@stephstrand: My 3-year zipperversary from #chiarimalformation decompression #surgery 🤕💜 #chiariwarrior #chiarimalformationawareness #chiaristrong #chiarimalformationsurgery #suboccipital #suboccipitalcraniectomy #decompressionsurgery #scary #chronicpain #chroniccondition

Stephanie Strand
Stephanie Strand
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Region: US
Saturday 10 December 2022 05:28:55 GMT
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andrewjohnmacaule
andrewjohnmacaule :
We’re heading to st vincent hospital sydney today for my wife’s chiari surgery on Monday I’m very nervous for her
2023-03-02 17:25:56
5
shirleyluebbert
Shirley Luebbert :
I loved your sweater for chiari awareness worrier I want one where did u get it?
2023-04-22 20:42:59
7
lil_bit_of_me
Nae Nae :
Thank you for sharing your story! Newly diagnosed as of today. You give me hope. Thank you.
2022-12-21 06:55:55
56
christianrachelle
Christian Rachelle B :
Surgery is being discussed for me. I’m absolutely terrified. Especially of the post op pain.
2023-01-30 06:41:27
19
aleilani2002
Aleilani2002 :
I just got diagnosed.. thank you for posting ❤️
2024-09-13 19:48:18
9
mamalilybird
LilyBird Arias :
Thanks for the video, I am so nervous I get my surgery in 2 weeks
2024-01-18 00:20:17
14
angellelizabeth2699
angellelizabeth2699 :
it definitely didnt feel good!! almost 10 year anniversary for me💙
2023-01-05 20:28:36
9
teamshipman
Kari_Lynn :
My daughter had the skull decompression surgery this past July. Now finding all these ppl living w/ CM. We felt so alone & now see so many w/ it!
2023-01-26 14:27:46
7
ashryepes
Ashley :
I have had three decompressions. Thank you for spreading awareness.
2022-12-25 01:44:39
8
cary_bo_berry
🍓 :
I had decompression for Chiari 3 years ago as well. My brain is back to sagging and my symptoms are worse! I hope you're feeling so much better.
2024-01-21 05:59:03
6
tcourtn69
Taryn Courtney :
I have surgery in less than 3 weeks and am so scared and anxious. Do you have any advice or words of encouragement
2023-07-19 17:02:52
11
shannynetamayo
VESPHIRA🐍🌙🖤 :
diagnosed 3/12/24 2cm aka 20mm I'm nervous as I need to find someone good and a specialist near me I'm in fresno cali
2024-03-26 12:55:52
8
jen.jenevans
Jen Evans :
What would you say is the specific difference in pre surgery vs post surgery for your symptoms?
2023-03-08 16:01:44
7
sabaldugal
Sabal Dugal :
love ❤️I’m glad you’re better now!
2022-12-10 05:50:28
9
officialjacobedwards
Jacob Edwards™ :
I had the same surgery…. This year actually! Symptoms not getting any worse as of now.
2022-12-21 08:56:06
9
simons_a_y
Ashley :
We share the same story 💜
2023-01-07 13:18:46
5
thehoodoolady_
theHoodooLady_ :
I have chiari tooo I had surgery last year and I’m still having some issues but I don’t get headaches every day 😅😂
2022-12-23 16:15:27
4
nikkis714
nikkiseidel743 :
I’m a chiari warrior too!!! Almost at my 3 year zipperversary! Hugs to you, Warrior!
2023-04-27 02:34:42
5
julia44152
Julia O :
My son was just diagnosed today! Do you have physical limitations/restrictions now?
2023-04-11 01:43:24
5
alexia_lebel
Alexe :
I have chiari too! Had surgery one year, ago, worst pain in my life
2022-12-18 21:35:57
5
wanderlust_dannie
user2488827000675 :
Hi Stephanie, I've been suffering with Chiari my whole life and got diagnosed a few years ago. I'm so scared to get surgery. can you please tell us what surgeon you used?
2025-06-26 00:14:10
4
anthea_gavitt
Anthea Gavitt :
Thanks for sharing. I was diagnosed about a month ago with chiari malformation type 1 with cyst, going fir surgery in Oct, definitely scared.
2024-06-27 03:31:50
4
mark87b
Mark Braithwaite :
Nice zip. I got mine in 2020.
2023-02-10 12:02:29
1
honey_bunzzzzzzzz
honey_bunzzzzzzzz :
I’m having the same surgery in 3 weeks. Girl I’m scared out of my mind
2024-02-12 02:31:29
2
sincerelytylerc
Sincerelytylerc :
Can I ask how you’re doing in present day??
2024-07-13 19:06:35
2
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