jamesfightingfibro
Region: GB
Wednesday 11 May 2022 20:01:42 GMT
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mrs_lucky777 :
The worst part is that when you finally get diagnosed, it doesn't change much as there is no cure or even a proper treatment.
2022-05-12 08:01:23
15
BreeLynn :
I got really lucky, and have an amazing family doctor and was diagnosed after 1 year. I was just diagnosed this Monday by a rheumatologist.
2022-05-12 03:46:39
2
Pinky Shear :
so I did a fibro study with a Dr in the u s who study nervous system issues. A FMRI (functioning MRI) was able to identify Fibro in the test subjects.
2023-01-13 21:22:40
0
Laura-Lee 🩷 :
My inflammation markers are always up on bloods. I’ve seen 3 different Rheumatologist and they all say I’ve got fibro. Surely I should be offered a
2022-05-16 11:32:50
1
lynnie :
16yrs fighting 10years diagnosis... still no help or support
2022-05-11 20:19:11
1
trixieboo2021 :
Yep I got fobbed off by so many drs starting in 1997 thengot a new GP in 2011 & within 7 months saw a rhemotologist & was diagnosed with fibro /CFS
2022-05-11 20:27:17
1
kelly :) :
took me 10 years b4 i got diagnosed with it 🥺
2022-05-11 20:13:02
1
pamlawton478 :
I was diagnosed with fibro in 1993. After a MRI of the brain and a spinal tap. I have spots on the brain and high levels of substance P.
2022-08-08 17:07:04
1
Charmedwitch :
it took just over 15 years to get my diagnosis, I'm now in a wheelchair most of the time because my legs and back finally gave up.
2022-05-18 19:09:31
1
Gemma Taylor876 :
I have just had all scans from rheumatology
2022-05-26 10:36:11
0
Collette :
True words 🥰
2022-05-23 00:58:48
0
Stegabite :
the longest road I have ever walked and what it does to you is beyond anything it becomes part of you pain is your worst friend
2022-05-29 02:01:10
0
Virpi :
I have also year 1999, now have been 5 days so bad
2023-01-31 14:25:56
0
Ann pellerine :
just found out that I have fibomyagia
2022-05-31 15:53:17
0
Daniela Woznicka :
it took me years and I had an appointment with the pain clinic and it was them that told me I had it xx
2022-05-11 20:31:05
0
Sarah Griffin :
my CPR results are always high
2022-05-29 00:05:33
0
Lou Eade Author :
Sending gentle hugs to fellow fibro warriors and helping to raise awareness 🦋🦋🦋
2022-09-10 19:46:28
0
Our family 🩷 :
It took me 16 years to be diagnosed
2022-05-12 21:56:00
0
Tracey :
It’s taken me 4 years to get my diagnosis 🙄
2022-05-14 04:10:43
0
Vanessa Desouza128 :
5years to diagnosis. 5 years on its mad
2022-05-13 05:14:55
0
Jason Buckingham506 :
why does nobody believe us?
2022-05-22 12:46:20
0
Donna K :
i have just discoveted i have it i was in a coma with covid and broke my nack i also have sarcoidosis and ive had 4 chilfren but this is sorer i have
2023-07-07 13:18:22
0
Smithyjojo :
I paid to go private in the end cause I was not getting anywhere with docs I got diagnosed in that one appointment
2022-05-17 21:07:51
0
Adrian Stohr :
I have been struggling for a couple of years where I was finally diagnosed with Fibromyalgia I have never experianced pain like it. My life of pain….
2022-05-11 22:26:29
0
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