Kyla and Myrtle
Region: US
Friday 06 October 2023 23:10:33 GMT
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asdgvh5 :
can you do a video of you trying to move your legs and explain what it feels like when you try to move your legs
2025-01-01 09:18:41
1
elliegxntry :
Do u still have to strengthen the muscles somehow? Could you even do that if you wanted to? I know u said you had EDS so it seems like that might be
2023-10-07 02:50:58
1
Riley (he/him) 🏳️🌈🏳️⚧️ :
May I ask what the difference is between a paraplegic and a quadriplegic? sorry if that's insensitive
2023-10-06 23:49:59
2
Courtney<3 :
painful electricity is the best way I can explain nerve pain (:
2023-10-07 09:07:23
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kostkost23 :
oh.. i see.. generally there is a lot misunderstang to a lot of people about the 'loss of sensation' . Nice video! It would be even more amazing if
2023-10-08 10:14:36
0
KTM :
Same. I can feel my leg hair touching my pants and it can still hurt. & feels blurry. Gabapentin/Neurontin helps, it was life changing for nerve pain.
2023-10-08 00:44:51
4
2018 Subaru Crosstrek :
I have severe nerve damage and I’ve never been able to describe it till now. Thank you
2023-10-07 03:29:31
2
Tiff Moggo :
My buddy that paralyzed has the same nerve pain thing with his legs. Takes lots of nerve pills and pain killers for it
2023-10-07 01:20:58
2
chrisflint00 :
I'm similar. I can't feel my legs & can't feel where they are in space, but I can feel things like bone/joint pain or aches
2023-10-07 00:03:40
3
Mike :
I have nerve pain and there were times were I thought I was dying because I felt like I was being boiled alive. Never pain is truly the worst
2023-10-07 04:51:15
2
francesca :
I have a paralyzed tongue and the static/tingling used to drive me crazy
2023-10-07 04:36:06
2
Mieliboo :
I have paraesthesia but no paralysis and hard agree. I feel nothing on my legs but still get the nerve pain.
2023-10-07 00:11:09
2
Monique Lilly 🇨🇦 🏳️🌈 :
I deal with the same tingling in my legs yet I still have sensation easy way I describe it is restless legs syndrome
2023-10-06 23:16:02
2
Megs 🍃🍄 :
I always describe it as fire ants under the skin
2023-10-28 06:28:25
1
Joshua Laur :
can not be more accurate… i use to try and move them for about half an hour to an hour just pissed me off
2023-10-08 20:48:28
1
🔥Hotwheels Ablaze🔥 :
Same! When I get cold or cold things touch my legs have awful pain but I can’t feel heat or touch. 🤨
2023-10-07 20:43:12
1
Scarlett :
Is it like neuropathy? I get that burning pain feeling in my feet. 🥰
2023-10-07 19:07:34
1
trapper's husband :
i also suffer from nerve pain! has a doctor ever recommended gabapentin to you?
2023-10-07 01:17:29
1
Emory :
I never thought about a spinal cord injury causing loss of proprioception but it makes total sense!!
2023-10-06 23:32:44
1
redhead1969 :
pray for u sister.
2023-10-06 23:14:42
1
juanitolights :
Hi Carla, I’m a paraplegic person in Portland Oregon. Are you in Portland?
2024-10-05 11:29:14
0
unknown :
❤Hi❤ 🥰❤🥰 🥰❤🥰 ❤❤❤
2023-12-25 11:07:37
0
Ian Porter561 :
hey and friends you happy 🌷🌷🌷🌷🌷🌷🌷
2023-11-18 11:04:59
0
:) :
embrace it and get tattoos on them!!
2023-10-11 14:33:22
0
Barbara 🫶🏽 :
I have nerve pain and it's irritating.
2023-10-09 04:29:23
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asikabc :
Lord have mercy.
2023-10-08 03:47:34
0
Bear Bait North Carolina :
Are we running another race sometime soon?!?
2023-10-08 02:58:26
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Vikkie ♿️🧙🏻🪴🧑🎨🇬🇧 :
Mine feels like ‘static’ mixed with sharpe hot bugs running or running cold water.. it’s really weird at the beginning.
2023-10-07 18:12:00
0
rae • little mouse :
I was surprised to hear that my two friends felt all the pain in hospital after their accidents, despite spinal injuries
2023-10-07 06:40:58
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Samia!! :
I hate that feeling I definitely could not do what you do
2023-10-07 03:27:03
0
stoneytheb0t42_fn :
I have a T7-T9 spi i get the same feelings you’re describing.
2023-10-07 01:20:27
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Definitely Not Charlie :
Have you considered tattooing your legs?
2023-10-07 01:11:25
0
Jesscaa :
is it safe to get tattooed on your legs? would it be easier to sit for bigger pieces or harder because of the nerve pain 🤔
2023-10-06 23:58:36
0
johnboyd4261 :
I'm paraplegic I feel everything is that not normal?
2023-10-06 23:49:26
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daemon :
since you have some sort of nerve sensation, do you ever get itchy on your legs? I have some scar tissue on one of mine from a surgical correction-
2023-10-06 23:40:07
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Shadow (Taylor's Version) :
I have paralysis episodes and they are kinda the opposite aside from the not really having any awareness of where they are in space
2023-10-06 23:24:39
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Amanda Stout :
I have metal rods in my spine & my nerve pain felt like bugs crawling on me at first - it's been 15 years so it's better now but I get it!
2023-10-06 23:18:46
0
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