jamesfightingfibro
Region: GB
Tuesday 12 July 2022 19:04:02 GMT
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kelz109 :
Ma liver markings came back as tho a was a drinker lol n a don’t drink much x
2022-07-12 20:51:15
1
Khadija :
I have got diagnosed with fibromyalgia today and I also had a positive ANA and high ESR and other things and been told that I might have lupus too.
2024-03-18 14:44:30
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💫🧚Feisty wee fairy🧚💫 :
Even with positive test they still don’t do much always .. as it’s such a weird test how viewed by some docs and lost confidence too x
2022-07-12 19:15:33
1
Beckyashman955 :
I know exactly what you mean. I am asking for more tests as not convinced I’ve just got fibro. I sound like a hypochondriac but I don’t trust Drs now
2022-07-12 20:04:45
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Kreative Kate :
My mums ANA test was negative… she has lupus 🤦♀️
2022-08-07 22:53:02
1
Positive Eliza... :
Yes definitely. My ana and ena test always come back positive, but was prescribed with fibro. They didn't think I had lupus cause I never
2022-07-14 11:45:56
1
twistedqueenxo :
i have fibro and lupus, every 3 months my ana is tested and it flucuates between very positive and negative it depends on how "active" my lupus is at
2022-07-12 22:41:37
2
user2050415184690 :
I've always thought I might have something else it's scary because a lot of us don't think the doctors know how to treat us or even understand it
2022-07-12 19:42:25
2
Christine Natoli :
I have had 2 false positive for lupus tests , it’s frustrating
2022-08-11 01:54:21
1
Crazy Gonk Lady 🇬🇧 :
My sister died from lupus at the age of 28 🥺. I got tested as have symptoms but the dr said it can’t be lupus
2022-07-12 19:34:44
0
katherinealessi95 :
Wow me too😳
2022-07-12 19:58:50
1
Ella-Marie :
It’s the same for Rhumatoid arthritis you have to be in a flare for them to pick it up 🥺
2022-07-15 16:35:04
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Vanessa :
I get the rash too, but all my tests are negative!
2022-07-17 01:17:38
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Momma Wolf :
in order for it to come back positive you need to be in a lupus flare & have inflammation. RA & Lupus was found in my liver 1st.
2022-09-27 03:19:32
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Leylab4 :
Nope mine was positive then negative!
2022-08-08 23:03:31
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Kellywilcock :
I feel this , this is happening to me , I’m bored of doctors with blood tests they don’t tell everything they need do more 🥰
2022-07-20 06:56:50
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Ninnyrules :
I was diagnosed with fibromyalgia 17 years ago, they checked all the food I ate and I don’t eat the wrong things 🥰
2022-07-16 15:51:15
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Christine Natoli :
People that have red hair genome and if Irish descent are proven to be rapid metabolizer s which make pain management difficult
2022-08-11 01:57:11
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Wendy :
also said my fibro was secondary i also have sjogrens now x
2022-07-12 22:19:36
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Kerri Taylor-Challen :
Mine was positive, but I have various autoimmune with fibro
2022-07-14 10:33:09
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Ninnyrules :
Ihave a lot of things wrong with me and I was extremely physically fit 🥰
2022-07-16 15:52:05
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Kelly :
wow there saying about lupus too now x
2022-07-13 13:51:00
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mazo :
what's an ana test? I can't remember getting tested for. that
2022-07-12 23:48:15
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Fennite :
Is it worth asking on lupus support uk fb group for a recommendation for the best lupus consultant and going to see them privately for a 2nd opinion?
2022-07-12 19:36:02
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