@lil_tachy: Like how many times am I going to have to go to a new specialist to get a million tests done just to find out that pots is the culprit? #xyzbca #pots #posturalorthostatictachycardiasyndrome #potssyndrome #potsie #chronicillness #chronicallyill #dysautonomia #dysautonomiaawareness

Kirsten🏳️‍🌈
Kirsten🏳️‍🌈
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Region: US
Sunday 18 February 2024 22:10:43 GMT
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dxc1914
Dx13444 :
Turns out I also have endometriosis. 🙃
2024-02-19 00:07:07
14
saranotsarahkay
Sara :
Very true, I had to get screened for my dad’s rare heart condition because I started developing every symptom. Turns out, just POTS.
2024-02-18 22:24:27
5
autumnloveshistory
Autumn | Historian & Writer :
And it only gets harder with more chronic illnesses! POTS, PCOS, Fibro… I never know what’s from what 😩
2024-02-19 08:54:38
2
sinxshui
Sinx.Shui :
i have so severe muscle weakness this month that I cant even drink in a glass I have to use straws for evetrithing and eat is HARD
2024-02-18 22:35:32
13
brennemanfamily
Brenneman Family :
hahahahaha F U POTS you're doing too much. sometimes it just likes to be extra
2024-02-19 01:10:36
3
madmentalhealth
Maddy :
Wait.. wait.. I have random times where everything is blurry and I go am i blind all of a sudden?
2024-02-19 04:33:03
2
b.urkenstocks
‹3 :
in limbo rn to see if my current GI issues are gastroparesis, ozempic side effects that will be gone soon, or just good ol hypomolitity 🙃
2024-02-19 16:55:01
1
jessrassicpark
JessrassicPark :
Whenever I would drink iced coffee-after I peed my blood sugar would drop. Now I know it was POTS not liking caffeine. I miss caffeine. 😭😭😭
2024-02-18 23:00:00
4
everydayalexdiary
Everyday Alex Blog :
How many times I've had terrifying symptoms and be like, hum is this just regular scary or ER scary ?
2024-02-20 13:31:28
4
christabrooke
Christa Brooke :
REACTIVE HYPOGLYCEMIA??? This might explain some things.
2024-02-23 14:11:29
1
highestvelocity
HighestVelocity :
"If you have any of these symptoms, contact your doctor" *lists all pots symptoms* 😂
2024-02-20 03:01:35
1
chemi_scenova
SCENOVA :
I have MS & my nerves are messed up from the autoimmune disease & I ask the same questions. Luckily MRI can let DR know if it is new damage or old bc NS damage is weird!
2024-02-19 15:06:28
2
queeniethebeanie
Queeniethebeanie :
Haha I thought it was a POTS flare. Then it started to act not like POTS and got bad. Went to ER. Put in a resus bed immediately 🥰😂 phosphate 0.26💀
2024-02-22 20:08:16
3
chronic.chaotic.iconic
chronic+chaotic :
have you ever had to get a catheter? just got home from the ER for the first time and I don't know where to begin
2024-02-18 22:50:09
2
chicken_fried_fortune
chicken_fried_fortune :
Unfortunately, I can relate
2024-02-19 01:20:35
2
frosted_ashes
Ashley 🍒🌸 :
always praying for you, seems hard to live with POTS ❤️
2024-02-18 22:15:20
2
billiejeanramey
billiejeanramey :
I just want to move past the it’s just anxiety bs from these drs
2024-02-22 06:57:37
1
frosted_ashes
Ashley 🍒🌸 :
I'm early 😍
2024-02-18 22:14:33
1
tanleggedjuliet.98
shawnee Simms :
i have hypothyroidism hashimotos and it's not diagnosed but everything leads back to it being pots and my doctor said it could be. but I was just tested for other autoimmune disorders.
2024-02-18 23:40:51
1
skylarg96
skylar :
my gp says I have pots but the tilt test said I do not ... what is wrong then?
2024-03-14 16:33:31
1
tamizinnha
Tami :
this!! i have type one diabetes but my blow sugar it’s low ALL THE TIME and it’s not even possible 😭 it’s pots?
2024-03-10 19:45:21
0
sunflowertraveller
Zoe | 🌻 travel writer & coach :
It’s even worse if you hace MCAS too - like which one is taking over right now?
2024-03-13 11:44:01
0
mo2222_loveyourself
Morgie 💕 :
Yes!!! Every symptom I bring up I’m told is from dysautonomia. I feel like I’ve been in a flare for months😫
2024-03-13 00:58:26
0
starlitheart93
Tara 🇨🇦 :
I like to think of health problems like onions… it’s hard to tell what’s causing what until you treat one thing and peel back that layer. Whatever’s underneath is something else.
2024-03-14 02:00:26
0
aubrey0w0
aubrey🌈♾🦓 :
I apparently have intussusception was diagnosed today it’s fatal if not treated and I thought It was just my normal symptoms
2024-02-21 23:50:53
0
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