@mindfulempower_witherica: My explanation of Hemicrania Continua #hemicraniacontinua #lifechanging #followme #moreawarenessneeded

Erica | Life Coach 🇨🇦
Erica | Life Coach 🇨🇦
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Region: CA
Monday 20 February 2023 19:28:00 GMT
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lrothenberg1
Leah Rothenberg :
I’ve been living with this for 6 years. I can’t take indo so I get Botox and Vyepti and it mostly helps.
2026-06-20 13:40:52
0
taylorkring3
Taylor Kring :
I have this too! I can’t take indomethacin (makes my stomach bleed) I’ve tried nerve blocks, verapamil, gabapentin, and now sumatriptan shots… nothing helps 😩😩😩 has anyone found relief ?!?
2025-09-30 06:48:56
1
chilibeans528
ChiliBeans :
Same. I just want to clean my house and I’d settle for a simple, mediocre social life without worrying about a severe flare up.
2026-01-15 12:53:43
1
hempyginger
Marti :
They just put my husband on indomethican and it hasn’t helped yet — does it take a bit to work?
2026-06-07 16:48:38
0
downbutnotout6
Downbutnotout :
oohhoohh PLEASE HOW CAN I GET THIS CONFIRMED? DID YOUR NEUROLOGIST DO GREAT TESTS TO GET U PROPERLY DIAGNOSED.I LIVE IN ONTARIO TOO I FOLLOWD YOU.
2026-03-30 04:29:09
0
motherovcats18
Blondie75 :
I have trigeminal neuralgia and chronic daily migrane and clusterheadaches for 16 years and I found out from a expert neurologist that I’ve been wrongly diagnosis and I have HC not chronic daily migrane with cluster attacks ! I still have TN has well but for 16 I been misdiagnosed
2026-08-17 19:53:17
0
sacredsouls6
Sacredsouls :
I was diagnosed 4 years ago. It’s horrific,the pain is excruciating. I have nerve blocks,however even they don’t take the pain away.. just help a little x
2024-01-22 15:37:03
4
lachamucadelcielo
lachamucadelcielo :
How did you get your diagnosis?
2023-05-01 00:03:37
0
cfellers69
Colleen7269 :
I was dx today w/ hemicrania continua- left side. I THOUGHT I had a 4 YEAR earache nope a 4 YEAR headache. Started in 2020 after Covid, it’s 4 yrs 7 different drs
2024-11-23 03:32:35
4
j586394
J :
Thank you very much describing me … I’ve been on indo too but been taken off it as been taking it for years
2024-04-20 12:51:51
0
sarahdavis3962
Bells River Yulee :
I have it, too! This is exactly how I feel. Everything you said about the medication and intense pressure is true. Thank you for this post!
2025-06-29 08:05:14
1
aprilluc0
PMH :
Going through the same thing! Bad flare today!
2023-03-29 01:14:15
2
dawn0777
Murray :
Hi I have being diagnosed with this headache after suffering for 5 months .Can I ask do u feel funny at all when u walk ?
2023-09-04 15:24:12
0
b202020212
user5079756502559 :
I was diagnosed with this recently can you show me how your eye looks…what meds are you taking? I want to get more info as to why I got this
2023-04-12 21:43:03
1
blissfullybri7
blissfullybri7 :
I was diagnosed with this back in April and was taking indomethican I had to stop taking it like 2 weeks ago and I had and really bad headaches on Wednesday and my eye started looking like I have pink
2024-07-13 02:02:57
1
odin.my
⚜️Achtsamer⚜️ :
Dto
2025-12-17 05:58:51
0
sweety_dream4
sweety :
indometasin use (endol) ı use
2023-08-20 18:06:11
0
downbutnotout6
Downbutnotout :
would Love TO TALK TO YOU@! I.LIVE IN ONTARIO CANADA.
2026-05-01 03:20:21
0
danalynn8030
user9368018894651 :
I was just diagnosed with Hemicrania Continua, thanks for being so open and helpful! I’ve felt crappy since a car accident 17 months ago, it’s been horrible!!
2024-04-20 14:30:01
0
xobrittany94
Brittany Bonilla :
Does your jaw lock up during a flare up also?
2024-03-07 16:00:25
1
skyfall3129
Skyfall3⭐️🌟🌟 :
I was diagnosed with this evil condition. The pain is horrible and the medication makes me sick
2024-11-01 14:09:41
1
j586394
J :
Def understand about people think you faking it :( been suffering for years
2024-04-20 12:53:51
0
dianayoumans612
dianayoumans612 :
This is so debilitating! Finally found Indomethacyn.
2024-08-09 00:53:24
1
petelqtu3qz
etters :
I take Indomethacin twice a day and keep it under control. X
2024-05-23 15:17:54
1
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