Kit ✨♿️
Region: US
Monday 15 May 2023 21:23:38 GMT
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Kekethepotsie :
Do you mind sharing the providers information?
2023-05-16 00:41:52
2
Madeline Montgomery-Collins 🦓 :
I FINALLY got a referral to a geneticist after 8 years of Drs dismissing me. And doing all of my own research.
2023-05-17 10:31:21
2
dani :
trying to even find a dr who can diagnose me with hEDS. It’s hard.
2023-05-16 03:13:52
5
FlowerWorkk :
If you are in NYC there is an EDS clinic at Weill Cornell. I got diagnosed like 20 years ago at Rothman Institute
2023-05-19 22:39:20
3
Heather Robertson :
It took me 13 years to get a diagnosis. It's so hard to find a doctor who actually knows about it.
2023-05-20 03:39:07
2
chocolatecoveredchakra :
I always self diagnose before going in and they legit always diagnose me w that 😂 lucky i am a health prof. So it helps to know some conditions
2023-06-15 04:41:10
1
Julia McGeown :
I am 62. Diagnosed at 60. Day after I found out I had a brain tumour. Crazy couple of days.
2023-05-16 23:32:42
1
LoriJewell* :
My mom had it, I have it, I passed it on to my kids and grandchildren and I still get gaslit.
2023-05-24 05:35:02
0
🇿🇦👁️Missfit Awakening :
Have you looked into Myocarditis
2023-05-30 10:39:35
0
Melanie :
Thank you for replying my story is the same basically doctors just dismissing me
2023-08-12 01:56:33
0
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