Dr. Erin Nance 🇺🇸
Region: US
Wednesday 14 February 2024 17:35:54 GMT
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ArtMuse1995 :
I've had SB and tethered cord syndrome since birth. I have RLS and PLMD .. I live with chronic insomnia, chronic systemic pain. I've been told numerous times by specialists that I'm crazy.
2024-03-03 22:29:11
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kayellbee76 :
EDS, endometriosis, hashimotos….I feel this deeply. So many years of being told you had low pain tolerance or just needed to have a better attitude!!
2024-02-14 19:06:45
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🥀Sara🥀 :
This is me. I got severe Fibromyalgia and hEDS. I've heard it all and even tho I've been to really good specialists they treat me as a dr*g seeker 💔
2024-02-20 03:06:47
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Aliceandurtzel :
While my daughter is fortunate to be diagnosed before 20, knowing she has a life of pain and medical struggles weighs heavily on her.
2024-02-15 13:47:24
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CJHarb :
As someone who’s just been diagnosed with EDS/HSD, POTS, and MCAS, thank you. It’s taken 44 years to get a diagnosis.
2024-02-15 03:40:59
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megzine7 :
I had a female doc tell me (after I was already diagnosed) that I couldn’t possibly have EDS because “it is too rare”!
2024-02-15 03:30:41
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liz :
Huge co- morbity of EDS, Neurodivergenc. PoTS & autoimmune/Lupus. Getting dr’s from different specialists to work together on diagnosis is impossible
2024-02-29 11:35:27
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HCorb81 :
The longer I watched, I knew exactly where you were going with this. Daughter with EDS, POTS, MCAS, CRPS.
2024-02-15 13:38:17
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Theresa Lynn :
Not me crying watching this! The medical gaslighting & neglect leaves us as patients scarred for a life time! Even after…(1)
2024-02-19 00:07:03
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noahsark :
Can totally relate. 6 yrs in conv med. Fired by neurologist bc neuro-opth lied @ finding diagnosis. Went to acupuncturist which led me to diagnosis of cranial Lymphedema & Relief!
2024-02-20 04:03:23
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manz14 :
What type of dr do we go to? This is me to a t!!
2024-02-26 00:06:34
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Kathy Manthey823 :
EDS, POTS and I am sure I have MCAS also.
2024-02-14 18:52:45
23
elle :
Rn I’ve been having severe fatigue and have been unable to lose weight or regularly exercise, but all my tests are normal so they keep just telling me to eat better and exercise… but I barely eat
2024-03-26 14:34:33
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FlexiblePetSolutions :
They didn't stop looking for what was wrong, THEY NEVER STARTED!!!!!! Thank goodness you're sharing these stories
2024-02-14 23:47:02
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LoJ :
I can relate
2024-02-17 01:02:41
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Cassandra 🍁 :
Doing the RADS-R autism screening myself I score borderline. Having my husband do it for me I got 140 🙃
2024-02-15 21:26:19
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Renvah A Creppel :
*cries silently* thank you for sharing this.
2024-02-15 05:20:10
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Forest dweller :
EDSer here, I was falling asleep behind the wheel too, DX'd with Central sleep apnea
2024-02-16 04:25:09
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Grassy Knoll Jumpers, LLC :
That person is so brave. Ty for sharing.
2024-02-15 12:18:01
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Mefistogato :
Wow is like we all live the same experience 😔
2024-05-05 15:08:28
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mrskeebler🇨🇦 :
I have most EDS symptoms. How do I get a diagnosis ?
2024-02-19 06:09:10
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shawnee Simms :
you didn't mention pots as far as I know so I'm wondering about that because pots seems to be with that one diagnoses..
2024-02-16 22:36:43
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Crystal Reynolds :
Skin pain? I have that..
2024-02-18 05:24:03
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ArH :
I have hEDS, Gastroparesis, MCAS, POTS, trisomy X, and at 40 they discovered Congenital Myopathy (I’m missing short fibers in my muscles). I feel for this woman. I went through a lot of BS too before
2024-02-20 17:43:00
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CountryDara :
Somatic syndrome was brought up before my diagnosis of hemiplegic migraines.
2024-02-17 22:21:56
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