jamesfightingfibro
Region: GB
Tuesday 09 August 2022 06:59:51 GMT
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Yea I’m always in pain feels like I’ve been besten black and blue xx
2022-08-09 07:18:28
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The mornings are the worst! Also the speed at which I do anything now is drastically reduced. Even if I try to go faster - I end up breathless soquick
2022-08-09 07:05:50
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I have Multiple Sclerosis and have a lot of the symptoms you speak about. I always explain it as if I am walking through quick sand with the worst flu
2022-08-09 15:30:54
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I describe it as it feels like my limbs are too heavy for my body
2022-08-09 09:26:30
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This was me this morning!! Today will be a long day
2022-08-09 07:13:07
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It’s nerve pain for me no muscle pain. Fibro for 30 years.
2022-08-09 17:48:53
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I also have excruciating inner thigh muscle spasms at night now. Talking about PAIN!!!
2022-08-09 13:47:48
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That is a great description thank you!!
2022-08-09 08:49:19
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The worst is the drs that pat you on the head and smirk. The pain is real the weakness is real
2022-08-09 08:43:13
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I never knew what it is as I was diagnosed over 20 years ago and no one have me the heads up. Thank you for the description .. hope you feel better ..
2022-08-09 08:04:56
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Fibromyalgia is the worst thing I wish I didn't have it I can never sleep even tho I want to sleep
2022-08-11 01:58:25
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I'm in a flare today. It feels like poison is running through my body..
2022-08-09 22:18:33
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For me My skin feels electrified…. And when touched feels like lighting struck me. Then other days I feel so heavy and stiff.
2022-08-09 23:12:17
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That’s the way I describe it wearing a cement suit climbing a mountain after staying awake for 24 hours thank you for your brave videos
2022-08-10 00:26:29
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your videos are very helpful to me. you explain fibro very well
2022-08-10 02:01:37
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I don't have instagram
2022-08-10 02:01:49
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you have no idea how much your response means to me! I've suffered alone for years.
2022-08-10 07:46:14
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How did you get diagnosed?
2022-08-10 10:25:28
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Morning are the absolute worse I have to agree!
2022-08-10 13:23:15
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Movement is key
2022-08-10 19:33:10
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Yes, someone has finally described it. feel like my feet are in cement at times. Hard to explain to people.
2022-08-10 21:27:44
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Yes….I have that….
2022-08-10 23:38:16
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My Instagram is itsjustmejamesn for anyone who needs to reach out
2022-08-09 18:30:19
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It's so hard to get out of bed every morning, I dread it. My head feels like cement so heavy.😔
2022-08-11 04:57:59
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yes I totally understand this .its awful I'm sick of hearing myself complian so my family must get sick of me moaning
2022-08-11 09:15:06
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sad ,but I so relate to this waking up feeling so stiff ,Imy hips and back bad. I do your stretching exercises sometimes and helps
2022-08-12 02:36:23
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my legs felt like lend too
2022-08-12 22:01:23
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I have had chronic fibromyalgia for 40 years. I only took cyclobenzaprine and diclofenac and 4 years ago I began using edible cannibas.
2022-08-12 23:46:40
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I developed fibromyalgia after having part of my lung removed. this disease is caused by either a virus or body trauma.
2022-08-12 23:48:12
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I rate you for battling fibro mostly med free.
2022-08-14 09:23:43
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Believe it or not...up to y'all. I got a weighted blanket to sleep with, it honestly feels like it softly massages your body as you lay under.
2022-08-21 22:31:09
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Yes yes totally. Everything feels like turning into cement x
2022-08-22 14:47:46
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omg the pain 😫 today
2022-08-28 21:52:27
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yes I fill like that
2022-09-07 23:25:55
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I can totally relate!
2022-08-09 13:20:54
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This is me this morning, the pain is terrible tried to walk to the bathroom and its horrendous x
2022-08-09 08:32:24
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Was diagnosed over 20 years ago and had no advice. I battled on but now I’m older it’s come back with a vengeance
2022-08-09 08:26:09
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Morning are hard 😩 could I ask is your butterfly tattoo on your neck is it for fibro? X
2022-08-09 08:52:12
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Yes it certainly does
2022-08-09 08:12:17
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can u talk about what treatment/pain managment u use if u dont mind?
2022-08-09 09:30:37
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I have fibo recent diagnosis, however I keep hearing flare up ? I feel sore stiff everyday for 2 years now, will this ever ease up ?
2022-08-09 09:36:05
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I totally agree I always say to people it feels like I'm wearing a metal suit every part of your body feels heavy and hurts to move
2022-08-09 10:38:35
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I’m stiff as hell in the morning, I could walk 5mins to shop n be in sever pain in my legs when I get home 🥺
2022-08-09 11:09:07
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This is how I’m feeling right now. Almost 30 years with this. 😢
2022-08-09 11:58:38
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yes so true🥺
2022-08-09 12:26:47
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This is me every day. It feels like I’m wading in deep thick mud or treacle trying to walk a distance now as well.
2022-08-09 12:33:03
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I feel like the tin man! I need oiled!
2022-08-09 21:08:12
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I feel all of this, 3 years ago I dropped 40 lbs of pressure on my head , sustained a concussion and within 3 months I was incapacitated.
2022-08-09 14:05:06
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this is how I describe it to my family, also the feeling of my whole body vibrating I've had this since I was 14, 47 now and now have neuropathy
2022-08-09 14:05:22
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I was diagnosed finally this year with fibromyalgia and poly myalgia;,, I am in pain every minute of every day ! It has affected my whole body 😳
2022-08-09 14:06:40
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