@microcatmachine: I’ve seen a lot about MCAS lately, so I wanted to talk about my mast cell condition - chronic urticaria. #ChronicUrticaria #OveractiveMastCells #EhlersDanlosSyndrome #greenscreen

Allison Tennyson
Allison Tennyson
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Region: US
Wednesday 10 May 2023 14:52:28 GMT
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betterlatethannvr
BetterLateThanNever :
Dr with hEDS here. Great content. MCAS is a specific cause of chronic urticaria. If you know it is MCAS, then it’s no longer necessary to call it CIU
2023-05-10 19:26:54
282
charliee_mariee
Charlie Marie :
THATS WHAT THIS IS?????? I never knew what I thought was anxiety rashes and my chronic diarrhea/IBS/GERD/Gastritis could be connected
2023-05-10 19:45:27
229
dashofashley
Ashley :
When you have an episode (you probably don't anymore) but did it start with intense itching around your ears and palms of hands.? I also feel like I'm in a tunnels with my hearing
2024-10-21 22:58:17
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kendallfaefuhrman
Kendall Fae 🦋 Big Mood Club :
Does anyone else with EDS have very tight hands? I have other signs of EDS except my fingers and hands are not flexible at all
2023-05-12 19:34:47
2
proudspoonie
Proud Spoonie 💙🥄💜💉 :
Seeing an immunologist and allergist in July for MCAS..hopefully I’ll have a formal diagnosis and possibly medication to help. My EDS doctor thinks I
2023-05-10 16:33:51
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nathaliemaxey
Nat Maxey :
chronic urticaria here too 🤸🏽‍♀️😭
2023-05-17 02:53:15
3
__bboo__
Bella :
Do you get a lot of fluid in your ears or under your jaw?
2023-05-15 21:50:22
31
pia_villasenor
Pia :
My jaw literally dropped with this video. I was recently diagnosed with POTS, through watching tick-tock I found out about with HEDS and it made so
2023-07-26 01:54:11
1
carijs13
Cari J :
What were the things you were allergic too
2024-08-12 00:56:19
0
newuser10000000
User1000 :
i tried sending you a message. i just want to thank you for bringing awareness to those with EDS. i’ve been gas lit so many times by doctors on my
2023-05-12 13:13:20
2
frozenbeans27
frozenbeans :
Omg I have chronic hives and all they told me is to take Claritin daily, INDEFINITELY?!
2023-07-24 13:58:44
4
thebendyspoonies
TheBendySpoonies (Sarah) 🍉🫒 :
But this is MCAS! All of these symptoms are MCAS- I know- it’s insane. But they’re everywhere, esp skin & gut
2023-05-11 22:26:42
30
user28i546637t
. :
I diagnosed w/ urticaria by a Dermatologist wayyyy back. He had 2 students w/ him & taught @ NOVA in South FL. He wrote on my back too. I never had
2023-08-06 11:18:38
0
lisha_annl
Alisha Ann Letner :
I was DX’d w/ urticaria & dermagraphism a few years back. After recent tests, they are looking into systemic mastocytosis now 😮‍💨
2023-05-10 15:08:35
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beccamckenzie8
Becca McKenzie399 :
My doctor did a Tryptase rest recently, but on all of my meds. but I am the same as you, no anaphylaxis, lots of hives.
2023-07-09 23:17:12
1
chocolatecoveredchakra
chocolatecoveredchakra :
Dude, I DK how I got here. But I have ADHD, now I think I have EDS. And I had no idea the association with dermatographic urticaria
2023-06-14 05:22:30
0
anicatattoos
anicatattoos | Visual artist :
Did you choose what 20 things you were tested against? I need to be tested for this but not sure what to ask for 🙊
2023-05-10 16:04:11
3
beccasoul13
Rebecca Souleyrette :
I have what the doctor is calling IBS-M, but my skin does this and I have gi issues including vomiting 😅
2023-05-10 17:27:45
26
emilyjustine88
Emily Martin🌲🌙 :
I had chronic urticaria in 2015 for 2 years and was on xolair for a year when it first came out on the market. I haven’t had a flare up since then but
2023-07-23 23:56:08
1
kristi24roberts
Kristi :
See I don't really get hives but I literally scratch my legs constantly especially in my sleep to the point it bleeds and bruises. Any ideas?
2023-05-10 16:32:49
4
beginning_new
Sabrina Browning :
an allergist literally said she'd never seen that so bad as in my daughter n her answer was "she jus has sensitive skin n always will n there's cont..
2023-05-10 17:44:43
4
stephrnie
Stephanie Stone :
Very helpful. Thank you!
2023-05-10 15:07:12
1
swimmer_chick3
swimmer_chick3 :
Hey! I know MCAS can have symptoms or excessive itchy-ness…does it happen more when it’s hot out? I’ve always been extra itchy when overheated
2023-07-30 23:21:21
0
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