She Shutes (she scores)
Region: US
Monday 20 November 2023 02:45:31 GMT
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AverageReasonableMom :
You are not alone and I wish I had a solution. I always ask for a social worker. I am
2023-11-20 04:40:00
4
AverageReasonableMom :
Open to all solutions. It has to get better. HUGS
2023-11-20 04:40:23
3
Angela Lewis913 :
watching your videos is bringing this to real for me. I have systemic sclerosis,RA, with Raynaud's. 3yrs diagnosed. thank you for sharing your story
2023-11-21 05:40:06
2
Marlene :
Wish you the best! I have linear morphea on my left hip all the way down to my foot dx 1996 at Mayo I haven’t add pain yet just cosmetic & tightness
2023-11-20 04:23:27
2
Emusedone :
Oh I’m so sorry, I know how u feel. I went through this, scleroderma destroying my esophagus. I have peg tube now & it has helped so much. 💜
2023-11-20 04:01:19
2
Sky :
Kate Farms has drinkable nutrition supplements designed to support kidneys
2023-11-20 03:27:53
2
Jennifer :
1 I’m so sorry you had that experience, repeatedly! It actually made me so happy to hear that you fought for an earlier appt—sometimes feel like a
2023-11-20 03:11:08
2
Dom :
@𝙳𝚊𝚛𝚕𝚎𝚗𝚎☆ @Edith Machain
2023-11-21 05:11:30
1
Cindy ( SRJET5) 🫶🏼 :
Hospitals are not the same nowadays. Yes educate ! Praying for you sweet girl . Loveyameanit
2023-11-21 04:50:32
1
AverageReasonableMom :
The new specialist! My daughter is low iq, low working memory, deaf, liver transplant, cancer survivor. I think that no one is listening to us. 2/2
2023-11-20 04:39:26
1
AverageReasonableMom :
My 22 yo daughter is medically complex and I fear that this is the road we are traveling. Diagnoses we had at 1 specialist have now disappeared at 1/2
2023-11-20 04:38:11
1
Sky :
They should have given you IV hydration at the very very least 😡
2023-11-20 03:29:04
1
carrmi64 :
What did it feel like when you couldn’t breathe. Because I feel like sometimes my esophagus is closing.
2023-11-20 03:00:52
1
37188Callie :
Is Scleroderma your chronic illness? You’re smile is infectious 🤍
2023-12-11 22:14:24
0
Dawn Marie :
I work for a healthcare system (clerical not clinical) and I agree healthcare is BROKEN.
2023-11-29 21:07:26
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htebf :
it doesn't help that you're a Black woman. Black patients in America are ignored.
2023-11-29 05:37:09
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meliapeters1 :
I appreciate you sharing your journey.
2023-11-23 02:33:03
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Piper :
Awwww girl! I’m so sorry! Sounds like we live in the same place! I am praying for you and your family! My 13yr old is having ❤️problems! Her ❤️rate
2023-11-22 02:02:03
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Charaine :
I’m so sorry you’re going through this! It is amazing how much advocating you have to do for yourself. I often wonder about elderly people who can’t.
2023-11-21 18:34:26
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Vickie Cooper :
My rheumatologist the same way. It’s horrible. The system is broken
2023-11-21 04:40:52
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Brey🪼 :
I watched your other videos… I wish I could pay all of your medical bills luv<3 prayin fir your safety and health!!
2023-11-21 04:30:16
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lychae0 :
I wish I could take some of your pain away. I hate that you’re dealing with this. Your soul shines bright, love. Don’t ever stop fighting and shining.
2023-11-21 02:34:35
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Dakota :
Yes… I’ve always said if you are not medically knowledgeable you need someone to go with you.
2023-11-21 01:43:07
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markmonique6493 :
Keep fighting and posting. What you are saying is too important!
2023-11-20 21:50:09
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