@lil_tachy: Don’t talk to me about the rip in my sock #xyzbca #pots #potsyndrome #posturalorthostatictachycardiasyndrome #potsawareness #potsie #chronicillness #chronicallyill #spoonie #spoonielife #dysautonomia #dysautonomiaawareness

Kirsten🏳️‍🌈
Kirsten🏳️‍🌈
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Region: US
Tuesday 28 February 2023 23:05:47 GMT
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mcnallyemma
Emma :
As someone newly diagnosed, I need MORE of these!
2023-03-16 20:25:04
4
gwynobwds
Gn :
I had this pair of leggings that I used to call my productivity leggings cuz I always felt productive wearing them. Shocker it wascompression not them
2023-03-04 11:29:47
89
user1625921870278
user1625921870278 :
The salt helps hyperPOTS patients with high BP too! It actually can work to lower our BP by raising blood volume and lowering norepinephrine :)
2023-03-17 18:44:19
29
et1719
Esmée :
Where is dress from and where are socks from
2023-04-24 01:54:21
3
sondermountain
Sonder Mountain :
I have exclusively taken baths my entire life, and I thought I just didn't "like" showers but I'm pretty sure it's POTS 😂
2023-03-01 17:22:05
42
stcrcatcher
cate :
This is how I've been treating myself until I finally see a new cardiologist for a diagnosis and it's working! Crazy that I'm doing more than the drs
2023-03-28 16:41:18
11
kortniiii01
Kortni :
where did you get those socks???
2023-05-23 00:16:25
1
coffeeandchaos89
𝕊𝕒𝕣𝕒𝕙𝟠𝟡 :
Is that why I can’t eat in the morning and feel really sick ?
2023-05-01 03:32:20
4
buckethattattoo
Bucket :
oh my god that why I feel that way when I eat???
2023-03-29 17:10:21
4
phoenixxphyre
Rogue Multiverse :
I wonder if blood pooling is why my digestion is slow. It normalized by 4 hours so they called the scan normal but said to try eating small meals
2023-03-10 04:51:57
2
222hae
hae :
thanks bae how do i stop the chronic fatigue though
2023-04-20 22:12:44
18
potsandplantsdepartment
potsandplantsdepartment :
Buying myself a shower chair was the best thing I’ve ever done.
2023-03-01 02:27:23
10
graces.stupid.tiktok
Grace :
what compression socks are those? i need!!
2023-03-01 01:07:32
8
narcolepzzz
Narcolepzzz :
Yes to all of these but I’m gonna suffer through that hot shower every time
2023-03-30 18:13:16
7
eternallytired20
Kennedy :
I know the hot baths are bad but 🥲 I can’t do lukewarm
2023-04-17 18:36:07
7
aubree.busby07
aubree.busby07 :
I wanna sit in the water but pots is causing me to have seizures 😭
2023-06-02 18:24:34
4
wingsnails
Wings Nails :
that blood pooling after eating my dinner can sometime make me so sick. i have to lay down so i don't faint.
2023-03-14 16:29:31
4
runawaytraee
runawaytrae :
OH girl, we need some compression recommendations please!
2023-03-21 23:31:46
3
daniellec_36
🔥𝔇𝔞𝔫𝔦𝔢𝔩𝔩𝔢🔥 :
This is the first time I’ve seen abdominal blood pooling!! I wondered why mine always gets worse after I eat!!
2023-05-31 03:43:16
3
oolong.matchaa
oolong.matchaa :
I don’t have compression socks, but doc martens help! I tie mine super tight and it helps me out
2023-03-01 19:45:37
3
hadesinhiding
Hayden 🇨🇦 :
do you find compression stuff helps you stay warm? my hands and legs are always freezing
2023-03-13 17:33:04
2
lilmschewie
Lilmschewie :
Before your diagnosis did you crave salt a lot?
2023-03-13 03:58:03
2
jessiegernhart
Jessie Gernhart :
@em..grace
2023-04-21 21:13:19
2
ughsmithhhh
chey🦁 :
whats ur fav electrolyte waters?
2023-03-08 18:31:13
2
nora_riegman
Nora :
I think i might have this but how can you be sure before going to a docter?
2023-03-02 09:02:31
2
mandicakes_
FUCK TRUMP :
Just starting to think I have POTS. Is this why my “bad” knee feels so swollen at night?! Other symptoms I blamed diabetes/gastric bypass/being fat.
2023-04-26 01:11:12
1
fruitofthezoom2.0
Becca🌈 :
WAIT A DAMN MINUTE
2023-05-26 16:09:18
1
pammywater
pammywater :
hi...I am 65 and have been dealing with POTS for 20 years...diagnosed 12 years ago. I am looking for some help with potassium to add to my salt water.
2023-04-19 02:25:34
1
gargalesis_
sodium_swindler :
So the reason why salt only works for me sometimes is because, for me, my POTS doesnt rlly affect my blood pressure??? Ohhhhhhhhhhh
2023-03-30 03:50:20
1
heyitsjj11
Heyitsjj :
I’ve been doing everything I can for pots and I feel still gross, am I stuck forever feeling horrible?
2023-03-24 04:09:57
1
amandabailey14
Amanda Bailey :
@paige_bailey1818
2023-04-24 00:27:39
1
flowerpowerforlower
Kay :
Those compression nylon type socks are great but so difficult to put on!
2023-03-23 13:33:46
1
lfranken0521
Lfranken0521 :
I sit in the shower too lol
2023-03-08 19:53:59
1
fearlsimp
Abbey🕺🏻✨ :
I will say for those of you with lots of joint pain and muscle stiffness (hEDS or other) and POTS, a shower chair (with a back) is LIFE CHANGING!!!
2023-04-30 03:07:36
1
studiorae07
Rae :
compression socks >>>
2023-03-07 03:25:09
1
blandmarlin7835
🐠 Fish Dad 🐠 :
I was recently told I have pots and am working on getting diagnosed. Your account has made this so much less scary
2023-05-02 16:50:55
1
godheadsilo
a :
i started taking magnesium supplements and my chronic fatigue got a lot better
2023-05-04 01:54:53
1
demondork1423
DemonDork :
I tried custom compression socks. I found they made my legs completely numb I couldn’t stand up. And my pots got worse 🥺
2023-08-16 19:18:34
1
crystalscrugg9511
Crystal Scruggs :
minerals, vitamin C, mostly vegetables, fruits, hurbs. 🥰
2023-06-10 15:32:05
1
lizrockyroad
Liz :
What else can help? Cuz I get episodes that like to act like I’m having a stroke even tho it’s just pots acting like it
2023-05-10 23:29:02
1
paperroselibrary0
📚Riley Nicole📚 :
I love a good pair of compression socks😩🙏🏻
2023-03-01 16:03:01
1
thx_zaddy
thx_zaddy :
I thought I missed the POTS/EDS comorbid it’s but this is stuff I do naturally 😬
2023-03-03 01:57:43
1
klf2511
KLF2511 :
what age did your symptoms start please x
2023-05-13 17:45:28
1
ghdcanada
LIsaAnne (any pronouns!) :
Thanks for addressing all the lifestyle changes a person can make to feel better b4 (or in addition to) jumping to more extreme treatments and/or meds
2023-05-17 07:16:53
1
queen_of_sly
Queen_of_Sly :
TikTok told me over a year ago I had POTS. I finally went to the ER and they confirmed it was POTS no I just have to hope my GP sends me to cardio.
2023-05-27 12:23:55
1
princetimid
Azul :
@cat_lockk
2023-04-17 19:24:17
1
caseywasey63
CaseyWasey63 :
Yeah no I truly have every single symptom
2023-05-23 23:37:37
0
notyourserotonin
NotYourSerotonin :
Add in strength training! I started bed bound. All of these tips are great though!
2023-09-03 23:00:08
0
thekatisalie
Kat | 🆘 🇺🇸 :
my job has been more stressful so I've been eating large meals to save time. I feel so much worse than when I just sort of snack throughout the day...
2023-05-17 13:04:34
0
kaydeeannart
Kaydee :
I’m not on any medications, but I wanted to try adaptogenics, does anybody know which one is best for this type of pots???
2023-05-13 16:46:45
0
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