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@medicalmumma: The entire system needs to be dismantled and started all over again. #fyp #storytime #disability
Medical Mumma
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Region: AU
Tuesday 31 May 2022 09:19:07 GMT
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Comments
Taygan Underwood :
honestly get hold of 4bc radio with ray Hadley. hes had a few mums on with issues with ndis. im so sorry ur going thru this
2022-05-31 10:04:40
3
Chantelle Torpy :
Have you heard of the carer adjustment payment it may be worth looking into as ndis are known for being like this unfortunately. Good luck!
2022-05-31 10:10:05
2
Pam Higgins :
If all that evidence from you and Owlett stating it’s not a medical device, then the letter from the Professor saying it’s the ONLY device suitable.
2022-05-31 19:35:38
2
Brynhildur Ýr Ottósd :
😳 Just a small defnece for the owlet this is not the red alarm but still it is in no way enough for a child with Dravet
2022-05-31 19:30:19
2
Vicki Tootell :
No words.. this is just absolutely appalling. I suggest that you send all of this directly to Bill Shorten who is now the Minister for the NDIS.
2022-05-31 13:22:21
2
charitysmagicmenmoments :
NDIS is a discrace. we got out our appeal declined today.
2022-05-31 10:47:02
2
Emma Dilemma :
Brooke you need to email Bill Shorten and Anthony Albo...if Labor is promising to fix the system they need to prove it.
2022-05-31 10:36:55
2
Jo :
Doesn’t surprise me at all sadly just a number no words makes me furious
2022-05-31 10:20:16
2
whatisthis :
NDIS are actually rediculous. son needs 1 on 1 swim lessons due to ASD. instead if funding the difference for us they told me it-
2022-05-31 10:17:36
2
Sadie Beans the golden :
Go mama bear. 🥰
2022-05-31 10:55:03
1
Alicia_countrygirl :
so like the ndis.. my client going through similar for a machine to keep him alive, took 18mth to get approved still havent recived the pump tho
2022-05-31 09:40:59
1
Jaisleen :
Could you not buy it yourself, and then get a reimbursement? Seems easier to fight once your daughter has the equipment she needs.Not being rude BTW
2022-05-31 10:13:02
1
carlz6492 :
@Brooke Wrigley oh my life what a horrific journey, but I’m sorry, I laughed so hard at the alarm part 😂😂😂😂 your face man😂😂😂😂😂 fkn classic 😂
2022-05-31 10:07:47
1
katie :
jeez this is absolutely shameful.
2022-05-31 10:05:24
1
Laurenparkes_31 :
I am honestly about to buy the damn thing for her! I’m a support worker through a NDIS funded company and it’s really making me second guess that
2022-05-31 10:21:28
1
goodsoup :
I'm an SC and just watched all your videos. Did anyone tell you to get an OT to do a full functional assessment and an AT application for the device?
2022-05-31 10:28:50
1
jordzschneider :
The system is an absolute joke, I cannot believe the battle they have caused you over life saving equipment. My daughter was never aloud and denied
2022-05-31 10:32:02
1
Flimelja :
even the planners know it needs to be dismantled. They hate the system. plans often need to be passed between 5 different delegates for approval.
2022-05-31 09:53:42
1
Amie De :
See my comment on your last video hun, it’s disgusting what’s happening
2022-05-31 10:40:14
1
Hollie K :
What can we do? I’m in New Zealand and can’t afford a lot, but I’m willing to donate some money to help you get this yourself. Hugs mama
2022-05-31 09:52:53
1
Chloe💜🦋NOTTODAYDRAVET💜🦋 :
NDIS is an absolute joke! I am dreading when I need hospital grade oximeters for the boys 😳 keep fighting beautiful 💜
2022-05-31 10:48:15
1
Zoe McG. :
YOU ARE INCREDIBLE! keep strong mumma, you got this
2022-05-31 09:43:32
1
Olivia 🌾 :
Reach out to your federal politician
2022-05-31 11:28:07
1
Alecia :
Meanwhile I know someone who got a recliner but gave it to her DOG so they bought her another one!
2022-05-31 09:37:59
1
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