Dani Donovan
Region: US
Tuesday 07 June 2022 21:35:57 GMT
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divergentmisfit :
My EDS body looks young outside, but on the inside it feels like I’m an 85 yr old woman who sounds like she’s imitating a glow stick but not glowing.
2022-06-07 22:52:55
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Chels 🇨🇦🏳️🌈 :
I am convinced I have EDS or some other hypermobility issue but no docs will take me seriously 😞
2022-06-07 21:54:14
29
A person on Earth :
This is a good first step. Keep talking. We are here! Sending hugs.
2022-06-07 21:45:27
67
Laura :
It took me two decades to admit my epilepsy was disabling. It took literally only not being able to work anymore at all to admit it.
2022-06-08 13:53:36
3
Garn og glede 🇳🇴🧶 :
I'm sure you know of Martina (Eat your kimchi / King Kogi), but if not, she has EDS too, and hae create a community around living with chronic pain.❤️
2022-06-07 21:51:07
6
Rachel Woodman :
I also have EDS and ADHD. My body and brain make life painful, weird, and beautiful all at the same time.
2022-06-07 22:25:17
3
Carrie :
Eds and pots are so invisible and yet can be so debilitating
2022-06-08 00:37:47
42
mean.mean.mindy.jean🇨🇦 :
The ‘I’m finally sharing the hard thing only to get interrupted, I but need to finish it now or I never will but now i have no privacy’ feeling is 😫
2022-06-07 22:02:07
40
pirox :
your not alone dani, eds is something that affects more people then what science thinks.. 🥺
2022-06-07 21:42:06
12
(Ohboyitstara) :
Oof. Yep. I have it too. Didn't learn til after years of hard retail and labor like you. It's way more common than we think. ❤️
2022-06-07 21:46:53
11
Nomadsrus :
I only realized doctors don’t know everything when I had my son. Thank you for speaking up.
2022-06-08 06:21:21
7
Carly Thuey :
My neighbor has it. Some days are great, some days she stays in bed. She has 4 kids so its very hard. Building a good support system is so important ❤
2022-06-07 21:51:19
5
kzed_mcr :
“Take some ibuprofen” led to me likely getting nsaid-induced microscopic colitis. I’m sorry this is such a shared experience.
2022-06-07 23:36:52
4
Sucilla :
imagine being told it's all in your head for dang near 20 years. I get it. pain is my daily friend
2022-06-08 08:59:03
4
Alexandra Huffman969 :
The second you said physical disability I was “omg does she have eds too”
2022-06-07 23:25:10
4
elainej12 :
You've helped me so much the last 2 yrs as I got diagnosed with ADHD 💗 Coincidentally, I start the evaluation process for EDS in 2 weeks
2022-06-07 22:16:07
4
Marcie :
Oh Dani!! Hugs hugs hugs!! Thank you for sharing. More hugs! 👊💪
2022-06-08 05:47:58
4
maybe em :
@Dani Donovan I also have EDS and ADHD. You are not alone.
2022-06-08 05:35:11
3
dscherne :
I wish our body had a visual number displayed for us and others to compare. what most think is a 10 is a good day 4 to me.
2022-06-08 06:05:29
3
Gen Giggles (she/her) :
I have the same problem. I really should get checked out.
2022-06-08 11:58:05
3
Cloudy :
I also have EDS and if my ADHD or ASD isn't causing me issues, it's that. I didn't get diagnosed until I was 31 after years of struggling. it sucks.
2022-06-08 12:46:20
3
Lady-Nerol CA 💙🌴 :
Keep talking about it little by little 🥰 I’m listening 🥰🥰
2022-06-07 21:46:01
3
Gerda Rainbow| Autie zebra :
there's a correlation between autism/ADHD and EDS. I live in a country there nobody gives a ##it about women health. I hope I will find help I need
2022-06-08 13:51:39
3
Rapunzl347 :
A lifetime of gaslighting makes you feel embarrassed to admit it. Finding a good doctor and a supporting community makes a huge difference.
2022-06-30 05:15:43
2
everydayjoyandme :
❤️❤️❤️to you
2022-06-08 18:09:15
2
Meg :
Thank you for talking about this ♥️There’s not enough people talking about the struggle we go through with EDS
2022-06-08 16:05:00
2
Jomamaliza 🧿 :
This is so me. How do you talk with a physician? Been to PT and chiro and nobody has mentioned EDS
2022-06-08 15:04:24
2
FruitCakeMom :
Ugh. Is this hyper mobility related?
2022-06-08 01:50:59
2
Robert Pryor :
invisible illnesses are rough. I just got diagnosed with it in 2021 at 39. it made so many things fit.
2022-06-08 00:58:10
2
DrShushYoFace :
It’s ok to sit in the car. He understands and WE understand. 🥰🥰🥰🥰🥰 #ItsAllGood
2022-06-08 03:41:52
2
Aimee :
Ok I love tik tok, but first adhd, then autism, now add Eds to the list.. I have the same exact story from a doctor
2022-06-08 01:04:58
2
AJ/Avi/SoloButNotHan ✡️🏳️⚧️ :
I desperately want to do research on the overlap between adhd and EDS because I 99% have it too and so many people on my FYP full of adhd do too
2022-06-26 13:14:48
2
Klara Deuss :
sending a huge hug!!!
2022-06-08 04:43:53
2
Jennifer Shelton :
My daughter has EDS too
2022-06-07 23:02:18
2
Stacey :
I suspect eds is rare in the same way autism is rare. Especially since they’re SO comorbid
2022-06-07 22:10:53
2
Smartypants885 :
Same here, friend. ADHD and EDS, and because it’s all invisible it’s really hard to validate myself or explain my struggles to others.
2022-06-30 14:43:55
2
Maurice :
Oh boy. I feel this!! Thank you for sharing!!
2022-06-07 21:58:03
2
Ur Mom :
My 15 year old was diagnosed last year. They don’t have anything helpful to offer. We’ve gotten more useful info from other EDS folks here and on FB.
2022-06-08 06:31:04
2
itsNomes 🇨🇦 :
I felt this so deeply, between ADHD and fibromyalgia it’s overwhelming to hear “just take some ibuprofen”, you’re not alone!! ❤️
2022-06-30 00:16:49
1
Penny and Ophelia :
I have EDS and I know how hard the journey is… and it’s definitely a disability. Thinking of you! 🥰
2022-06-20 12:46:02
1
hauriello :
My daughter has patellofemoral syndrome too. Her pain started at like 4 - not just growing pains. She was told ibruprofen too. Surgery doesn’t do
2022-06-08 05:43:35
1
Jenney Armstrong :
yes I have the same thing I don't know why we are dismissed like this
2022-06-08 11:52:09
1
Shiny :
I have bilateral patellafemoral syndrome, even after surgery still have locking knees and floating kneecaps, daily pain🥺
2022-06-08 03:48:11
1
Cabingrl :
Spoonies unite 🥰🥺
2022-06-08 02:25:58
1
navigating_niko :
Long time fan and fellow EDSer new to Tik Tok. Thanks for sharing this part of your story!
2022-07-05 20:13:07
1
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