Dr. H
Region: GB
Sunday 12 March 2023 22:38:29 GMT
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AuthorAshleyK :
If only it wasn’t like hunting a unicorn to find a physician to handle POTS and all its fun. It’s so much more than cardiology.
2023-03-13 02:23:31
83
Lauren Less :
Makes sense. Lots of us also have positive ANAs with no actual autoimmune disorder diagnosed
2023-03-13 05:09:54
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Tristy :
Finding a doctor to listen is impossible. My whole side of my mom's family has Elhers symptoms. My doctor unknowingly treated my hyper pots trying to treat tremmors. My epinephrine surges are better.
2025-04-19 04:56:13
0
Julia :
what might it mean for treatment of POTS if this were true? (My 12-yr-old daughter is showing symptoms of POTS)
2023-03-12 23:52:32
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Michelle Tyson :
Tested and nothing ever came up for autoimmune.
2023-03-13 00:29:42
3
Emily 🦓 :
How do find out the autoimmune issue though? I also have hEDS and MCAS (those aren’t autoimmune though).
2023-03-13 00:44:17
1
a :
i developed pots after being in an eating disorder treatment center for 3 months, and i don’t understand why that was a trigger
2023-03-14 03:29:11
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kairi :
i’m pretty sure my PoTS is from a mix of ehlers danlos, mono/EBV, puberty, and falling on my tailbone:,) oh & weakened vagal tone
2023-03-20 03:25:51
2
Tristy :
It def possible. There is still so much we do not know. We can only test what we know and can measure they just have not found it yet.
2025-04-19 04:52:24
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JoeyAndRollie :
It’s all just starting to make sense isn’t it. But like, not at all. Perhaps we are just on the right bus going in the right directions
2023-03-13 01:41:34
1
lgotbannedol :
I need to know more about the metabolic connection to psychosis and bpd
2023-03-13 00:22:09
0
Anna :
Dr Blair Grubb in Toledo Ohio did a study about this, he found that it is autoimmune.
2023-03-14 04:55:23
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glittersploof :
There is a German doc in Berlin researching POTS as autoimmune disease, idk the name, but it is very interesting!
2023-03-12 23:09:17
67
User1789854 :
Could also be psychosomatic.
2023-03-13 08:30:53
1
Abigail :
developed similar symptoms after covid (i’m a woman), got a cardiologist referral now
2023-03-20 03:51:45
1
Michelle Tyson :
Diagnosed hEDS with POTS. What do u think about that. 1st diagnosed in my family.
2023-03-13 00:28:20
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