@_bettydouglas_: When I tell you I jUst got off my flight, I haven’t even showered yet - that’s how quickly I need to get this sorted, THAT’S the definition of an emergency #storytime #disability #disabilityawareness #fyp

Betty 🌻
Betty 🌻
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Region: GB
Tuesday 19 September 2023 13:21:54 GMT
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She just hear 'blister' and has no clue what spina bifida is, or any interest in learning.
2023-09-19 15:36:43
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As a district nurse who treats patients with spina bifida and foot ulcers I’m shocked at this! I’m glad you got seen but no need for the stress x
2023-09-19 17:19:13
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I'm immunosurpressed and has on my file highlighted "at risk of complications" and I should be seen ASAP. I still have this fight every time 😤 x
2023-09-19 16:24:02
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I feel your pain, I'm type one diabetic with a chronic pain condition. It feels like a fight to get them to listen sometimes.
2023-09-19 16:24:51
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I feel your frustration I have spinabifida as well and I deal with the same thing with my receptionists and doctors
2023-09-19 13:38:26
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I have felt this frustration so many times for both my SB and my type 1 diabetes.
2023-09-19 14:32:07
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I feel she didn't understand what was involved
2023-09-19 13:40:12
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I know the feeling! “You need to ring 111/your GP…” No, that’s not what I’ve been told to do.
2023-09-20 01:43:56
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Lol well done it was hard work but you got there
2023-09-19 14:47:12
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Those ppl on the phones act like you need a degree to be able to call. I'm not a medical professional, idk medical terms or the process, just get me
2023-09-19 18:38:14
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I feel like receptionists are the worst people in the world.
2023-09-19 13:29:32
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Honest to God and then they wonder why people are so abusive. Sometimes the only way they will listen is after/when you get angry with them
2023-09-20 15:04:18
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I know how you feel. I have cerebral palsy and to Stoma,’s. I have it all the time we gonna speak to the hospital
2023-09-19 14:28:21
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Foot wounds are so dangerous especially with poor circulation. It is an emergency. My wife had a blister that was infected and A&E sent her home with
2023-09-19 13:38:57
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I know what you mean by nurse also I get the same from a GP Receptionist
2023-09-19 14:37:01
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Bless you so difficult.. I wonder if asking her if she has specialist knowledge about spina bifida and suggesting she just checks with someone for you
2023-09-20 05:10:07
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Wow, that nurse is so rude glad you got everything sorted out in the end
2023-09-19 13:31:32
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Sometimes it’s better to hang up wait 5 minutes and talk to someone else
2023-09-19 14:03:06
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With people like that, I can't help but ask them "are you deliberately being obtuse?" & that usually send them over the edge!
2023-09-19 20:58:47
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annoys me how they dismiss patients. I have MS and get the same. Like they forget we live with these conditions 24/7,we know what we're talking about!
2023-09-19 19:24:56
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I think some GP receptionist's and I do mean some not all are power trippers who seem to think they are more important than they are,.
2023-09-19 15:59:36
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Is spinabifda genetic? I’ve always been told it’s not but I’m getting so much hate for saying that!
2023-09-19 13:37:00
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It is THE WORST trying to explain your complex disability to medical people who don’t care. Sending support and empathy 💛
2023-09-22 13:14:28
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I do hope when you got seen it was helpful. Also love your nails
2023-09-19 22:06:47
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Did you get there name . So when you went there you could confront her . 🥰
2023-09-19 21:32:22
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