. When I watched your videos I was amazed at how good Sadie was doing during the med trial. I know the
2022-04-23 18:55:05
4
Amie :
I am SO SORRY! It's not right that they stop a trial that is WORKING! Where is the humanity in medicine 🥺
2022-04-27 01:47:46
3
a 🐙 :
it’s sad that they care about money and profits more than actually helping people
2022-05-04 00:21:33
2
niknat20 :
Gut wrenching. Im so sorry. 🥺
2022-04-22 23:48:13
2
Tonya Schuller :
it's so sad how everything is going to HELL in a hand basket. I pray for you "little fighter" 🥰
2022-04-26 10:57:29
2
noodlesandsalem :
is there somebody we can write to? or sign a petition🥺🥺
2022-04-24 00:30:44
2
juliebrantley691 Julie :
Way to go Sadie.🥰🥰
2022-04-23 01:35:43
2
Kelly Griffith :
Big pharma is a disgusting monopoly. 🥺 My prayers are with Sadie.
2022-04-23 02:05:37
2
Ashley Barber :
This makes me so sad and mad at big pharma
2022-04-22 23:30:32
2
Tryingtohelp1227 :
Prayers Sweet Sadie
2022-04-22 23:27:30
1
user4488338915051 :
It is so sad that funding for treatments for rare diseases are not a priority. These decisions affect lives.
2022-05-06 17:26:20
1
VietVet52 :
It’s not fair!!!
2022-04-23 04:01:23
1
SillyAD7904 :
How do we fight
2022-04-24 17:04:24
1
Babush :
Each day is a celebration she has a special place on my prayer list yes I’m a old lady I’m 64 my daughter is 24 I know the special bond there is with
2022-07-03 00:06:07
1
jojo/rock :
love and prayers ❤ 🙏
2022-04-22 23:52:44
1
Maria Gump :
🥺 🙏
2022-04-23 00:23:57
1
Julie 🇮🇱 :
Millionaires go to space and purchase Twitter but none of them will fund this trial. I’m sad and very angry 💔💔💔
2022-04-27 05:25:41
1
kimbe122 :
My heart breaks for you, Sadie, and your family. Prayers!
2022-04-27 21:40:36
1
Crissy :
Praying something changes!!
2022-04-28 02:45:44
1
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