@littlemissdiagnosed: Day 2: EDS (aka) Elastigirl Syndrome #littlemissdiagnosed #31for31lmd #ehlersdanlos

Dr. Erin Nance 🇺🇸
Dr. Erin Nance 🇺🇸
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Region: US
Monday 02 October 2023 12:33:33 GMT
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heydippindots1
Syreen L :
tips: drink electrolytes, wear compression socks & leggings, rest often, baths over showers, document symptoms, PT, heating pad, h1&h2 for MCAS.
2023-10-03 11:58:18
3083
stereotypicalsloth
StereotypicalSloth :
finally working on getting my ehlers danlos diagnosis. I also have chiari malformation and they like to play together too.
2023-10-02 14:22:20
423
siri.songbird
Siri_SpiritBomb :
Wow ... WOW! I can do all of those "double-jointed" things. I have "fibromyalgia" (???)
2024-12-29 21:26:16
0
juliebellejokay
Juliebelle Jokay :
My doctors refuse to diagnose me because there’s no cure “so there’s no point” they all agree I have it
2023-10-02 13:15:11
3106
lilhandsxx
lilhands :
POTS, EDS, MCAS girlie here! Find a dysautomia doctor. It has been extremely helpful. Meds for BP, H1/H2 blockers, exercise program w HR monitoring!
2023-11-14 04:43:28
333
mast_cell_elle
Elle_Uk_DXB :
Trying to get a diagnosis for this is proving even more difficult than my MCAS & POTS diagnosis. My dentist told me I have it, can I find a uk doctor?
2023-10-02 12:43:40
214
everydaybagel
Maeg :
I heard “growing pains” in the legs as a child is connected to this. I had them so bad especially at night trying to settle
2024-05-21 03:50:15
924
dudley_the_frenchie_fry
Dudley :
I was just diagnosed with hEDS, gastroparesis, and POTS at age 45. It took 26 years of searching & being ignored & told I’m
2024-11-27 14:13:59
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