Poppy&Kaylee
Region: US
Thursday 19 January 2023 21:30:13 GMT
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Twobabesandadog :
Is there anything we could do as a TikTok community to help you?
2023-01-19 22:13:21
36
user9377187810354 :
No question either- a fellow mom with a child who has a rare genetic disorder. Thank you for being so brave to share your story ❤️
2023-01-19 21:39:45
18
user4571571755493 :
But would your insurance cover testing for your kids now so they don’t have to pay for it in the future?
2024-11-23 06:14:18
0
La_cenq :
Q: I really admire your willingness to be so open about Poppy. What have you gained from taking this risk and sharing Poppy with the Tiktok community?
2023-01-20 15:13:08
3
Pachie :
My son had a mutated gene that cause leukodystrophy but my other 2 boys didn’t. My oldest was the one who got it
2023-01-19 23:16:31
3
Kim M :
I must have missed the video explaining her condition
2023-05-03 02:31:04
1
Titch_82 :
Honestly just watching her have a bottle and nap is heartwarming, she’s the sweetest little soul 😍
2023-01-19 21:50:42
93
Cindy :
No question, I just wanted to say you’re such a great mama 💕
2023-01-19 21:57:50
40
Sandra Greco 🇨🇦 :
I just want to tell you that Poppy is just the sweetest 🥰
2023-01-19 21:39:46
14
hampshires1 :
I also love your videos of Poppy. I realize your older children are still very young, but how much of Poppy's condition do you share with them? 💗💗
2023-01-19 21:44:12
11
Poppy&Kaylee :
If you have any questions, feel free to ask! ⬇️⬇️⬇️
2023-01-19 21:30:47
8
Dr. Roni :
Do you plan on partnering with any of the other parents with kids with TBCD? Maybe for fundraising purposes? Thinking of @miracleformax @alifeforleo
2023-01-19 23:12:05
6
Greenly :
No question - I’m a special Ed teacher- I love following your journey and love your faith and how you love that sweet girl!
2023-01-19 21:37:15
5
Kate Milner :
I don’t have a question but I’m watching this while also giving a bottle!
2023-01-19 21:40:28
3
Vone :
Sorry if you have already answered but will Poppy be getting the standard childhood vaccines?
2023-01-19 21:38:49
3
Jessica Sutherland :
We are awaiting a likely similar prognosis for our 7 month old. How do you move through the grief to make the most of your time together? 💕
2023-01-19 22:02:01
3
Elise 🍒 :
You did a vid ab your grief journey. I’m curious to know how you are doing in that regard? Sending ❤️❤️
2023-01-23 00:51:08
2
Tiffany.ThatSuperMama :
For my daughters gene mutation, each child got tested, we have three girls, with the three different outcomes! 1 carrier, 1 unaffected & 1 w/mutation!
2023-01-20 01:27:24
2
Jenny Ryan Zaves :
Is poppy a family name? I love her name ❤️
2023-01-20 01:50:46
2
pinkgma,janis :
You are an amazing mom. Poppy is adorable and is in good hands.Have you done a family tree to see if anyone in ur or husbands family were carriers 🥰
2023-01-19 23:18:40
2
NanceJoy5 :
You are such a neat lady. 💜
2023-02-23 02:40:15
2
K :
Sweet Poppy 🥰
2023-01-19 23:18:32
2
shannonlindererza :
I just want you to know you're not alone. I did this life as well. love and peace.
2023-04-02 22:42:02
2
A R :
those little Poppy noises 🥰
2023-01-19 22:56:27
2
Jennie_from_the_blog :
She is just the sweetest baby. Does she see any therapists regularly? Like occupational or physical therapy?
2023-01-21 06:36:59
2
Tracey Sappington :
The demyelination reminds me of what I have which is Multiple Sclerosis.
2023-01-19 22:40:59
2
laura kell :
I hope its not insensitive but ask but Do you plan on having any more children since finding this information out?
2023-01-19 23:11:57
1
Kim :
Her little fingers 🥰
2023-01-19 22:47:45
1
Jodi Stanley52 :
Such a sweetheart 🌺
2023-01-19 22:54:02
1
K L A R A | SAHM :
I can relate so much! I would love to hear more of poppy’s story if it is already posted. My boy twin has a super similar story also with a rare1/1
2023-01-23 03:08:52
1
Sarah K 🍉 :
Sorry i couldnt focus from the overload of cuteness. 🥰
2023-01-20 17:13:02
1
Apav21 :
Have you seen the page for @alifeforleo ?
2023-01-23 04:24:14
1
jeoscifres :
Obviously you already know this but Poppy is so stinkin cute!!! 🥰
2023-01-20 15:58:32
1
Meggo :
I love your videos! I’m a SPED teacher and mommy!Do doctors think poppy will walk or talk?
2023-01-24 03:00:15
1
Tincturemaker9 :
She's so sweet! ❤️❤️❤️
2023-01-19 21:47:20
1
Joey Lawrence :
Do you feel that her condition is advancing at a faster rate than had been anticipated?
2023-04-04 04:45:44
1
cyndikins :
what gene mutation is it?.... my daughter has rare genetic mutation as well. Me and happened to have same mutation she is 5 every reported
2023-01-24 04:16:51
1
patriciawestbury :
Poppy has a sweet present around her I always feel peace when I see Poppy THAT YOU Poppy for letting us be a part of your life 🌹❤️❤️❤️♥️♥️🙏🙏
2023-04-02 17:38:42
1
Robin Ellenberg :
I am obsessed with the way she has her hands when she is sleeping. She is so sjj oh cute.
2023-01-19 23:25:45
1
Orietta :
She is the cutest. Thank you for educating us on her diagnosis
2023-01-20 15:04:14
1
Coco bubbles :
Poppy and you are so magical, thank you for sharing beautiful moments with us. Thank you xx
2023-01-20 11:46:40
1
KristyThripp :
Did you get her diagnosis from like SNP microarray, whole exome or genome sequencing? Thank you for sharing!! She’s the sweetest.
2023-01-19 21:40:46
1
Enrica66 :
how do you feel now that it was shared??
2023-01-20 00:17:44
1
beige_millennial_mom :
Oh sweet Poppy your sweet face brightens my day xhugsx 🧡
2023-01-20 04:31:33
1
Theresa :
She looks so calm and nurtured in your arms. A little angel so content to be held so lovingly by her beautiful mother.
2023-01-20 00:19:23
1
no :
Will she end up sleeping a lot more as her condition progresses?
2023-01-20 03:21:58
1
LC :
She is adorable 💜Will you have more kids and if so can you test for the gene somehow?
2023-01-20 02:19:28
1
kimwise885 :
I just love how you soak in all the cuddles that you can with Poppy. Is her sweetness contagious? We can all see how much she is loved.
2023-01-20 02:17:53
1
Kristy Cobbs :
She’s my favorite TikTok baby ❤️❤️
2023-01-20 01:56:58
1
Maria Ludwig Hayes :
What is Poppy’s middle name? I love her name!
2023-01-19 22:09:31
1
To see more videos from user @poppy_and_kaylee, please go to the Tikwm
homepage.
