@ashcapps_: 🌟 Calling All Voices: Your Input on Autism Matters! 🔊 The National Institutes of Health (NIH) needs YOU! Share your insights on autism and co-occurring conditions like gastrointestinal issues, sleep disturbances, epilepsy, depression, and anxiety. Your experiences are invaluable in shaping autism research and policies. 📆 Comment Period: January 3 - February 14, 2024 ✍️ How to Make Your Voice Heard: * Speak up about the challenges and needs related to autism. * Suggest what can be improved in autism services and supports. * Reflect on how COVID-19 has affected autistic individuals. 👥 Why Your Contribution is Crucial: Your perspectives will directly influence the Interagency Autism Coordinating Committee's (IACC) strategies and recommendations. This is a unique chance to impact national approaches and support systems for autistic individuals and their families. 🔍 Important Notes: * Keep in mind, responses are limited to 1,500 characters per topic. * Avoid including personal or confidential information in your comments. * All submissions will become part of the public record. ⌛ Deadline: February 14, 2024 Don't miss this opportunity to shape the future of autism research and policy. Let's make a difference together! #AutismAwareness #NIH #IACC #PublicInput #AutismResearch #HealthPolicy #YourVoiceMatters #neurospicy #neurodivergent
Ashcapps_
Region: US
Wednesday 27 December 2023 01:54:39 GMT
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Debra Forth :
Ok but my adhd is never going to let me fill this out.
2023-12-27 03:20:26
1331
Jazze (Bisan’s Version)🇵🇸 :
I wish they had a advocate available for those who may not understand the language used in the survey because they really need help too
2023-12-27 04:05:30
1161
Quack :
I am glad my fellow autistics in the comments are having the same pattern recognition here
2023-12-27 21:51:32
303
Lauren :
See the problem is that my pattern recognition skills have ASSURED me they are the last people to trust. 🫠
2023-12-29 02:48:10
31
Brezatheoracle4444 :
Why now I wonder? Something is definitely up here. I don’t feel good about it but to each his own 🤷🏻♀️
2023-12-28 18:50:22
289
PuffyPinkClouds :
I’m curious about it and how they plan to use that information
2023-12-27 04:19:55
623
Isabella Johnson :
I want to submit something about the correlation between autism and ehlers danlos and Co. but I want to do more research
2023-12-27 07:39:32
336
mealzywheelz :
I'm interested in doing this, but also the questions are so broad that I'm not really sure how to answer. I really need them to be more specific.
2023-12-27 05:00:57
264
weekndwitch :
Is this only for people who have been formally diagnosed?
2023-12-27 02:46:20
251
Kefira :
Do we trust the Feds with a database of autistic people as the right wing is starting to cite autism as a reason people shouldn't be able to make healthcare choices?
2023-12-27 04:11:22
244
RebelJenn :
Great share. It’s very important, I know it’s hard to trust govt, but NIH is scientifically motivated!
2023-12-27 02:22:05
238
RBF Champion 💜 :
The timing. Makes me nervous.
2023-12-27 04:40:07
197
Lynzeigh :
I don't even know how to organize my thoughts! I need to overthink this, get overwhelmed, do research, then I can write a masterpiece 😅
2023-12-27 05:07:09
149
AttilaThePun :
I'm a therapist, saving this to send to clients! Thanks!! 🥰
2023-12-27 03:14:11
127
advocator of violets :
Meh, def wouldn't trust a fascist gen0cidal state w this info.
2023-12-27 03:17:22
78
angelaquintero925 :
I would not trust this
2023-12-27 03:20:46
63
TheStarvingAutist :
This raises my arm hairs.
2023-12-27 16:11:04
47
DovahgolzSeYol :
I'm already nervous and distrusting enough of our gov & even Drs that my diagnosis is already on my medical records.
2023-12-27 17:21:37
40
Zroburn :
I would fill it put but I wouldn't know how to articulate it into a letter.
2023-12-27 04:42:53
31
Zero Waste Strategies LLC :
Can we plz get some exposure on this? Who are the major ADHD / autism content creators on this platform? I can’t remember any to tag!! Help!!
2023-12-27 15:40:52
29
🌼 𝒟𝒶𝓃𝒹𝑒𝓁𝒾❁𝓃 𝑅❁❁𝓉 🌼 :
Is it anonymous? The political climate doesn’t make it out of the range of possibilities that they could “track” people
2023-12-27 04:16:22
29
Ejay LaStrange :
Aba therapy needs to be banned
2023-12-27 18:31:28
28
Kristina :
This is so cool and id love to participate. But these questions are WAY too vague in my brain to not form a full essay that’s unrelated for each. 😅
2023-12-27 08:37:15
27
Wastinmyminutes :
Good looking out. Will be sharing and spreading the word til the final date.
2023-12-27 03:05:24
22
Sherri Panini :
This is amazing. I will participate if they include self diagnosis.
2023-12-27 02:53:26
21
Levi Ackerman :
I am leery of this. Australia is already toying with autistic people being a bit sub-human (drivers license restrictions)...be careful
2023-12-27 13:47:06
19
🐝💜 :
I want to fill this out, but I also fear the information will be skewed by "Autism parents" that refuse to listen to the autism community and infantize us.
2023-12-27 14:29:02
17
okradphoto :
Took my daughter for genetic testing for EDS (co occurring with ASD) and was informed they recently shifted dx criteria and she no longer qualifies…
2023-12-27 12:48:13
17
Stacy :
This is so worrying. I’m scared this will be used to further limit autistic rights, they already want to remove our rights to drive…
2023-12-27 10:31:09
17
✨️~Zoe~✨️ :
why do I feel like this is a trap by the government?
2023-12-27 03:48:38
16
Kila :
Sounds like a great way to try and prove that autism isn’t disabling but co occurring conditions are the issue thus unravelling HSN supports
2023-12-27 15:58:29
15
Stop Trans Genocide :
Saving this for when I have spoons. I'll submit it if I can. But exhaustion is a big factor rn with what I'm able to do
2023-12-27 23:15:27
13
BUBZ🐀 :
As much as I would love to, this seems all too convenient with what’s going on in the state of the world right now.
2023-12-27 16:05:49
13
🌸yourmommeg🌸 :
I would be extremely weary of this.
2023-12-27 14:12:03
13
Jennifer :
1)scared to comment as I am a parent 2) is if 1500 words per answer or cumulative?
2023-12-27 03:08:57
13
Tai Rae of Sunshine :
Glad so many of my fellow autists see the same red flags as I do with this 😬😬😬 @dystopianista @Rachel
2023-12-27 17:23:08
12
RoseGardenDream :
As an autistic person, all of those questions sounded like the same question.
2023-12-27 04:11:49
11
Holly Wyrd :
@Dr. Bernadette bird Bowen
2023-12-27 03:52:21
10
Aurelia :
The hellscape they opened when they worded it that way to ND folks. I’d hate to be their inbox. 1500 word limit?! Bwahaha
2023-12-27 03:31:56
8
JLF :
This is groundbreaking but also scary. I would love to share my story with mthfr, autism, adhd, hypermobility, ptsd, mcas, pots, IBD and sibo. But also really don’t want my info out there either.
2023-12-28 04:05:50
7
ScrodingersTimelord :
This is great however I am with the adhd folks who instantly panicked when we saw big meaningful topics that we have a lot of feelings about and are unable to properly express them. 😅
2023-12-27 18:10:57
7
aristoddlesTTV :
THIS IS AMAZING AS AN AUTISTIC PERSON WORKING IN THE AUTISTIC COMMUNITY IM SO EXCITED
2023-12-29 08:54:03
6
Running4Robbie :
Definitely posting a public comment
2023-12-27 22:59:53
6
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