Alii Robinson
Region: GB
Saturday 07 May 2022 19:26:24 GMT
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❤️ 🪽 kazzy 🪽 ❤️ :
Alot of ppl find it difficult to speak with a tracky is this common and did u find it difficult to speak with one. U are very brave xx
2022-05-07 20:55:08
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Lilly Geary :
I'm a paeds nurse and have never seen a metal Trachy. Is there any reason why it's metal? 🥰
2022-05-07 20:24:56
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Brittany Smith8419 :
Wow your a strong beautiful woman for this!! If you don’t mind me asking have you had chucky in your whole life?? 🥰
2022-05-10 10:51:41
5
Oscar the geordie cockapoo :
that very brave of you to tell this to people on here. Respect xxxx
2022-05-07 19:55:41
2019
Tya Clarke :
my little boy has a medical condition called subglottic stenosis (narrow airways) and was warned he would need a tracky thankfully he's past the worst
2022-05-07 20:41:01
379
🖌️🎨ProCreateDrawings000🎨🖌️ :
Again don’t worry if you are uncomfortable to share but my question is… the end of the trache looks like it’s closed off, is this correct?
2022-05-07 20:51:45
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Charlene :
I'm new to you're page. Thank you for explaining you're story. You're a very inspirational person 🥰
2022-05-07 20:56:54
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Kierannnn :
May I ask, what would happen if you didn’t put the metal tube trachy thing back in, would you just stop breathing? X
2022-05-08 23:49:20
5
nataliedawnmcc :
My son was born with PRS. 🥹 I’ve never come across anyone else that has it.
2022-05-09 08:44:24
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Stacey Robertson :
thank you for sharing 🥰
2022-05-07 19:56:17
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Jodie Robyn Palmer :
This is really cool that you have shared your story. I love all things trache and work for the company who used to distribute for this tracheostomy
2022-05-08 09:35:00
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Candymanne :
Thank you for sharing your story. It’s really informative x
2022-05-07 21:14:27
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Ljg90 :
Hi, how come your voice is “normal” it’s something my mum possibly needs and her main worry is not been able to talk? X
2022-05-08 09:01:58
5
NikkiNakkiNoo_78 :
Thankyou for sharing. Saw your last video and was wondering why. I’m a midwife and never heard of this syndrome. Will be more aware thanks to you 😘😘
2022-05-07 20:13:53
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Candy rain :
Thank you for educating me on this, this is completely new to me, so amazing! Thanks for sharing your journey 🥰
2022-05-08 07:51:08
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charlotteR :
my daughter has Pierre robin syndrome, iv spoken to Alot of parents with children who have Pierre robin but never heard an adult point of view! x
2022-05-08 20:31:09
5
jaynesworld1979 :
Wow didn’t realise Pierre robin could do this xx I’m a mum to cleft cuties xx
2022-05-07 20:43:46
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Sarah :
a member of my family had a trachy due to oesophageal cancer and I'd see her change it they have advanced so much in the 20 years I last saw her do it
2022-05-07 20:50:53
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leahjpj :
so amazing!
2022-05-07 20:10:46
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Frances Rudman :
My son also has Pierre Robin syndrome 💗
2022-05-13 19:20:39
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GokulRajRijal :
Good luck forever 🥰🥰
2022-05-09 16:43:18
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⛓️🖤🔥Arson🔥🖤⛓️ :
omg , stay strong girl❤
2022-06-28 22:09:03
2
christineb261 :
I've literally never met another person who had the clef pallet wow I don't feel alone with mine now 🥰
2022-05-08 09:18:07
2
Pikelet Butterwiggle :
Really fascinating, thank you so much for sharing. I rescue, raise and rehome a lot of cleft palate and similar birth anomaly puppies
2022-05-08 13:10:26
3
fairylandwirefairies :
thank you for sharing xxxx I thought you couldn't talk with a track in, but you are and honey you are a very pretty hero xx
2022-05-08 09:36:39
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