@medicalmumma: #excited #update #fyp

Medical Mumma
Medical Mumma
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Region: AU
Tuesday 07 June 2022 11:11:16 GMT
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kaia.the.therapy.dog
KaiaTheTherapyDog :
Is there any way we can help your govt see that they need to get on board with this new medicine? I live in NZ so not really sure how I can help
2022-06-07 11:54:53
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chloesan86
Chloe💜🦋NOTTODAYDRAVET💜🦋 :
That’s absolutely awesome!! 💜
2022-06-07 12:31:53
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flamingo1194
Sarahhhhh :
try ferro liquid if you can. its flavoured
2022-06-07 14:53:55
1
mayeriksson
mayeriksson :
Sorry, but last time Labor was in, they hardly put anything on PBS. It’s one of their hidden faults. I had to pay for my chemo because of them.
2022-06-07 11:26:05
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thepaintedzebra
Rachael Ralston :
I’m happy this was a great appointment! I am glad you have some hope
2022-06-07 11:36:45
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darla_lastchild98115
Darla :
This is all so exciting! Happy for you all!
2022-06-07 11:18:21
1
juliebright517
juliebright517 :
You are doing an amazing job 🥰
2022-06-07 11:57:02
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firebreather77
FireBreather :
Your hands look red and sore. Do you have psoriasis? If you do, I find Hemp Cream from the Body Shop really helps the psoriasis on my hands
2022-06-07 12:10:59
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katherineblenman
kat :
can you mix the iron in orange juice?
2022-06-07 11:16:45
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gracieea2
gracieea2 :
That shirt tho 😍😍😍
2022-06-07 14:13:49
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hayleylw83
mystical_wolf83 :
amazing 🥰
2022-06-08 01:08:17
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kaylamowbray5
Kayla Mowbray :
is a gtube an option for medications? it would help SO much with making sure she gets the right doses and no spitting. 🤞
2022-06-07 16:31:41
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princesscrazyboo
💚💜Boo💜💚 :
Be careful with that hun my little one was on that and it made her seizures worse
2022-06-07 16:52:06
1
hipity27
hipity27 :
It’s fenfluramine. It’s super expensive but may be helpful! Is she swapping from Clobazam to clonazepam to help with side effects?
2022-06-07 18:49:39
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juliepiecanada
Julie Pielechaty :
So awesome about the new med for dravet! I’ll google it this eve. For Clobazam we did reg (morn) blood work to see if it upped with CBD
2022-06-07 21:45:50
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zayah_ward
Zayah :
Iron infusions are amazing my son was the same the iron meds my son hated them they gave him infusion and amazing after wards
2022-06-08 00:13:25
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espeachey
Emily :
Spirulina in smoothies to help with her iron too
2022-06-08 00:32:58
1
vickitootell
Vicki Tootell :
Got to love appointments when you get great outcomes. 🥰🥰🥰
2022-06-08 00:54:33
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samanthamgordon
Samantha :
Did you tell them about the monitor?
2022-06-07 11:22:09
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xjoromx
Jo_Jo_R :
Cbd increases the effects of clobozam. We were on epidiolex and it’s a known side effect. Good luck with med changes- they’re so hard
2022-06-08 14:16:26
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