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@savingsadierae: Reply to @pampered_foodie - here’s Sadie singing recently for comparison #sanfilippo #sanfilipposyndrome #dementia #childhooddementia #raredisease
Sadie & Fam
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Region: US
Sunday 24 April 2022 04:05:26 GMT
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Comments
Cheryl Gomery :
Oh wow, this is is so bittersweet! Your trying to track progress & decline at the same time! Sadie is such a stunning girl! Sending you all love 💕
2022-04-24 12:22:24
58
Denise_Allen :
I’m still praying I serve an almighty God that can do anything he’s a way maker miracle worker 🙏🏻
2022-04-24 04:24:02
12
Carrie + Haidyn 🦋 :
My heart 🥺
2022-04-26 00:20:14
28
MissMel46 :
I can't imagine how hard this must be...little things like this that the average person may take for granted.
2022-04-24 04:14:26
18
Manifest1111 :
So precious! I just love her accent!! 🥰🥰🥰🥰
2022-04-24 04:11:43
19
💕 Blue Eyed Bunny 🐰 :
Allie is losing more and more speech so fast lately it’s so hard to process
2022-04-29 23:44:26
12
Amie :
This is so sad 🥺 But definitely a good indicator and way to measure her loss. You can really see how differently the disease affects everyone and at
2022-04-27 01:34:30
1
VonBonBons :
She’s beautiful.
2022-04-24 07:55:46
1
Susden :
I wish she could continue the treatment and that all the sanfilippo children could get that treatment as well.
2022-04-24 09:18:00
7
Dancer :
🥺Praying for her to be healed💜💜💜
2022-04-24 05:20:10
3
🧚♂️🩷Suzie Q🩷🧚♂️ :
🥰🤗🥰❤️
2022-04-24 04:33:38
2
im NORA :
“Please don’t take my sunshine away” 😭😭
2022-04-24 18:38:58
2
April :
🥰🥰🥰
2022-04-24 04:53:50
1
Freda Oldham230 :
Prayers❤️
2022-04-26 05:45:44
1
pmck808 :
She is such a pretty child. 🥰
2022-04-25 07:12:20
1
Brenna Leigh :
She’s so precious 🥺
2022-06-08 04:58:39
1
Lynn :
🥰🥰🥰
2022-04-24 15:44:34
1
Ashley Gmitter :
oh sweet Sadie 🥺🥰
2022-04-26 14:43:41
1
Dlucas815 :
♥️♥️♥️
2022-04-26 01:00:16
1
Tori 🌺 :
So cute 🥰
2022-04-26 00:18:24
1
Judi Jones :
my heart goes out to you and this sweet little girl. it must be so hard to film this, but one day, you will be comforted. it's a bit of her ❤️❤️❤️❤️
2022-04-25 18:37:50
1
Kopa :
I’m crying 🥺 sweet angel, I really hope a cure is found.
2022-04-25 21:26:05
1
Windy :
Brought tears to my eyes.What a cherished moment 🥰
2022-04-25 01:42:22
1
To see more videos from user @savingsadierae, please go to the Tikwm homepage.
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