CallMeTaraJay
Region: US
Wednesday 07 February 2024 01:57:03 GMT
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Melbee :
I was at the worst stage when they found my AL Amyloidosis. They found it during open heart surgery! Chemo helped me go into medical remission for a few years. It comes back 😳
2026-07-21 05:48:30
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Kass :
im waiting to see if I have neuropathic AL amyloidosis waiting on the congo stain from bone marrow biopsy
2026-07-11 13:30:04
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angelamoss7156msDee66 :
Going through tests now to see 😳🙏
2026-08-02 05:59:43
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Margie :
I have familial non neuropathic amyloidosis.
2024-09-12 17:38:01
1
Amy 🌻getting her glow back 🌻 :
My mom passed away from it 20 years ago
2024-05-03 01:25:13
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morganamajik :
I wish I was diagnosed sooner it's gone too my heart now already lost my kidneys
2024-07-14 23:42:49
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Nohea16 :
I was diagnosed while going through CHF and now I have a whole new heart due to a heart transplant because of the disease.
2024-05-11 01:00:59
1
Ashley B :
My dad just got diagnosed any support group would be great
2024-03-09 03:00:18
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LaKrisha Moore :
Thank you for making videos. I just received my genetic test back confirming after searching for years what was wrong. I’ve seen so many specialists.
2024-11-10 16:04:10
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rufusbuggles :
What kind of skin changes can it cause, I have weird scar tissue like bands under my skin but doesn’t really look like scleroderma 🤷♀️
2024-08-12 23:00:02
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TanyaDowd73 :
My mum just passed away. She had Amyloid familia which is hereditary. Started with kidney failure then went to her spleen and heart.
2024-07-30 21:49:21
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Cat of the mountains :
my uncle died of that
2024-08-18 21:59:38
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heather_renee35 :
My dad passed away from this 2 years ago
2025-06-21 03:46:54
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JustSandy51 :
That type of Facebook group is wonderful
2024-02-08 22:29:40
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mrs.sugebutler :
Thanks for sharing
2026-03-29 12:02:24
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Margie :
I have it from familiar Mediterranean fever.
2026-01-06 17:38:24
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Katie Shuster :
❤❤❤
2025-11-09 18:13:05
1
Casandra Pizano :
🥰🥰🥰
2025-11-19 18:10:34
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GewrgiaAnna :
the symptoms were after the covid vaccine? a friend of mine had this after vaccination
2024-08-09 09:47:03
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Jone Yang :
I have foamy urine! Not the other ones tho. I also have dry mouth, foamy saliva, and gastrointestinal issues.
2025-04-08 22:46:36
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