Ray
Region: US
Saturday 27 January 2024 01:57:55 GMT
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Danni x :
yep fibromyalgia, endometriosis, IIH and morphea here. and they all incurable and no treatment.
2024-03-15 10:37:06
87
Emma :
I have EDS and dysautonomia too. I’m sorry :(
2024-01-27 04:50:11
155
Yoshino :
Me with osteoarthritis, secondary polycythemia,syncope, PTSD, PCOS, severe migraines from a brain tumor, asthma, ibs and more-
2024-04-15 21:00:38
32
𖤐Yareli/Yari𖤐 :
So true!! “You have pots…we have no cure or way to help btw.”
2024-01-29 05:25:54
36
猫吃猫食 :
me with ibs after going through all the tests bc “my calprotectin was too high in the first stool sample”
2024-01-27 02:55:02
53
Niamh Hoskins :
When the doctors use the words “life sustaining treatment” instead of “life saving treatment” that one hurt
2024-03-23 22:41:04
17
Batty :
I have EDS and they made me wait 3 years before I got a decent medication a week ago. It’s so frustrating but never give up that medical things will change!
2024-04-16 12:03:14
14
Nicolas Garcia :
Normal doesn’t exist for us. I hate thinking about it but hopefully we will have some good days 🙏
2024-04-09 07:50:08
7
jill :
the doctors are looking into POTS for me and i’m terrified
2024-02-01 21:10:59
25
Liz :
crying and bawling for the life I used to have
2024-02-27 23:25:51
35
Noya :
the relief and grief you feel at the same time is overwhelming
2024-01-30 18:09:58
18
Sophia 💗 :
Worst feeling ever.
2024-07-05 17:40:25
9
🐞Haley🐞 :
Can you do a video and explain what to tell people who don’t know I have Vasovagal syncope because I always panic and don’t know what to tell ppl to do
2024-03-24 17:50:00
14
Kass :
8 years of a diagnosis. 3 major surgeries. Almost died 4 times. This hits.
2024-04-14 20:48:43
4
Callie Endar :
Sending hugs ♥️♥️♥️
2024-01-27 03:56:34
6
✨Duck✨ :
i technically have a diagnosis but still no idea what causes it and the doctors have no interest in looking into it anymore no they’ve been able to slap a label on me
2024-03-17 15:50:56
16
Sull.ee :
i thought when i got diagnosed i'd feel relief but all i felt was grief
2024-02-29 09:06:20
4
𝐈𝐬𝐚✞ :
und wenn ich meinen freunden sage das ist eher was ernstes ist sagen sie ,,ja’‘ aber eig verstehen die garnd das es wirklich nd zum spaßen ist oder so
2025-01-05 01:55:27
1
rina :
real:/ sending you love 🫶♥️
2024-01-28 07:10:07
3
dessy🤍 :
Was diagnosed with Crohn’s Disease at 11. Now I’m 14. 7 surgeries and countless of complications. I’m so done bro.
2024-11-09 16:28:48
1
AD :
i hv Ankylosing spondylitis after YEARS of chronic back pain
2024-03-14 01:45:59
2
Shayeda :
the fact that no one even knows is what hurts
2024-04-11 16:12:17
1
ellie :) :
HSD and dysautonomia, genuinely changed my life
2024-04-21 14:20:56
1
RAY 🛝 :
I know how it is, I have Anemia and it's tiring❤️
2024-03-22 09:45:05
1
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