@jamesfightingfibro: Reply to @hazelholden74 #fibromyalgia #fyp #fibromyalgiaawareness #persistantpain #chronicfatigue #pain #painmanagement #foryoupage #fibromyalgiaselfcare #symptoms #diagnosingfibromyalgia #diagnosis #fibromyalgiawarrior #nhs #hiddendisabilities #hiddendisability #chronicillness #chronicpain

jamesfightingfibro
jamesfightingfibro
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Region: GB
Monday 23 May 2022 12:28:41 GMT
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vodkajelly1
VODKAJELLYGIRL💃🎵 :
i was told its like grieving for the person you WERE & accepting who you are NOW. its so hard but im working on it. i miss the old me.🥰
2022-05-23 13:23:47
9
dawnie721x
user756371010376 :
I’ve had fibromyalgia for 9 yrs and just been told I’ve got ms too xxx thanks for showing people our daily struggles
2022-05-26 08:42:37
5
sarahjanemartins
Sarah Jane Martins :
Having to give up my physical job was the hardest and grieving for that life I had and raising 2 kids that missed that old me too
2022-05-31 05:23:10
3
justme.kelliemarie
Kelliemarie :
how did you stop thinking it was something serious there missing because I'm still thinking the missed something although diagnosed with fibro
2022-05-23 13:24:54
2
jen_louise2
Lucy_Abigail 🌍 :
It’s very hard to find a baseline! On good days you get excited and push yourself a little further
2022-05-25 03:28:35
2
louiserowlands1
Louise Rowlands :
Can you give more info on this, like the name of the course
2022-05-23 12:49:17
1
moyra1922
moyra1922 :
Good ideas- I’ve been sending myself’ nuts’ due to lack of my own acceptance
2022-06-20 09:31:37
0
gimlisdragon
🌺 Granny Anni 🌺 :
it took me 5 years to except and now i am at least in peace with myself ❤️and sometimes i fill it with sarcasm.
2022-05-23 12:48:43
0
painpaingoawayplease
Suzan :
Just want to say that you are a wonderful spokesperson and educator for us.
2022-06-11 05:05:34
0
grannyt.2
GrannyT :
hi, I was diagnosed by a GP years ago but can't get referred to see rheumatology. I am on loads of meds. and work full time . how do you cope if you w
2022-06-02 21:09:51
0
amandakemp8
Amanda Kemp :
I'm single parent I have no support its a real struggle and the doctors don't help at all
2022-05-29 18:37:15
0
sarahgriffin316
Sarah Griffin :
did you get diagnosed by a rheumatologist? x
2022-05-28 23:26:57
0
leannejmumof2
💕🫶leanne 🫶💕 :
I suffer like most but my partner doesn't think I'm in that much pain. won't help with school runs .so I have to just to do it all. then I'm lying 🥺
2022-05-26 10:10:14
0
t45h4_74
Tasha :
it took me a while to adjust...but I know that I have to out my self first and do what is good for me
2022-05-25 13:37:25
0
karenelizabethbrown
Karen Elizabeth Brow :
I have great help and understanding from my GP and I won’t go to anyone else
2022-05-24 23:02:21
0
trac66uk
Tracey :
I did pain management and was helpful, it was the boom bust that taught me how to manage better. Before if I had a good day I would knock myself out
2022-05-24 14:44:09
0
cambs_sewing_enthusiast
Charmaine :
It is a relief when you knows it’s not a death sentence, until everything you go docs for after is put down to fibro! How many life threatening
2022-05-24 02:17:16
0
susanferg1
user2851145133031 :
I believe acceptance leads to a better life style making the best of it on the days you can. I’m NOT letting this ruin my life.
2022-05-23 20:37:26
0
kaleem.ly
Kaleem :
When you find out about it?
2022-05-23 20:26:13
0
valdy4321
val :
I have had fibro 18 years. I have worked in the NHS all this time which has been very hard, the pain, I have found is better when the mind is occupied
2022-05-23 15:44:53
0
imhappypeople90_only
imhappypeople90 :
I have it 15 years. can't move from the bed today ,I'm in severe pain .
2022-05-23 14:58:42
0
everyblessladyannbless
everbless ladyann :
i just found out I have this illness no idea how to deal with it
2022-05-23 13:35:18
0
lauralilyx
Laura Lily ♡ :
Are you on meds for it?
2022-05-23 13:06:19
0
alexandratough937
Alexandra Tough :
u always help me xxxx
2022-05-23 13:04:26
0
traceylawson4
Tracey :
am 5 years diagnosed now .there is just no help doctors just throw painkillers at you 😳
2022-05-23 12:58:38
0
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