Girl I completely understand. I’ve just gradually had worse symptoms as I’ve aged and people don’t understand how we have to take care of our needs nearly perfectly
2024-04-04 22:11:34
48
River 🇨🇦 :
I constantly have to talk about my pain and pots. I'd rather not but when I don't everyone thinks I'm better now and can suddenly go back to my pre-pots running
2024-04-04 22:19:29
29
chronically_heather :
My chronic illness is my entire life. Of course it’s my whole personality 😂
2024-04-04 22:35:11
16
not_kortney :
THIS! Started fainting constantly postpartum. Doctors wrote me off saying it was ptsd, had to figure out for myself it’s pots/autoimmune and made them a document of studies symptoms etc. for DOCTORS
2024-04-04 22:18:28
15
thedarkmuppet :
so I started following you bc I liked ur stories...I found out about the POTS later...so can you tell me how POTS starts, how a car accident did that to you, curiosity only, I didn't know about this
2024-04-07 01:20:06
6
MoonieGirl :
🙌🙌 Trust me, I was much more interesting before getting a chronic illness and fun!
2024-04-04 22:19:31
7
OfDungeonsAndOwls :
Me with ADHD and Autism… its literally a part of me and part of who I am and my traits. Now with POTS added in. Its… 😭😭
2024-04-05 08:51:07
1
♔ :
PREACH! Also when I share posts about pots it’s for educational purposes/awareness so my friends and family can understand it better! Not bc I’m searching for attention!
2024-04-04 22:13:45
5
kindathrivingliv :
Literally
2024-04-10 01:34:35
2
Cannabis.Kate :
Also people don’t understand that grief you go through when you lose the person you were before your diagnosis
2024-04-06 03:53:06
1
MCmcSweets :
It is really important that you keep informing people — the invisible disability community appreciates it and you are an INCREDIBLE SELF ADVOCATE!!!! This mom is proud of you!
2024-04-05 11:22:40
2
Calling Care 🐻 :
Amen. I didn't choose this life. This life choose me.
2024-04-10 06:31:24
1
Leeland🏳️⚧️🍉 :
My disabilities aren’t as bad as POTS (amputee and deaf but not completely) and most people just think I have a limp and people definitely get mad at me for my hearing 🙃 people need to STFU like
2024-04-04 22:52:33
4
Saraminka Nova :
MS here, yes.. we have to always put our illness first, because no one else will... massive hugs and love!!!
2024-04-04 23:39:10
1
WhimsicalSydney :
AMEN 👏🏼
2024-04-10 01:59:33
1
⭐️~LUCI~⭐️ :
how long have you had pots for?? my sister has pots (it’s a long story…) but it’s gotten so much better since when she was diagnosed! she just needs to keep on taking her medicine and on days where(1)
2024-04-06 08:46:02
1
soccsami :
Thank you for this! This is so validating💜
2024-04-05 13:45:14
1
Heather Adaptive Beauty✨✨✨ :
Period
2024-04-04 22:17:19
1
Sam|W2C 🥄❤️🩹 :
This hurts so bad because it’s my every day damn life. 🥺
2024-04-24 22:38:35
0
✨D from Offbeat Boutique🧶✨ :
Thank you
2025-10-27 17:34:23
0
Em :
Preach!
2024-05-03 04:14:42
0
🪴 𝔻𝕛 💜Ṕ🅞𐌕ᔕ𝕚ꍟ 🦥 :
YES GIRL! Totally can relate to this thanks for posting this! 🥰
2024-04-30 13:50:43
0
aCutely Inappropriate Crochet :
I completely understand. I'm just over 2yrs in and....it's taken everything
2024-04-25 00:07:29
0
Laurenrenee_1025 :
Ugh so real I talk about my MS constantly and really miss teaching
2024-04-04 22:29:50
0
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