@moonlit_kit: Replying to @It’s me anxiety isn’t going to explain away my chronic dislocations, my HR jumping 50+ bpm just by going from sitting to standing, with or without anxiety, or several other symptoms. If I’m having anxiety funnily enough it just makes my sitting HR higher and my standing HR even worse. When someone is telling you their diagnostic journey, lets not question the validitiy of their experience by asking if its just anxiety, or if I’ve seen a doctor when the whole point of the video is discussing just how many doctors I had seen #ehlersdanlossyndrome #ehlersdanlossyndromeawareness #ehlersdanlos #pots #posturalorthostatictachycardiasyndrome #ehlersdanlosawareness

Kit 🌙✨
Kit 🌙✨
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Wednesday 17 May 2023 18:57:06 GMT
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thatsickchick30
Melly :
Amazing how invisible illnesses are so often put in the category as oh you just have anxiety. The gaslighting I have endured from able bodied ppl is
2023-05-17 20:40:48
3
polly.nova
Polly Nova :
Even if it comes from a good place, it's gaslighting and ableism. You shouldn't have to defend your physical diagnosis. ❤️❤️
2023-05-17 19:29:21
18
hollaatcari
cari :
Anxiety doesn’t cause your HR to increase to 160+ upon standing etc. Hot showers are my biggest trigger 😩
2023-05-23 14:23:12
7
lizziebobizziee
lizziebobizzy :
Yes! Well said. Like I said in another comment thread, these comments are sooo invalidating and dismissive.same with the type of comment where they
2023-05-17 19:23:51
5
thehopesystemdid
The Hope System :
I’ve had this from paramedics while literally in an autonomic crisis “do you have anxiety” I have POTS sir
2023-05-18 00:54:43
4
ashleycamperfam
Ashley 🩶 :
I’ve had dr’s tell me it’s anxiety… I said I’m aware I have anxiety and aware what panic attacks feel like. Lots of ignorance around POTS.
2023-05-19 17:22:48
2
rebdullrinn
RebdullRin #1 Mystra Hater :
I cannot say enough- if it’s your first thought it’s something us and our drs already thought of too. Your first thought is not special or original.
2023-05-17 19:43:24
2
whatyouknow24
Easybreezy24 :
That comment made my eye twitch 🫠
2023-05-22 15:55:45
2
petey.pete2468
Petey :
MCAS? The Massachusetts Comprehensive Assesment Test?!
2023-05-18 05:56:53
1
bear_e_em
Bear-E-Em :
its such shit that we have to constantly get this from armchair know-it-alls who don't care to listen. we've done the work! stop dismissing us!.
2023-05-18 22:37:36
0
thatsickchick30
Melly :
atrocious
2023-05-17 20:40:53
0
pyrose42
🦄...Rose...🦄 :
Medical gaslighting at it's finest 🤦‍♀️🤮🙄😒
2023-05-19 19:13:46
0
etherealzebra
EtherealZebra :
hugs same here. eds finally diagnosed and wow all my issues also fit. u keep fighting idiots
2023-05-26 05:32:14
0
hashtagcoolmom
TardisTakeMe🌀 :
I feel this to my core, tried to get diagnosed and am still being gaslit
2023-05-26 19:31:50
0
juliebellejokay
Juliebelle Jokay :
I have experienced both anxiety and POTS. My racing heart and SYNCOPE isn’t from the pit in your stomach anxiety, it’s my brain having a problem
2023-06-13 21:47:36
0
pegofmyheart67
Margaret Meeker :
My daughter had the same difficulty!
2023-06-16 03:30:48
0
luckyme_030
Luckyme03🍀 :
I was told I just had anxiety, and when I went to a cardiologist, he found out I have SVT...🙈❤️
2023-08-05 12:41:09
0
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