itsmichaelaann
Region: US
Monday 26 September 2022 02:07:41 GMT
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Caligurl357 :
May I ask what type of Doctor is treating you? I recently found out I have antibodies for this disorder and it makes sense with my symptoms. Thanks
2025-02-17 07:07:56
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Elizabeth! :
Does this cause fatigue and low stamina ?
2024-08-29 23:46:08
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snoopygoodvibes :
hello I have been recently diagnosed and been for 4 ivig treatments I had such a bad headache and fever after the first 2. I've been tolfmd to hydrate and take Tylenol and benadryl before hand
2024-10-12 04:21:14
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Melissa :
How can they tell the difference between MMN AND ALS?
2024-07-07 04:26:03
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FANG :
Hey! Thank you so much for posting your journey. The doctors think I might have MMN. Did you ever have muscle twitching?
2022-09-27 14:48:37
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Sami_🌹 :
I just got diagnosed with this today
2024-03-15 19:26:36
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LizandJojo :
Did you have any pins and needles, numbness in your extremities?
2024-11-04 05:18:29
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LightSkin :
Is this the same as motor neuropathy
2022-09-27 15:34:33
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twirldesigns :
we're your emgs normal or did they show the neuropathy? I had one done fairly early in my diagnosis path and it was completely normal, but I have more
2022-11-12 18:15:36
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Lonny Matzdorff :
I’m with you since 1999. Stay strong. ❤️got to love the EMGs right. Ugh.
2022-11-23 05:51:21
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A and D :
Hi I am Dea from Jakarta. I get diagnosed MMN but my doctor asked me Ganglioside test. Meanwhile I have to go Kuala Lumpur for taking test because not available in Indonesia
2022-11-22 00:44:38
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blondieb81 :
I have this too, mmn with conduction block
2025-03-03 20:54:31
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Lajos Csatordai :
Hy what are the exact symptoms? Are there fasciculations into the muscles? Eng/emg resalults? Speak is normal ?
2025-02-28 21:39:57
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Katie Sue :
cheering you on forever 🫶
2022-09-27 13:37:47
1
Rayan Almaghrabi :
thanks for sharing and posting .. I really hate IVIG on a monthly basis
2022-10-27 17:03:58
1
Azmira Aziz :
me too..treatment at hospital for ivig.🥺.but now I stop that's all treatment b'coz i'm tired..Alhmdulillah..
2024-12-27 06:02:24
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09991211 :
My husband was just diagnosed lastweek and we’re worried that the insurance won’t cover the cost of the ivig🥺
2024-05-19 14:18:09
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Diamond Tattoo Freudenstadt :
Mmn habe ich auch .. 2015 diagnostiziert
2024-09-04 21:42:43
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lorenavio8 :
😁
2025-02-20 03:18:33
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Chee Khien Sam :
😁
2025-03-04 01:12:29
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evva :
🇺🇦🇺🇦🇺🇦
2025-01-16 07:21:54
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Sarah Andrews :
Do you notice muscle twitching??
2024-07-24 22:48:02
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j :
And fasciculations in tongue?
2024-09-04 17:47:40
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Peggy Rogers669 :
I was diagnosed in 2015 with multi focal MN. Started out in the infusions every 6 weeks & now I do my own weekly sub cu iv’s. And I walk…thankful! ❤️
2023-01-05 05:37:02
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