@fragileskinariana: Reply to @diiana762 i’m sorry that you cannot handle the truth of what a chronic illness is like. But if you are not in my shoes you cannot tell me how to feel. When I receive well wishes it makes me appreciative but also upset as it is a reminder that I will never get better. I am worsening by the day. And I have the right to experience both emotions. #epidermolysisbullosa #SearchForWonderMom #LaurelRoad4Nurses #BBPlayDate