Rebekah MaryAnn
Region: US
Tuesday 28 February 2023 17:55:51 GMT
86109
1510
244
392
Music
Download
Comments
Nicole :
Crazy to think I was diagnosed just from a routine eye exam from swelling behind my eyes. I’ll always tell everyone how important they are.
2023-03-02 19:51:13
207
Courtney Sabrina :
Anyone avoided surgery with meds?
2023-06-14 00:21:04
20
Philli :
I’ve been dealing with this since 2019 no surgery yet just on 2,000 mg or acetazomide but did the surgery help you??
2023-04-24 16:10:34
9
👣 :
what was your highest opening pressure? mine is 30
2023-05-25 18:07:10
3
karialliah :
I had a craniotomy for a brain tumor and when that still didn’t make my headaches go away, they figured out it was IIH. Ophthalmologist in 2wks because my vision is worsening even with meds 😩
2023-12-29 14:47:32
1
Rekia🌈 :
I was also diagnosed in February and my pressure was 25. Diamox helps me function but there’s so many side affects. Tingling, numbness, fatigue
2023-05-26 06:17:09
5
maribel.no.1 :
cerebral angiogram tomorrow(possible stent )and I'm nervous, I've had double vision almost a year now, I'm tired.
2024-11-10 15:43:05
1
Angie Marie ☁️ :
How’s your vision? I’m waiting to be diagnosed currently 😞
2023-03-02 03:08:25
3
Mama Chelle :
I was diagnosed Jan 11th
2024-01-24 01:57:11
1
✨Mo 🍉 ✨ :
😭 hi friend. Me too. Lost most of my peripheral vision in my right eye before I was shunted last September 💗
2023-03-07 04:21:23
4
Kait Elizabeth :
Random question but does yours mess with your sense of smell?
2023-04-14 22:33:19
2
AET :
I just got diagnosed today! How are you feeling now?
2023-07-14 02:58:15
3
challenge :
I just been told I have it just had a lumber puncture it was 40 and my back killing
2023-08-21 21:45:03
0
Leroy&Ludwig🪐 :
Hey I was just diagnosed with this I am so scared please help me they put me on a diuretic will this help? Please reach out to me
2023-04-11 00:43:42
5
kay :
Also have it. Avoiding the stent surgery to this day. Dx a year ago, symptoms started a few years ago. Hoping you get your relief
2023-03-23 19:55:53
8
Cordelia🦎 :
I had this but they stopped at a spinal tap
2023-05-24 01:29:25
7
Rekia🌈 :
Info about this. Good to know I’m not alone. It’s very depressing. No one understands how it feels. Not being able to fully function.
2023-05-26 06:19:44
55
Tricia Barrell :
What a journey. I have IIH, too. Have these surgeries been helpful for you?
2023-03-03 21:17:44
3
CrazyChickenAndGuineaPigLady :
I’m going tomorrow for an eye exam to see if I have this.
2023-03-05 13:42:24
2
Toni 🧿 :
I have this, just not as bad! I’m so sorry girl! Everything will work out in the end!
2023-03-02 15:48:03
3
Danica Menna :
I just got diagnosed with this at 26 years old..got a spinal tap and on meds. How will I know if a need a shunt?
2023-10-12 00:16:08
1
Sonia Blair :
Just beginning my journey, scary and painful. Will keep you in my prayers
2023-06-09 17:28:09
4
the_poet_called_x :
I was given a clean bill of health 2 months ago. IIH was over. Now I developed vertigo, tinnitus and more headaches.
2024-10-31 08:11:30
4
Betty Davis :
I was diagnosed in 1997 3 optic sheath operations, 5 peritinal shunt placements, 16 lumbar puncture and a gastric bypass. I lost most all peripheral
2023-11-07 01:44:08
2
To see more videos from user @rebekahmaryann, please go to the Tikwm
homepage.
