Kirsten🏳️🌈
Region: US
Friday 22 September 2023 23:01:17 GMT
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Tara :
So I was diagnosed with both ADHD (inattentive)and POTS. Is it possible it was all POTS or do they tend to overlap?
2023-09-23 01:56:04
45
Stefanie :
I don't sweat hardly ever, even when everyone else is. I'm being tested for SFN. No prolapse, but regurgitation in both valves. 🥺
2023-09-23 15:25:26
2
Fadurian :
I didn’t know that small fiber neuropathy was connected to pots. During my tilt test they somehow figured out that I have small fiber neuropathy.
2023-09-23 15:50:27
7
Kristinadena :
I have been diagnosed with fibromyalgia, but after watching your videos I know it’s Pots now! Thank you for all of this info.
2023-09-23 05:15:19
7
Lacey Shenanigans :
Yeah, I sweat profusely from my head and face. It's miserable
2023-09-23 19:49:55
2
🌺 ZANN 🌺 :
I have EDS, POTS & Small Fiber Neuropathy. It’s making sense now 🥺 Thought it was menopause & stress.
2023-09-23 21:05:51
27
nana :
Is crazy because I have pots and fibromyalgia and most of the symptoms are the same. I sweat a lot. Thanks for confirming this for me.
2023-09-22 23:48:58
14
SeaCowExplosion (they/them) :
if 80% of the pots population were male they probably would have figured out why already.
2023-09-24 06:13:48
9
guttermouthgirl0011 :
*laughs in POTS and Sjogrens* I never know when I’m gonna sweat
2023-09-25 02:37:24
8
LivWellEatWell :
I sweat SO much. This explains a lot
2023-09-25 02:34:47
7
Carey Schreier :
I have mitral valve prolapse and my cardiologist believes it’s the underlying cause to my Dysautonomia - go hand in hand.
2023-09-23 03:11:37
5
🦋MamaG🦋 :
Lawd if this ain't me...!!!!! 😂
2023-09-23 04:34:24
4
Nyanko🍉🇵🇸🇨🇩 :
so... that's why I don't sweat... makes sense.
2023-10-01 04:28:22
3
🥀Dana🥀 :
I started getting ADD symptoms after my POTS diagnosis 🤨 Makes sense, now
2023-09-24 12:08:56
3
liz :
it scared me the first time I noticed ny arms don't sweat anymore. my face was drenched but arms were bone dry
2023-09-23 19:19:18
3
MillaTilla :
I sweat like a pig
2023-09-23 09:08:30
3
Victoria Willis :
I passed my heart echo and chemical stress tests they called today. When I stand my BP and HR change a lot. Does that cancel out a pots?
2023-09-23 00:01:30
3
fire_andlemons :
Can you talk about why concerts and flashing lights are bad? I can’t find info on that
2023-09-22 23:09:17
3
⛈Boi, Interrupted⛈ :
Maybe the prolapse was biased towards EDS and before good imaging tech? That’s all I can think of for that 😂
2023-09-25 20:02:15
2
rly.fmf :
In 1999 I was diagnosed with mvp and later in life was diagnosed with POTS! Thank you for sharing this because it just confirmed my suspicions
2023-09-24 16:20:43
2
Syd :
I remember when my doc who diagnosed me with pots had me do the adhd test
2023-09-24 09:44:16
2
ATB :
This is connecting so many things for me right now. Thank you
2023-10-01 15:01:51
1
_chandler_jo :
In my journey to get diagnosed with POTS, I was diagnosed w/ Mitral Valve Regurgitation and SupraVentricular Tachycardia. Still being tested for POTS
2023-09-25 15:51:42
1
Sparklemommaz :
So because I wasn’t in a POTS flare during NeuroPsych testing, the part where they assessed for ADHD would have been skewed? Vs during a POTS flare?
2023-09-25 02:17:33
1
Kelly :
So the paramedics said to me it sounds like you have pots how old are you I said I’m 20 now and apparently I’m too old to have pots now
2023-09-24 08:10:23
1
TheoraV :
I never sweat 😐😂
2023-09-24 06:17:07
1
katcruze4 :
I feel like people would take it more seriously if it were still called neurocirculatory asthenia
2023-09-23 18:06:29
1
Seaglass :
I love that shirt
2023-09-22 23:08:37
1
sab :
I love the fyp I have POTS and just got dx with SFN 💅🏽 flop era fr
2023-12-20 04:54:55
0
Laura Dargie :
so I'm going through a health scare right now and have alot of weird unexplained symptoms how did you get diagnosed?
2023-11-17 01:08:20
0
HailStorm646🥵❤️ :
I don't sweat 😭
2023-10-29 12:26:10
0
angelacorleywillis :
I barely sweat. I overheat (internally) instead.
2023-10-15 11:42:08
0
angelacorleywillis :
In my immediate family of five, four of us have POTS, my three sons and myself. The 80% female stat ... doesn't work for our house.
2023-10-15 11:40:39
0
🍉 Finch/Fin :
I’ve heard from trans men with pots that when they started HRT that their symptoms decreased- maybe it’s hormonal related why 80% of pots patients are
2023-10-10 07:26:43
0
Rylin|✨🧚♀️ :
Can you have pots without tachycardia? I fit all the criteria for it but I don’t have that Aspect of it
2023-10-06 15:33:11
0
Kay Marie :
My autonomic test was negative for POTS but flagged me for SFN and my dr said it was nothing to worry about 🫠
2023-10-05 04:21:26
0
💕 :
I have ADHD, POTS, and EDS. Diagnosed with mitral valve prolapse when I was little and “hyper flexibility” so had it all my whole life but misnamed.
2023-10-01 03:27:54
0
adrift.in.wonderland :
Benign paroxysmal positional vertigo (BPPV) add it to the list, for those under 50
2023-09-27 09:12:01
0
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