@erinrackham: Sharing to normalize making accommodations in your system to get the support you *actually* need when you live with multiple disabilities. 🙏🏻 #longCOVID #longCOVIDawareness #pathologicaldemandavoidance #pdaautism #dysautonomia #POTS #mentalload #autisticparenting

Erin Rackham, PhD
Erin Rackham, PhD
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Region: US
Sunday 24 March 2024 22:16:18 GMT
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sarahannx3littles
Sarah :
How do you balance making sure your husband has time to recharge and rest as well?
2024-03-25 02:04:38
21
journalingjoy13
JournalingJoy13 :
Thank you for sharing this! I can relate to some of it
2025-03-25 15:37:41
0
thekatiehanlon
✨I Cry A Lot✨ :
My daughter had five girls sleep over last night for her 12th birthday and I will be in bed for a week and we planned for that. ✨
2024-03-24 22:22:11
17
sciencemama3
Leslie :
how amazing you have a husband like that!
2024-05-21 17:28:34
1
rootmichkinardlydoit
Rootmich 🇨🇦🏳️‍🌈🌊 :
I’m have ME/CFS and POTS . I get it. I see how hard you work to do even the ‘fun’ things. Other folks really don’t get it.
2024-03-28 21:19:13
8
chronicallyazebra
chronicallyazebra :
Add in making it to appointments around all the other events and it’s purely exhausting and sometime unattainable
2024-09-10 02:08:05
0
lisamaynard_73
Purrfect Paws Sanctuary :
You'd be very surprised what we're capable of doing when we HAVE to! When we have no choice!! 😫
2024-04-09 13:38:15
2
ashleymonday_
Ashley Monday :
I don’t know why this specific video is the one that has finally opened my eyes and allowed me to start accepting that I’m disabled and it’s okay if I can’t do everything myself😭
2024-03-25 02:08:15
9
lisapajak428
Lisa :
This sounds very much like our lives as well. It’s comforting to hear this and know we aren’t alone. Everything is a huge effort, I so get it.
2024-04-08 04:00:36
10
lvndeadgirl69
LvnDeadGrl777 :
also wondering about your husband's respite
2024-07-13 03:55:35
2
beelzebubstan
Amiee :
Does your husband get some respite, so he also doesn’t burn out?
2024-04-10 19:53:18
2
buddibug
buddibug :
If its any consolation the incredible amount of love and support you describe from your husband is helping me *so much* in being able to accept the safety and love my partner is trying to give me❤️‍🩹
2024-04-02 16:23:56
2
our3sonslife
Amy :
I feel this. My husband is amazing when he’s home, but, he works a lot. Thankfully we have a great village, including my mom who lives with us.
2024-03-25 02:15:27
2
myhealingjourney52
genx babe :
that's so huge how able you are to be in your body now. the damage your body has experienced from "not being connected to it most of your life". when we are disconnected from our body's, than when
2024-03-24 23:50:47
2
earnestmorgana
Kitty Morgana :
I have dysautonomia and I have to fly for a doctors appointment and stay somewhere for a week and I’ve been planning for fortnight now. I’m chronically ill as well. Not looking forward to it.
2024-04-01 06:10:05
1
fix2day
Fix2day :
I hear you 💕
2024-03-29 04:26:29
1
starflexx20
Stargirl :
Im so sorry i’m struggling w long covid too and i relate to preparing and training ur mind to get more tired again the next day💔how high does ur heartrate go and whats ur resting heartrate?
2024-03-26 09:53:30
1
180179butterfly
user7432751511649 :
Sending hugs
2024-03-25 23:29:18
1
taniaangelis444
Tania Angelis🇺🇦🌈🍉 :
I have to do something similar (minus the children) because of my Audhd/Long Covid. I went to see my grandchildren perform in their quarterly drama club show and I rested for the whole day prior 🌱
2024-03-25 08:16:04
1
andynyc23
MANdy :
So your husband is a single father. 😔
2024-08-04 03:32:08
0
xxaangaa
xanga :
as an autistic your life is my biggest fear 😨
2024-03-25 18:28:19
0
shaynadine
Shay Nadine 🏳️‍🌈🇺🇦🇵🇸 :
I’d love to follow you on other platforms when TikTok goes away!
2024-03-25 18:15:40
0
shaynadine
Shay Nadine 🏳️‍🌈🇺🇦🇵🇸 :
❤️
2024-03-25 18:14:24
0
sadiesatin
Sadie :
Have you ever considered tms? It was life changing for me
2024-03-25 03:55:05
0
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