jamesfightingfibro
Region: GB
Wednesday 08 June 2022 20:29:48 GMT
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dowsabella :
NICE has recommended stopping prescribing for chronic primary pain, ie pain with no underlying cause. So if you have endo, fibro etc it's not you.
2022-06-09 00:19:55
65
mazo :
I have strong medication and I still feel pain every day😳
2022-06-08 20:46:32
128
Fibromyalgia :
This is a serious matter, one the Fibromyalgia community need to stand together and fight together, we can do this
2022-06-09 12:47:01
86
Wheelie Chronic ♿️🏳️🌈 :
Thank you mate. It’s so important that people speak up. They snuck it in during covid because no one was looking. 🥰
2022-06-08 20:45:28
108
Marie Bettinelli :
This is for pain with no underlying cause. It is also a recommendation. If you have a chronic condition this doesn’t apply.
2022-06-09 16:57:33
5
Mrs Boody :
Is Low Dose Naltrexone available in UK? I have Fibro and since taking LDN, my pain is minimal.
2022-06-11 06:12:44
6
_justpresscreate :
I haven’t been able to find a medication to help any of my fibromyalgia symptoms yet and with this it looks like I won’t be anytime soon… 🥺
2022-06-09 01:12:56
7
Amrmom :
Signed x
2022-06-08 21:43:36
6
Jennifer Bolton :
Thanks for sharing …. Shared. Love & blessings x
2022-06-09 08:57:39
7
user2435770444065 :
I have multiple sclerosis so this is relevant to me thank you
2022-06-20 10:52:32
6
kelly james :
I'm so glad this has popped up on my fyp as I had no idea about this. Thank you for getting this information out
2022-06-08 21:14:34
5
Jack :
my mum suffers from this reduction as well. it has been a Hellish decision and I really hope we can all work together to get this resolved!
2022-06-10 09:49:10
6
Ellen Claire :
Done it X
2022-06-09 05:49:32
6
julie6785 :
Signed
2022-06-10 01:07:16
5
Ann Barnes :
I was devastated to hear this from the pain clinic . I have a chronic pain condition which will only worsen with time. I will be 66 soon .
2022-06-09 17:19:42
7
Helen :
Signed I’ve been on the waiting list for pain clinic for nearly a year no wonder I haven’t had an appointment yet
2022-06-08 22:17:09
5
thomasdcross1 :
should probably make it clear these are guidelines already in place since April 2021 so this isnt anything new. They are also only guidlines.
2022-06-08 23:42:07
6
victoriamiller999 :
This is probably why my pain management clinic suggested CBT trying to tell me it the pain was all in my head yet I haven’t heard back from them
2022-06-08 22:24:41
5
jamesfightingfibro :
Link in my bio for the petition
2022-06-08 20:51:25
92
Samantha Bielby :
This is outrageous, I've signed the petition. Thank you for making us aware
2022-06-08 20:52:47
6
Soph :
This is unbelievable. I wouldn't be here today if it wasn't for meds. My meds most days don't ease my pain completely, but allow me to still be here.
2022-06-08 20:53:00
26
Callum Wyatt :
Signed! As I live with chronic pain with constant spinal pain and sometimes massive migraine attacks over the counter pills DO NOT TOUCH MY PAIN!!
2022-06-08 22:22:24
5
lisalou957 :
I don’t know if this helps anyone, but when I gave up sugar dairy and flour based foods, pains eased quite a bit
2022-06-09 07:49:54
18
🌺ponytail🌺 :
Sorry I would sign. But I’m in the United States. Or I would. Good luck my friend
2022-06-08 21:57:12
5
juliaball0706 :
Babe - they did this to my daughter , she died a month after getting the letter from the pain management clinic that she would have to put up with
2022-06-10 18:52:15
7
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