@kyliesjourney: Update on Kylie: Kylie’s heart rate has repeatedly spiked over the weekend. We are not sure why so they will be running some tests today. She also has a slight fever and has thrown up a few times over the past 24 hours. We are thinking it is withdrawals from the pain medication and hoping it is not a sign of infection. Any little thing can change her status on the transplant list. Unfortunately, the blood clot is still there and has not shrunk. She will need a shot twice a day for the next three months to treat it and hopefully it will go away. Kylie will be having a CT scan today to check on the hole in her lungs they previously found that had 5 infections and fungus growing. Kylie had therapy today and she is hitting all her milestones on time for the most part. We are so proud of our girl. 💗 Please pray that Kylie’s heart rate is not due to anything concerning. Also, that the CT scan comes back better than before and that Kylie will get a donor soon. 🙏🏼♥️ ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️ You can follow Kylie’s story on Facebook at https://facebook.com/groups/1430805561122265/ Any mail for Kylie can be sent to: Ashley Overfield 2429 Bissonnet ST Box 117 Houston, TX 77005 Kylie’s wishlist: https://www.amazon.com/registries/gl/guest-view/G1UNTZC4GY16 Venmo: @Ashley-HaasOverfield https://gofund.me/1cadcf93#babytok #babytiktok #lungtransplant #foryoupage #foryou #raredisease #kylie #kylieslungtransplantjourney #babykylie #christiantiktok