@thepivot: We couldn't have said it better ourselves.  We're here to push the culture forward for generations to come Shout out to Wallo for the flowers. Salute OG!  Tune in for a million dollaz worth of game with Wallo 267#wallo267 #philadelphia #podcast #milliondollazworthofgame

The Pivot Podcast
The Pivot Podcast
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Wednesday 07 December 2022 20:30:08 GMT
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We need you. Right now. 🩷🔗 http://secure.childrenshospital.org/goto/RareLifeMom Kayla and Nora’s latest bone marrow results are concerning, and we now feel the urgency like never before. This isn’t just about managing a rare disease — it’s about saving their future. There is hope — real hope — through gene therapy. A groundbreaking project is underway, led by a world-renowned doctor who helped discover the cure for sickle cell. He’s ready to fight for our girls — the only thing stopping him is funding. We need $2 million to fully launch this life-saving therapy through the SDS Registry and Boston Children’s Hospital. Every single dollar gets us closer to a cure — not just for our girls, but for everyone with Shwachman-Diamond Syndrome. If you’ve already donated — THANK YOU. But we need more. 👉 Please share this link with everyone you know. (In Bio) 👉 Tell them why you care. Just sharing the link won’t let them know why it matters.  👉 Remind them that we can cure this — we just have to fund it. Let’s show Kayla and Nora that the world showed up for them! 💛🔗 http://secure.childrenshospital.org/goto/RareLifeMom Together, we can make history. #CureSDS #GeneTherapy #SDS #ShwachmanDiamondSyndrome #RareDiseaseAwareness #GeneTherapyHope #MedicalMom #AdvocateLikeAMother #BostonChildrensHospital #Rare #fundraiser #ThisIsUrgent #FundTheCure #BecauseOfThem #FightForRare #RareDiseaseCommunity #LifeSavingResearch #GeneticMedicine #RareDiseaseWarrior #SupportGeneTherapy #momshelpingmoms #MomOnAMission #HelpUsHeal #medicaladvocacy #raredisease
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