@itsmichaelaann: Follow along my journey with MMN. 🤍 MMN is a rare disease that causes muscle weakness. I want to bring awareness to this disease and offer some insight into my treatment and day to day of living with MMN. #mmn #multifocalmotorneuropathy #raredisease #neurology #fyp #MickeyFriendsStayTrue

itsmichaelaann
itsmichaelaann
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Region: US
Monday 26 September 2022 02:07:41 GMT
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caligurl357
Caligurl357 :
May I ask what type of Doctor is treating you? I recently found out I have antibodies for this disorder and it makes sense with my symptoms. Thanks
2025-02-17 07:07:56
0
melissakurtz7
Melissa :
How can they tell the difference between MMN AND ALS?
2024-07-07 04:26:03
2
snoopygoodvibes
snoopygoodvibes :
hello I have been recently diagnosed and been for 4 ivig treatments I had such a bad headache and fever after the first 2. I've been tolfmd to hydrate and take Tylenol and benadryl before hand
2024-10-12 04:21:14
0
sunday.morning
Elizabeth! :
Does this cause fatigue and low stamina ?
2024-08-29 23:46:08
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lizandjolene
LizandJojo :
Did you have any pins and needles, numbness in your extremities?
2024-11-04 05:18:29
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jfang8
FANG :
Hey! Thank you so much for posting your journey. The doctors think I might have MMN. Did you ever have muscle twitching?
2022-09-27 14:48:37
1
sami_sulsa
Sami_🌹 :
I just got diagnosed with this today
2024-03-15 19:26:36
0
lightskinsimone
LightSkin :
Is this the same as motor neuropathy
2022-09-27 15:34:33
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twirldesigns
twirldesigns :
we're your emgs normal or did they show the neuropathy? I had one done fairly early in my diagnosis path and it was completely normal, but I have more
2022-11-12 18:15:36
0
lonboy1
Lonny Matzdorff :
I’m with you since 1999. Stay strong. ❤️got to love the EMGs right. Ugh.
2022-11-23 05:51:21
0
lovebirdindo
A and D :
Hi I am Dea from Jakarta. I get diagnosed MMN but my doctor asked me Ganglioside test. Meanwhile I have to go Kuala Lumpur for taking test because not available in Indonesia
2022-11-22 00:44:38
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lajoscsatordai
Lajos Csatordai :
Hy what are the exact symptoms? Are there fasciculations into the muscles? Eng/emg resalults? Speak is normal ?
2025-02-28 21:39:57
0
blondieb81
blondieb81 :
I have this too, mmn with conduction block
2025-03-03 20:54:31
0
rayanalmaghrabi
Rayan Almaghrabi :
thanks for sharing and posting .. I really hate IVIG on a monthly basis
2022-10-27 17:03:58
1
heykatiesue
Katie Sue :
cheering you on forever 🫶
2022-09-27 13:37:47
1
azmiraaziz3
Azmira Aziz :
me too..treatment at hospital for ivig.🥺.but now I stop that's all treatment b'coz i'm tired..Alhmdulillah..
2024-12-27 06:02:24
0
lbej02
09991211 :
My husband was just diagnosed lastweek and we’re worried that the insurance won’t cover the cost of the ivig🥺
2024-05-19 14:18:09
0
diamond_tattoo_fds
Diamond Tattoo Freudenstadt :
Mmn habe ich auch .. 2015 diagnostiziert
2024-09-04 21:42:43
0
chee.khien.sam
Chee Khien Sam :
😁
2025-03-04 01:12:29
0
lorenavio8
lorenavio8 :
😁
2025-02-20 03:18:33
0
starshekov
evva :
🇺🇦🇺🇦🇺🇦
2025-01-16 07:21:54
0
sandrews_xo
Sarah Andrews :
Do you notice muscle twitching??
2024-07-24 22:48:02
0
jo42jo
j :
And fasciculations in tongue?
2024-09-04 17:47:40
0
peggyrogers17
Peggy Rogers669 :
I was diagnosed in 2015 with multi focal MN. Started out in the infusions every 6 weeks & now I do my own weekly sub cu iv’s. And I walk…thankful! ❤️
2023-01-05 05:37:02
1
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