lottie🎀
Region: GB
Thursday 25 January 2024 21:52:46 GMT
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olivia holtz :
if comfortable, can you touch on how you found out you had cluster headaches? the location and intensity of mine say cluster but the frequency doesn’t
2024-03-14 19:27:17
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haills🎀🧸💌 :
I just got diagnosed with fibromyalgia and there's so many lifestyle changes I have to make to "help it" but it's so exhausting and painful
2024-01-30 19:41:20
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debyy ✡︎ :
Fibromyalgia and Vascular Ehlers Danlos Syndrome here🤚🏼I’ve always been told I had just depression. After de dx I do now hahahahah
2024-01-31 17:14:08
465
Snail :
heds, fibromyalgia and pots chronic fatigue migraines it’s a struggle when two years ago i was healthy
2024-01-30 05:55:28
297
Ally🌙 :
IBD and hEDS with chiari malformation, the feeling never goes away 😞
2024-01-26 15:08:32
34
user070368 :
I have fibromyalgia too 😔 I haven’t had a pain free day in over 6 years
2024-02-16 13:14:19
20
bela jibben :
Gastroparesis, pots, and migraines
2024-01-27 21:59:29
21
_lifewithcaitlyn_ :
Hi! I have hEDS and fibromyalgia among other things. I’m always here if you need to talk to someone ❤️
2024-01-26 11:39:21
9
Bandit :
I was diagnosed with Fibromyalgia in 2020 and hypermobile EDS in May 2022, 2 and a half years after I suggested it to my doctor 🤦🏼♀️
2024-02-02 11:10:33
5
Ffion :
they say there’s no medication for anything but I can suggest a med I have cluster headaches, and the only medication that works is ‘indomethacin’
2024-01-26 19:13:07
58
Lana ♡ :
Hey girlie! I was diagnosed with fibromyalgia as well about 2 days ago.
2024-02-24 20:41:33
2
K :
i’ve felt like i have fibromyalgia since i was 13 but idk. I get pains all the time that aren’t triggered by anything and they range from how they
2024-02-09 21:15:29
2
Paradox system :
still in that appointment where I got diagnosed euth HEDS and getting told "there's no drugs for you here"
2024-01-27 19:41:12
44
Zoë Marie :
I just got my 6th chronic illness diagnosis 😭 I don’t even know what to feel anymore
2024-01-28 12:32:06
58
georgia♾️ :
hypermobility, endometriosis, chronic pain... I'm lucky enough to be able to manage mine but it will always be there 💔
2024-01-26 12:35:29
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katie :
(1)i was a mess when i got my first chronic illness diagnosis a few years ago i didn’t know how to deal with it there’s literally nothing that can
2024-01-25 22:36:57
10
samantha :
I got diagnosed with hEds and pots a year ago and it was the most difficult thing to process yet also found a little peace in that it wasn’t in my head
2024-02-17 02:51:42
31
Rylie 🌵🪴🤎 :
i got diagnosed with Amplified Pain Syndrome, Chronic Fatigue syndrome and POTS a few months ago and it’s so hard to think that i’m going to deal with it the rest of me life… i’m only a teenaget
2024-02-09 04:55:53
5
🫧Delane🪩 :
Diagnosed with Juvenile Arthritis at 5, went back a year ago said it might just be fibromyalgia but now it may be Ehlers-Danlos. I’m exhausted
2024-02-14 18:20:30
9
Allison :
You aren’t alone. I have the trifecta : hypermobile ehlers danlos syndorme, POTS, and Mast cell
2024-02-25 02:32:47
12
Ducky🌻| Twitch Streamer :
Achalasia, Migraines, and Chronic Cluster Headaches 💜 I feel you, reach out if you ever need a friend!
2024-02-22 03:13:47
4
Reewyn🍉🍉🍉 :
Me when I got diagnosed with hypermobility and realised the pain actually won't go away nor the tiredness
2024-02-07 23:43:35
7
shelby :
Fibromyalgia, avascular necrosis and nephrotic syndrome here :(
2024-02-09 13:26:04
14
Allie :) :
all us chronic ill girlies are so strong! We got this! 👏
2024-02-27 18:03:33
43
Lillipad.Frog :
I probably have chronic endometriosis, and I find it absolutely devastating that there’s a cure (a hysterectomy) but doctors refuse to use it
2024-02-10 04:53:09
4
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