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@medicalmumma: Replying to @life_is_what_you_make_it Reply to @life_is_what_you_make_it
Medical Mumma
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Region: AU
Thursday 07 July 2022 03:23:47 GMT
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Comments
Chronically-Michelle1995🇨🇦 :
Ppl don’t understand how hard it is for anyone with a sick child. Something that really upsets me as someone who’s been sick since birth now 27, is1/2
2022-07-07 04:25:59
4
Elysia Johnson :
We are still testing My daughter Eva to see if she has dravet syndrome as her epilepsy is very similar to dravet lots of regression and cluster seizur
2022-07-09 19:49:29
4
Jo :
You explained that better than a doctor great knowledge
2022-07-07 07:45:20
3
@punk0643 :
Know this syndrome. Magnet in chest works to stop seizures quick
2022-09-19 08:00:35
1
Gigi272021 :
My 17 month old grandson was diagnosed with Dravet Syndrome almost a year ago. Thank you for sharing!
2022-07-07 23:41:15
1
Vivien :
So do you know if she could still life until 90 with it
2022-07-08 01:19:36
1
Cherry_Apple :
Thank you for explaining it all so well 💜
2022-07-08 12:39:53
1
Laura Harris :
from the UK I currently look after a little girl a few hours a week at my nursery, both her and her family amaze me daily I am in awe. sending love xx
2022-07-09 20:08:10
1
Mumma bear :
Harriet is now 10 and has gone through puberty so her hormones now affect her seizures aswell. cerebral palsy level 4-5 depends on the day
2022-07-17 04:10:55
0
juliebright517 :
Thank you we need to support our babies to get specialists working on this horrible syndrome
2022-09-03 11:21:31
0
proudmumof5💜🐬👑 :
thank you so much for answering. I am a medical mumma too and always like hearing others situations. 🥰 praying for Everly and your family ❤💜
2022-09-04 00:49:53
0
mummatomy5crazies :
You are bloody incredible Mumma!!!
2022-09-04 10:05:22
0
Cara Olivas663Cara olivas :
wow you are amazing momma's
2022-09-14 03:42:57
0
Aimz 💜🦋NOTTODAYDRAVET🦋💜 :
Is Dravet Syndrome something that could potentially be detected in the newborn screening bloods? 💜💜
2022-07-07 14:49:19
0
JennaR325 :
sending you strength and love . your an amazing mumma and she needs you and knows only your love 🥰
2022-09-22 00:37:14
0
kellie :
I’m trying to send you a msg x
2022-09-28 09:04:56
0
Catherine Fitzpatrick :
Your are amazing no one understands what it’s like to have a sick child. My son had epilepsy but not to this extent xx
2022-09-28 14:05:01
0
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