@brookeheartslife: yes I actually pee out of my belly button. lol sorry I'm really on a disability kick w my videos but I'm still reading spicy gay books don't worry 🫶🏼 #disabilitytiktok #paralyzed #spinalcordinjury #sci #fyp #disabled #quadriplegic #paralyzedadvice #mitrofanoff
How was your recovery? Thinking about getting one for the same reasons but scared of the healing process lol
2024-11-08 23:39:11
2
Courtney Harris :
I'm about to have a bladder augmentation
2025-11-18 08:11:09
0
Tati B. Alvarez Author :
This is so interesting and I’m so glad you got that independence back!
2024-01-16 00:16:34
17
Emilia :
That’s amazing! I’m so glad you have that freedom back now. I’d never heard of that surgery before
2024-01-16 01:32:24
6
Aly :
I know this is probably obvious but if you no longer have an appendix can you not get a mitrofanoff? I’m doing research to see what my best option would be
2025-05-18 09:08:57
1
b | booktok :
Science is so cool
2024-01-16 04:43:21
2
Desi :
so now the belly button and appendix have a real purpose. that's kool
2025-05-22 04:53:58
1
𝓛𝓮𝔁𝓲 :
Could I still wear shapewear after it’s healed?
2025-04-02 13:16:34
0
emilyinthecity90 :
That sounds like a great alternative to cathing. That said, is it any better with less UTIs l? I have a friend in a wheelchair and unfortunately, she gets UTIs frequently from cathing. 🙏
2024-12-03 04:01:27
6
BobbieJo :
My daughter Abby has an APV also. We use Coloplast compact set. There is a collection bag attached. Sooo convenient.
2024-07-21 02:28:26
1
💥Feral SoCal Gal💥 :
That’s amazing.
2024-01-16 01:31:05
0
Aubrey 🆘🇺🇸🏳️🌈 :
Is this something normally covered by insurances?
2024-01-15 23:45:38
1
Abbs :
Something I wish I was told, don’t take antibiotics unless you’re vomiting/feverish, even if the UA is positive. (I have a mitro too and am now severely resistant to most antibiotics due to over use)
2025-03-18 03:13:29
4
Siân | Booktok :
This is so interesting!
2024-01-15 23:43:10
2
Summer Conner :
I have the same thing done 17 years ago and it was such a life saver!!!!!💯
2024-01-16 03:54:09
1
Jessica Duncan :
❤️
2025-05-21 11:11:37
1
manifestdestiny :
❤️❤️❤️
2025-05-21 02:29:34
1
OG⭐️ :
@Amber & Neven Hart is this something thats possible for neven too??
2025-05-21 14:35:37
0
Kai20202020 :
Do you know if it’s lower or higher risk of UTI than suprapubic? Is there a lot of risk as “belly buttons” have a lot of bacteria?
2024-02-23 18:26:38
0
SittinPretttyyyy :
Heyy brooklyn how are you can you pleaseee inbox me i will hopefully have the same surgery soon && i have a few questions i was born with spina bifida
2025-02-01 01:18:51
1
Lauren :
My 4yo asked if people can pee out of their belly buttons and now I can tell him yes. He's gonna think this is so interesting.
2024-01-16 01:23:00
3
jaydencua26 :
Can I dm you about this
2025-01-27 08:59:39
0
mck🌺 :
I’ve been looking into this a lot recently. Will you please message me?
2024-01-16 00:36:06
0
Verna Lee :
My momma just went in for the Supra pubic tube but her bowels are in front of her bladder so she wasn’t able to get it. This would be life changing for her.
2025-05-21 06:50:52
1
In cog neeto :
This was the best decision that I had made since my injury… I’ve had it for 20 years and I think every woman with paralysis should think about it
2025-05-21 13:22:39
1
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