@erinrackham: Sharing to normalize making accommodations in your system to get the support you *actually* need when you live with multiple disabilities. 🙏🏻 #longCOVID #longCOVIDawareness #pathologicaldemandavoidance #pdaautism #dysautonomia #POTS #mentalload #autisticparenting
How do you balance making sure your husband has time to recharge and rest as well?
2024-03-25 02:04:38
21
JournalingJoy13 :
Thank you for sharing this! I can relate to some of it
2025-03-25 15:37:41
0
✨I Cry A Lot✨ :
My daughter had five girls sleep over last night for her 12th birthday and I will be in bed for a week and we planned for that. ✨
2024-03-24 22:22:11
17
Leslie :
how amazing you have a husband like that!
2024-05-21 17:28:34
1
Rootmich 🇨🇦🏳️🌈🌊 :
I’m have ME/CFS and POTS . I get it. I see how hard you work to do even the ‘fun’ things. Other folks really don’t get it.
2024-03-28 21:19:13
8
chronicallyazebra :
Add in making it to appointments around all the other events and it’s purely exhausting and sometime unattainable
2024-09-10 02:08:05
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Purrfect Paws Sanctuary :
You'd be very surprised what we're capable of doing when we HAVE to! When we have no choice!! 😫
2024-04-09 13:38:15
2
Ashley Monday :
I don’t know why this specific video is the one that has finally opened my eyes and allowed me to start accepting that I’m disabled and it’s okay if I can’t do everything myself😭
2024-03-25 02:08:15
9
Lisa :
This sounds very much like our lives as well. It’s comforting to hear this and know we aren’t alone. Everything is a huge effort, I so get it.
2024-04-08 04:00:36
10
LvnDeadGrl777 :
also wondering about your husband's respite
2024-07-13 03:55:35
2
Amiee :
Does your husband get some respite, so he also doesn’t burn out?
2024-04-10 19:53:18
2
buddibug :
If its any consolation the incredible amount of love and support you describe from your husband is helping me *so much* in being able to accept the safety and love my partner is trying to give me❤️🩹
2024-04-02 16:23:56
2
Amy :
I feel this. My husband is amazing when he’s home, but, he works a lot. Thankfully we have a great village, including my mom who lives with us.
2024-03-25 02:15:27
2
genx babe :
that's so huge how able you are to be in your body now. the damage your body has experienced from "not being connected to it most of your life". when we are disconnected from our body's, than when
2024-03-24 23:50:47
2
Kitty Morgana :
I have dysautonomia and I have to fly for a doctors appointment and stay somewhere for a week and I’ve been planning for fortnight now. I’m chronically ill as well. Not looking forward to it.
2024-04-01 06:10:05
1
Fix2day :
I hear you 💕
2024-03-29 04:26:29
1
Stargirl :
Im so sorry i’m struggling w long covid too and i relate to preparing and training ur mind to get more tired again the next day💔how high does ur heartrate go and whats ur resting heartrate?
2024-03-26 09:53:30
1
user7432751511649 :
Sending hugs
2024-03-25 23:29:18
1
Tania Angelis🇺🇦🌈🍉 :
I have to do something similar (minus the children) because of my Audhd/Long Covid. I went to see my grandchildren perform in their quarterly drama club show and I rested for the whole day prior 🌱
2024-03-25 08:16:04
1
MANdy :
So your husband is a single father. 😔
2024-08-04 03:32:08
0
xanga :
as an autistic your life is my biggest fear 😨
2024-03-25 18:28:19
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Shay Nadine 🏳️🌈🇺🇦🇵🇸 :
I’d love to follow you on other platforms when TikTok goes away!
2024-03-25 18:15:40
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Shay Nadine 🏳️🌈🇺🇦🇵🇸 :
❤️
2024-03-25 18:14:24
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Sadie :
Have you ever considered tms? It was life changing for me
2024-03-25 03:55:05
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