Kit ✨♿️
Region: US
Tuesday 09 April 2024 01:20:20 GMT
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🖤♦️👑 Crow 👑♦️🖤 :
I need some help with electrolytes, all of my meds dehydrate me but electrolyte drinks seem to give me heart burn? 😭 Like, how do I balance that???
2024-04-12 04:19:01
6
Grace :
Would taking collagen help?
2024-07-07 01:05:37
0
K :
I sometimes wake up and my face is really swollen - my hayfever has got worse and I’ve constantly got sore eyes and dodgy stomach
2024-10-14 15:57:08
0
Orion11b :
Get comfy loving planks. Core strength is the one thing I've found to help a bit
2024-04-09 01:34:35
28
Laura4p0 :
I just wish Dr's were more knowledgeable. I can't tell you how many times I was called a liar with all my seemingly unrelated symptoms, especially pre diagnosis.
2024-04-15 06:37:24
8
Kristin (wedding photographer) :
Benadryl is not one of them 😂😂 I had hives and angioedema for over 8 months last time I had a bad flare.
2024-04-09 04:36:34
2
✨🌳Clara Moth✨🎶 :
I’ve just started doing some research on Eds and discovered your page and I swear suddenly everything makes sense, all my issues are literally explained
2024-04-14 20:13:33
8
shy :
This is so frustrating for me because I have SMA and extremely weak muscles can we take collagen??
2024-09-13 13:15:15
1
Claire 🌈💨🍃♍️ :
this was really informative, thank you! I'm definitely going to be checking out other videos on your page 🙂
2024-04-09 01:31:46
1
Brittany Snow | Writer 🇨🇦🦋 :
Any tips for hydration? I believe I have hypovolemic POTS as well and I’ve tried all the typical hEDS electrolyte tips but nothing works for me 😭
2024-04-09 01:42:58
8
ᴋᴀᴛ :
I wonder if this is why I feel so good on double antihistamines lol, I take OTC Zyrtec but also got prescribed singular
2024-04-10 19:23:35
3
Jodi :
I just stated in January with unexplained hives/welts, skin writing, constipation. could you recommend some blood work panels to help look? I live in a small town.
2024-04-10 13:36:47
2
Hawke :
Noooo I love fermented foods, I can't give up Kimchi 😭
2024-06-17 18:51:50
1
blackbirdsilence 🇳🇱🏳️🌈 :
exercises often make the muscle pain worse, but not all the time. I'm not sure which ones to do and for how long
2024-04-12 12:44:30
1
carolyn :
My life changed so much when I was put on Singulair! I use to be more of a mess than I am lol.
2024-04-09 16:41:31
0
hugsFTW :
QBC Plex by solaray helps with mast. I started to take it for seasonal allergies and it also helps with some joint pain as well. one food I can't do is potato salad. histamine reaction galore😅😳
2024-04-22 02:06:34
0
Shelley Lynn Raymond :
Thats me chronic Si joint dislocation and well as I have a I jury from a fall that popped my hip, pelvis and femur. Been seeing an Ostepath she has helped my pain and muscle stiffness .
2024-04-12 13:38:54
0
Courtney Somers :
Just happened upon your page and I'm so happy! EDS, MALS friend here. I would love to know what anti-histamines you can be on long term. My physicians pretty much say benadryl and well that's a no no!
2024-04-12 15:08:42
0
Brigette :
🥰🥰🥰
2024-04-13 02:24:06
0
elizabeth :
HEAVY on the making sure your antihistamine is okay to take daily. If anyone needs a REALLY bad horror story to drive it home dm me😅
2024-04-09 01:43:53
2
4txxr :
Woah yap alert
2024-04-09 01:24:42
0
Omnia :
don't just go lifting weights with no experience though! a physical therapist w/experience with eds is best to help.
2024-04-09 02:15:37
4
Anna Faye 💛 :
Hey I got a TikTok video suggestion for you. Tell us what some of your favorite hobbies are and your favorite disablity friendly activities! What do you think?
2024-04-09 01:56:42
4
PaganPrincess :
I assume you're going to tell me that being able scratch my left shoulder blade with my left hand isn't normal either? 🙄🤣
2024-04-14 01:45:50
1
Sarah :
1 of my issues is SI joint and I cancelled my injection. Bc steroids increase my HR, but my Pirformis muscle is always so tight. But the SI joint pain is 🔥🔥🔥🔥🔥
2024-04-09 04:17:33
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