Carolynn Murray
Region: US
Friday 05 January 2024 01:34:59 GMT
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Demira :
I sleep for 12-15 hours a day and still feel tired throughout the day. and I can barely sleep throughout the night and sleep all day. I've experienced cataplexy once and thought I was having a seizure
2024-01-08 10:38:44
17
Duskdae :
WAIT WHAT? Can you talk about cataplexy? I always thought that limp and weak feeling was just cus of the panic attacks!
2024-01-06 05:11:48
7
Xtraeun :
1) This. People asked how I could sorta function after not sleeping and I had to explain
2024-01-12 07:03:35
2
kaylli. :
i feel like i go through stages with my narcolepsy. one week i only get about 12 hours of sleep in total and then the next, i can’t ever wake up
2024-01-05 07:30:50
4
✨assholeoutlaw✨ :
Currently on night 3 without a single hour of sleep 😭
2024-01-05 08:46:36
5
Cassie G :
haven't slept in 4 days, but still has sleep attacks. i see black figures, I have sleep paralysis. it sucks.
2024-01-30 15:02:33
3
mossy💜 :
can you talk about the differences between narcolepsy and hypersomnia?
2024-01-05 17:34:08
6
Definitely Not Charlie :
Interesting! My narcolepsy doesn't come with insomnia. In a way, I have a fun superpower where I can fall asleep almost anywhere very quickly
2024-02-15 00:40:57
1
dave :
is narcolepsy something you’re born with and just always have had or does it just happen one day?
2024-01-05 21:55:15
1
Leftist-Reposting :
I'm currently in the process of getting diagnosed with narcolepsy (and various other things) because I have a doctor that listens ❤️
2024-01-11 23:01:20
3
Belle :
If I drive for longer than 2 hours I often have to pull over and sleep
2024-01-14 07:48:48
3
💥💥Luci🦑🐇 :
omg I was so misinformed tysm for informing i have so many apologies to give😭😭
2025-06-11 10:10:18
3
Xtraeun :
Im so sorry for the long ramble. It’s just I barely meet anyone with narcolepsy and it’s such a debilitating disorder
2024-01-12 07:08:11
7
Xtraeun :
Cataplexy was what made me drop a bowling ball an inch from my foot bc I was laughing. I also have moments where I’m fighting sleep and I feel like I
2024-01-12 07:08:56
3
Xtraeun :
Cant think and I either make dumb choices or don’t listen to what others are saying. I hate saying this but I’m so glad I’m not alone
2024-01-12 07:09:23
1
Xtraeun :
I also have cataplexy so laughing has made me drop things, lose function of my upper body, and it’s so annoying people don’t get this
2024-01-12 07:04:41
1
Cass :
EXCELLENT explanation, thank you! ❤️
2024-01-10 13:50:49
2
Xtraeun :
I got fortunate that I was put on a medication called modafinil and gabapentin and I still don’t feel as functional as I used to
2024-01-12 07:06:21
1
Xtraeun :
I’ll be sleeping in the car, standing up, I’ve even closed my eyes while walking and at the same time I stay up super late
2024-01-12 07:05:13
1
Advocatus_Diaboli :
OSA & narcolepsy here. At first, I would snap into deep sleep mid conversation or driving. Scary. These days my chronic pain/illness affects my sleep!
2024-01-05 03:03:41
4
JustAnother ExMo :
Fantastic explanation. Thank you!
2024-01-05 01:50:50
2
Xtraeun :
People never understand how I have insomnia and narcolepsy, and I also take gabapentin to keep me asleep
2024-01-12 07:05:49
1
LuckeyChaos94 :
omg thank you! this is my exact problem!
2024-02-14 22:57:48
1
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