Tara Rule
Region: US
Monday 01 May 2023 17:13:35 GMT
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BeK :
Do you work with a good rheumatologist for the autoimmune stuff? They might be able to help!
2023-05-01 19:57:13
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tessellatedheart :
I would probably have you Dr write a referral for area just as a back up and you can cancel if you find someone to get you in faster
2023-05-01 18:06:12
6
Toxic Mother Of Monsters :
oh and I know it's Ohio but Cleveland clinic and OSU has good ones
2023-05-01 19:54:42
5
D :
Good luck! Sending all of the healing and positive vibes. I hope you find someone soon and get answers ♥️
2023-05-01 17:43:44
5
Boo Boo :
Been in this journey for my teen for 3 years. encephalitis from strep, pneumonia then seizures, now POTS, EDS and autoimmune.
2023-05-02 16:53:08
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Ashley Diamond :
University of Michigan hospital in Ann Arbor ! They’re top 5 in the country
2023-05-02 05:11:04
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average.queens🇵🇸👑 :
@Dr Kat, Epidemiologist can you help my friend?
2023-05-01 19:23:37
4
kendy🫶🏼 :
Have you taken any genetic tests?
2023-05-07 04:15:56
3
TurnANewLeaf :
No idea if she’s accessible or even the best person for you. But if concerned re post viral issues dr Susan Levine in NY is a great Me/CFS specialist
2023-05-12 02:23:57
3
Ashlee :
If you have the energy, can I ask how you got the unspecified gi/stomach autoimmune diagnosis? I have massive GI issues w/ a positive ANA but my rheum
2023-05-01 19:36:39
3
✨🦋 ROBYN 🦋✨ :
Omggg😭😭💔💔this literally breaks my heart. All of this !!! on top of a giant freakin cyst!!?!!? Girl, I feel ur pain. From one spoony to another😢💔
2023-05-05 02:25:00
3
itsamemama :
AGH in Pittsburgh is a good option. Avoid UPMC at all costs
2023-05-08 02:55:02
3
Chioci (Chee aah Chee). Linda :
That is tricky. I hope someone can help find a Dr. I am sorry I don’t know anyone. I had hope primary would know someone
2023-05-01 17:31:54
3
Loki (He/They) :
💜💜
2023-05-02 13:45:31
3
lunaticbbg :
I have an amazing one in South Texas if you want her info let me know
2023-05-10 03:06:52
3
TALON-LEEVON :
start juicing no sugar.
2023-05-03 15:33:14
3
Amanda :
The shitty part is guessing what symptom is from what
2023-05-05 12:40:11
3
Zoro Nova & Lucci :
Was on Azathiopr. (Immunosupp.) for about 5 years for UC, turns out it was misdiagnosed due to other things causing symptoms. Been off it for 2 months
2023-05-02 07:27:15
3
💚 :
I hope you get answers.
2023-05-01 22:41:49
2
Stephanie Rose Lemmo :
He had a blood infection and they kept him in the hospital for infectious diseases Dr and then he spent 3 months on iv antibiotics
2023-05-01 22:37:42
2
Modern Hedgewitch :
I cannot seem to get your email right please email me [email protected] we share such similar stories I see some good Drs tomorrow email me!
2023-05-10 06:12:52
2
The Scholarly Mouse :
hEDS + POTS + RA here so I can absolutely sympathize.
2023-05-02 06:54:12
1
average.queens🇵🇸👑 :
@ThatPsychNP do you know anyone who can help?
2023-05-01 19:16:58
1
average.queens🇵🇸👑 :
gonna watch this later, I'll see if there's any infectious disease doctors at my hospital
2023-05-01 19:15:19
1
Christi :
UofM had me see an IFDS the day after being admitted to the hospital after my transplant. Knowing you’re on the meds you are makes you higher risk
2023-05-04 14:16:28
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